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Extremely worried please any advice

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Yes, above 9, after an hour. Thats why the doctors test our fasting blood sugar level, and after 2 hours of a meal when exploring if we have diabetes. Anything under 2 hours doesnt matter, as non-diabetics can have high readings during that 2 hour reading. Thats the logic behind the way tests for diagnosis are done. Within the 2 hour slot doesnt show normal v diabetic. So any reading you have had within that time are not useful indicators.

I have anxiety and the meds will help you and also give your mind some healing time so that, when you can get counselling, you are ready to get the most from it. A bit like having anti-inflammatories for a strained muscle to get it as well as possible before physio. I am happy to talk about my anxiety if that helps you. You are not alone.
 
I checked her twice today - fasting 4.3 and after dinner (an hour) 5.6.

I'm still very worried as a lot of studies seen to suggest that non diabetics don't really go above 7.8 unless given a lot of carbs. Those few grapes weren't that much and pushed her over 9.
However slower acting carbs aren't an issue. Would they be if there was a problem? There is no real rise with slowe acting carbohydrates.

I will speak to the dr tomorrow about my health anxiety but may also make a separate appointment for my daughter in case they think it is something I should be keeping an eye on.
 
ExtremelyW0rried said:
I checked her twice today - fasting 4.3 and after dinner (an hour) 5.6.

I'm still very worried as a lot of studies seen to suggest that non diabetics don't really go above 7.8 unless given a lot of carbs. Those few grapes weren't that much and pushed her over 9.
However slower acting carbs aren't an issue. Would they be if there was a problem? There is no real rise with slowe acting carbohydrates.

I will speak to the dr tomorrow about my health anxiety but may also make a separate appointment for my daughter in case they think it is something I should be keeping an eye on.
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Make sure you tell the GP about the amount of testing you are doing on your daughter. And please stop giving her apple juice, or any fruit juice. This is like giving her liquid sweets and wont help her to balance her weight or be good for her teeth.

About the slow acting carbs: a carb is a carb and slow acting carbs may rise the sugar levels more slowly, but it will still rise. So the bottom line is No rise, No problem, regardless of the carb.
 
I will. I am fighting against checking more but I know this is the wrong thing to do.

No I haven't given her anymore fruit juice etc. I just meant that time I picked up the 9+ sugar that was what she had had.
I have not found a rise like that with slower release foods.
 
@ExtremelyW0rried

I am concerned that you seem desperate to prove that your daughter has (or is developing) diabetes.
It is almost as if you were wishing that she had diabetes.
Is it perhaps that if you knew that she definitely had diabetes then you could stop worrying because you know how to cope with that?

I'm not sure how anyone (here or in your medical team) is going to convince you that she isn't developing diabetes.
Whatever is said to you you seem to respond with "Yes, yes, but she could have....".

As others have said, your priority is to get your anxiety treated.
It would probably be kinder to your daughter not to involve her so closely in your anxieties and I don't think that it is a good thing to get her habituated to regular finger prick testing because that could leave her with issues later in life.

Wishing you the very best of luck with your appointment on Monday. Please focus on your needs.
 
ExtremelyW0rried said:
a lot of studies seen to suggest that non diabetics don't really go above 7.8 unless given a lot of carbs.
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1) your daughter IS having a lot of carbs, so even based upon these very tight ranges in these "studies" your daughter is normal

2) it's just NOT TRUE to say non diabetics don't go over 7.8

This page - http://www.diabetes.co.uk/forum/threads/non-diabetic-glucose-levels.86860/ - has a CGM graph of a non diabetic child, you will see they go up over 150mg/dL which is 8.3mmol/l. These are normal peaks. NORMAL.
 
Littlegrey- I can see what you mean. I desperately do not want her to be diabetic but because I feel like I'm teetering on the edge of disaster at all times it kind of feels like this might BE the disaster I've been expecting. I know that is insane by the way.
I feel like I've been waiting for a disaster pretty much since I got pregnant with her.

I am really hoping my appointment with the GP tomorrow helps. I know it is not fair on my children for me to be like this.

I don't know what the best way to proceed with my daughter is. Maybe I will be able to get some perspective once I'm feeling better.
It's just when I look at a lot of the information on here most people say that glucose shouldn't go that high in a non diabetic.
 
ExtremelyW0rried said:
I will. I am fighting against checking more but I know this is the wrong thing to do.

No I haven't given her anymore fruit juice etc. I just meant that time I picked up the 9+ sugar that was what she had had.
I have not found a rise like that with slower release foods.
Click to expand...
I dont know how to
ExtremelyW0rried said:
I will. I am fighting against checking more but I know this is the wrong thing to do.

No I haven't given her anymore fruit juice etc. I just meant that time I picked up the 9+ sugar that was what she had had.
I have not found a rise like that with slower release foods.
Click to expand...
OK, so you have still tested an hour after food. Why? what do you need to feel secure that your daughter is OK? Have you heard about obsessional thoughts? they are a real thing. This is a useful UK site and information page https://www.mind.org.uk/information...sessive-compulsive-disorder-ocd/#.WZnrKFWGPIU

Have some hugs.
 
No I've stopped checking her as frequently . I've 'only' checked her twice today and that was fasting and roughly after an hour but that was really just because she was going to bed then.
 
Here's a quote from an American endo, Dr Steven Russell, who has been involved in making pumps and cgm talk to each other:

“In all the work with diabetes technology I’ve done, I’ve worn CGM for long periods of time. I don’t have diabetes, but I’ll eat a dessert and go up to 200 mg/dl. I’ll also drop down to 50 or 60 mg/dl. People with diabetes are comparing themselves to a false standard. The pancreas, for all of the advantages it has, still allows big excursions. It’s crazy to think it’s ideal.”​

Here's the link for that:
https://diatribe.org/issues/58/quotable-quotes

Although it's aimed at making T1s relax a bit about out of range readings, it applies just as much to your situation, @ExtremelyW0rried . He's saying that the occasional flyer in a non T1 is perfectly normal because even a normal pancreas sometimes makes mistakes.

Your daughter is showing no patent signs of T1. An occasional 9 means nothing, for the reasons described by Dr Russell.
 
ExtremelyW0rried said:
It's just when I look at a lot of the information on here most people say that glucose shouldn't go that high in a non diabetic.
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AFTER 2 hours. Frequently higher tests, with several days of testing. And especially not just after (less than two hours after) eating a high carb (and that means sugar too) meal or drink or snack.
 
Can I ask is the father of your daughter/your partner with you? What do they think of what you're doing to your daughter? Or are you alone? Do you have family at home to support you?
I don't understand, why you came on this forum to ask questions, all these very experienced people have answered but you are ignoring their advise. You must be completely honest with your GP tomorrow to get the appropriate help.
 
ExtremelyW0rried said:
<snip>
It's just when I look at a lot of the information on here most people say that glucose shouldn't go that high in a non diabetic.
Click to expand...

If her BG was that high two hours after eating then you should worry.
We keep telling you that a brief spike within 10 minutes or so of eating is perfectly normal.

Accept that this is part of your anxiety and you need help with it.
The idea is obviously so deeply embedded in you that you can't let go of it at the moment.
Deep breaths.
Accepting that you have a problem is the first and greatest step.
 
You're projecting your anxieties @ExtremelyW0rried

Listen to what you've been told by forum people far more experienced in the field of blood sugars.
 
I'm not very good at "tact" so I'll say it as I see it...

It seems to me that you actually want your daughter to be diabetic. All this testing serves one purpose. Which is for you to try to prove your theory and say "Told you so" Your daughter is fine, judging by her BG results. And for you to say she's "overweight" as she has a little chub around her tummy. She's a child. My youngest is 12 and still has a chubby tummy! They are CHILDREN. Let them be children. Happy, healthy, chubby tummied children.
 
ExtremelyW0rried said:
No I've stopped checking her as frequently . I've 'only' checked her twice today and that was fasting and roughly after an hour but that was really just because she was going to bed then.
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Seriously, you do not need to check her at all!

There's nothing wrong with her. You've fixated on her blood sugars as a kind of focus for your anxiety.

If you continue like this, you'll make your obsessive thoughts worse. If only you weren't Type 1 yourself, I'd tell you to throw the stupid testing equipment away!

Do you have any family members with you apart from your children?
 
Hi @ExtremelyW0rried ,

I only have one thought to this.. Are your little 'un's hands clean when you test?
Assuming kids handle food directly. Some of these food stuffs maybe contaminating the test?
 
Yes my husband is with me but he is very little support. Generally. Part of my worry is that if my daughter (or my son) ever got type 1 is that it would be very much my responsibility. I doubt he would take any part in it at all.

No I very definitively don't want her to be diabetic. It's more than I feel like we are constantly on the edge of something terrible happening so I'm always expecting it.

She IS chubby. I will agree that I am probably miles out with everything else but she is over the 99th centile. I will ask the HV to weigh her too and see what they say but I'm pretty sure they will say she is overweight. It is not just me that thinks this (other family members and friends agree) so I'm pretty sure it will be better for her to slim down whatever the outcome regarding being diabetic.
 
ExtremelyW0rried said:
Yes my husband is with me but he is very little support. Generally. Part of my worry is that if my daughter (or my son) ever got type 1 is that it would be very much my responsibility. I doubt he would take any part in it at all.

No I very definitively don't want her to be diabetic. It's more than I feel like we are constantly on the edge of something terrible happening so I'm always expecting it.

She IS chubby. I will agree that I am probably miles out with everything else but she is over the 99th centile. I will ask the HV to weigh her too and see what they say but I'm pretty sure they will say she is overweight. It is not just me that thinks this (other family members and friends agree) so I'm pretty sure it will be better for her to slim down whatever the outcome regarding being diabetic.
Click to expand...

You're worried about 'something bad' happening so you're pre-empting that by convincing yourself she has diabetes. That's part of the anxiety messing with your perspective.

Once you get help with the anxiety, you can get back on track and not have to deal with these thoughts. The worry is tainting your enjoyment of your children. You'll feel much, much better once it's under control. X
 
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