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Fed up

nessals946

Well-Known Member
Messages
123
Type of diabetes
Type 1
Thats it in a nutshell.Im just fed up of having diabetes,its been 42 years of holding on to a ledge by my fingertips and its beating me right now.All im doing is correcting highs constantly,i just cant be bothered to do things properly.
 
I can understand your frustrations: diabetes is like that annoying guy in the office who never leaves (unless you do and then he follows you).

Is there an option to change the way you manage your diabetes? For example, if you use MDI, could you push for a pump?
I find some change helps to push me on again when I get frustrated.
 
Totally relate, so not much advice. I'm struggling in a similar way, although I super much can be bothered dealing with it, just super easily frustrated and no patience to ride it out until I get all my ratios correct.
They're telling me to read the book Diabetes Burnout, What to do when you can't take it anymore.... By William H Polonsky. I've just ordered it and awaiting its delivery. I'm also currently reading Think like a Pancreas by Gary Scheiner, I'm finding really helpful.

I'm following this thread, because I need the help too.
 
I've heard some type1s say "they control their diabetes, diabetes doesn't control them".
Is that because they lower their carbs so insulin inj less to manage?
I've also seen @azure give some good advice about doing basal checks so you can confirm you have the backbone of your insulin regime correct and go from their.
A fresh look at things?
I guess starting from the beginning again?

I often believe sometimes you have to go back to go forward sometimes! Good luck refeshing your journey.
 
Hey,

You have made this far. Your an inspiration to young people who are battling with diabetes everyday. I hope you find that motivation from somewhere as I have had trouble with control recently. Keep fighting my friend you are not alone and will never be alone. We stand together
 
 

No, it's nothing to do with lowering carbs. It just means that we're in charge not the diabetes

Basal is the foundation of good control, so a basal test is often recommended if there are problems
 
nessals946 said:
Thats it in a nutshell.Im just fed up of having diabetes,its been 42 years of holding on to a ledge by my fingertips and its beating me right now.All im doing is correcting highs constantly,i just cant be bothered to do things properly.
Click to expand...

Cut yourself some slack {{hug}} Do what you need to for now - corrections if necessary.

Then worry about doing things 'properly' when you're feeling a little better. Type 1 is exhausting sometimes - we all get it {{another hug}}

Maybe speak to your DSN tomorrow for support. Sometimes it's good to have another person work things out and make suggestions.

I hope you're feeling more positive soon. You're a winner having lived with Type 1 so long. You're stronger than it is. XX
 
nessals946 said:
Thats it in a nutshell.Im just fed up of having diabetes,its been 42 years of holding on to a ledge by my fingertips and its beating me right now.All im doing is correcting highs constantly,i just cant be bothered to do things properly.
Click to expand...

Dont forget if over 12.0 you need to be following sick day rules even if you arent sick!!

Its hell sometimes but after 40+ years you prob know diabetes life can be a roller coaster sometimes.

Like said above.. cut yourself some slack... try to figure out whether its basal/bolus etc.. and start a fresh...

Phine DSN for help if need be...
 
Thanks for all your replies,i spoke to my dsn but she didnt really offer much advice.Said i could talk to my consultant if i wanted to.Woke up with a 5.3 this morning,so felt human for once.Starting the day off with a good result for a change made a bit of a difference to my mindset.Wouldnt it be great for a weeks holiday away from diabetes? If only x
 
Have felt same at times. At age of 53 years I did Daphne course, very helpful then requested a pump, took some work but has made management and monitoring much easier. I feel better more energy and freedom. (As a female lots of probs with menopause too)
 
I know that awful dull, high bg can't concentrate, can't be bothered feeling only too well.

Have you thought of trying a Freestyle Libre? Quite expensive but you could just use it for a while & the information is invaluable. Seeing what happens to your readings is fascinating & may kickstart renewed interest in improving control.
 
Ive been using the libre since last november.It helped me enormously at first but its me thats the problem now.I need a break from something thats impossible to get away from.I did a dafne course a few years back but im not very good at carb counting.
 
Carb counting can be easier if you have a book/ guide to refer to, however many packaged goods have carbs written on them per item or 100g I use a small scale. Can be tiresome and harder when out if u have a phone can get info from apps.
Don't wish to assume but how is your mood in generalif not good and low motivation for managing reduces? Hope you feel better soon.
 
What's the sick day rules again?? Corrective douses, Checking ketone and then increasing basal as well?
 
I thought I was bad at 32 yrs type 1. I guess the burnout will never go away...
I have ups and downs and definitely when my mood drops, everything feels hopeless and irritable. Remember your kind, gentle self. Give yourself some well deserved hugs x
 

Woukd BERTIE help at all? It might refresh your DAFNE skills.
 
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