Further concerns re my toddler

[Boo1979]

Why pass the emotional struggle on to your toddler when there appears to be no evidence that she even has or will definately develop diabetes?
Children have more than enough to worry about in their little lives without worrying that they are facing a ‘life sentence’ and possibly guilt at having ‘passed on’ genes over which they have no control.

 

[Sue192]

Yes my diabetes is well controlled but it's a struggle. Imagine the struggle in managing it in a toddler. Virtually impossible.
It's a 24/7 job and I still have lows and highs like everyone else with t1. I will be strongly advising my children not to have children and risk passing this on any further. It's a life sentence and that's if you're lucky.
It's stopped me doing plenty of things and made most other things difficult. How can you be positive about something that is so miserable with no end in sight?

I cannot comment on living with T1, although I see T1 members on here who have a wonderfully positive outlook, but your comment about strongly advising your children against having children I find very sad. Look at the changes that are happening in the world of science and nutrition - low-carb being a shining example - and the advancement in medicine from not that long ago. Who's to say that, when your children are grown and want to become parents, there won't be a cure for T1/2? Who's to say that the discoveries being made with low-carb and fasting won't bring about immense changes? If you push the message that your children shouldn't have children, what will that do to them? I was unable to have children, even after years of trying, but, unless there was absolute proof or probability of passing on a genetic disorder, I know I could never say that to my children. Please seek help for your anxieties.

 

[ExtremelyW0rried]

I am sorry you were unable to have children. I had to battle for mine and it is extremely tough.

I think that given that my daughter will be third generation t1 it looks as though it runs quite strongly in our genes. I wish someone had advised me that already being a second generation type 1 meant that my own children would be very high risk. I believed their risk to be only about 1-2% but I think I was wrong. Had I known the risk was so much higher I would not have had them.

 

[therower]

Yes my diabetes is well controlled but it's a struggle. Imagine the struggle in managing it in a toddler. Virtually impossible.
It's a 24/7 job and I still have lows and highs like everyone else with t1. I will be strongly advising my children not to have children and risk passing this on any further. It's a life sentence and that's if you're lucky.
It's stopped me doing plenty of things and made most other things difficult. How can you be positive about something that is so miserable with no end in sight?

I fear this post may not last.
This topic has been discussed countless times now and here we are once again. You ask questions of us and we give you answers and advice. @catapillar all so often, myself and others also.
You say you have good control of your diabetes but in my opinion this post proves otherwise. You're being controlled by your diabetes as is your NON DIABETIC daughter.
We question your daughters carb intake on the night in question, which many I'm sure feel was high for a toddler. You seem to go very defensive and offer excuses for her diet.
You have also now referred to type 2 diabetes and what blood sugar numbers that appear within the type 2 forum . Do you suspect your daughter is T1 or T2? Very different conditions, she can't have both.
As we have already advised you, this is your problem, not your daughters. You are punishing your daughter unnecessarily.
If your daughter develops ANY signs other than a " random " finger prick/ pricks test which falls well within non diabetic levels then people here will be able and happy to help.
Apologies for being direct but this cannot continue going around in circles.

 

[ExtremelyW0rried]

Does 8mmol two and a half hours after eating not fall within impaired tolerance?
No I think she is t1 but what I meant was obviously 8 that long after eating isn't normal although I agree not diabetic levels yet.

 

[paulus1]

I am sorry you were unable to have children. I had to battle for mine and it is extremely tough.

I think that given that my daughter will be third generation t1 it looks as though it runs quite strongly in our genes. I wish someone had advised me that already being a second generation type 1 meant that my own children would be very high risk. I believed their risk to be only about 1-2% but I think I was wrong. Had I known the risk was so much higher I would not have had them.

your daughter at the moment is not diabetic. This is very important . your idea of telling you perfectly healthy children not to reproduce is nonsense. for a start your dad did not have the same type as you..

• The risk for a child of a parent with type 1 diabetes is lower if it is the mother — rather than the father — who has diabetes. "If the father has it, the risk is about 1 in 10 (10 percent) that his child will develop type 1 diabetes — the same as the risk to a sibling of an affected child," Dr. Warram says. On the other hand, if the mother has type 1 diabetes and is age 25 or younger when the child is born, the risk is reduced to 1 in 25 (4 percent) and if the mother is over age 25, the risk drops to 1 in 100 — virtually the same as the average American.

your panicking over such a low risk. its clear that you have some physiological issue over your diabetes. seek help and then if one of your kids is unlucky and does get it you will be in a better place to help them.
if this carries on it will be flagged as a child safe guarding issue.
ps why are you feeding a toddler such rubbish food would you eat that. good grief carbs and fat. please look up healthy eating your going to cause your perfectly healthy child future problems. 90 carbs per meal thats over two big macs worth of carbs.

proper genetic diabetes effects my family me and my full sister have it. 6 out 8 1/2 brothers and sisters have it . my dad and aunt had it. cousins nephes and niece shave it. of all the kids of mine and my brothers and sister not one has been diagnosed. we are talking 20 plus. would it stop me from having kids no. would i tell them to not have kids never. wehave 50/50 type 1 and 2 plus the odd rarer version.

 

[ExtremelyW0rried]

My dad is type 1. He was rebranded from t2 to LADA.

Yes it was a particularly rubbish eating day.
Normal days are not like that. Doesn't everyone have days where their kids eat not so well?
Normally it is a sensible dinner and then some fruit for pudding. Perhaps 30g of carbohydrate.

I do think t1s should be made more aware of the risk when having children.

 

[ExtremelyW0rried]

As an aside yes I am having some help with my anxiety. I do not want to make my children anxious and I will need to be able to help my daughter.

In my opinion however no one really controls their diabetes. It controls everyone to a degree. That's the nature of the beast. It's unpredictable.

 

[paulus1]

at most your kids have a 4% chance. for pity sake. your over reacting to a risk thats extremely small. your flapping will scare your kids.
a young diabetic will know there is a small risk but then life is not risk free. your worrying over something that you cant alter or stop anyway. just watch for the obvious symptoms.

 

[kev-w]

I feel for you, but think the 8mmol readings aren't those of a diabetic, over the years friends & family have done the odd meter reading, and nobody's been under 6.5mmols, there's nothing to say your little one will get sugar, but if she does you know the symptoms will appear pretty quickly, my advice would be to cease with your finger pricker as it's stressful for them ( my boy aged 9 was drinking & p**sing lots, I worried and blood tested him (with tears), it read 7.4mmols and he's 23 now and isn't diabetic).
I hope your kid doesn't get sugar, but best you save your emotions for helping her if she ever does, than having it a daily worry thinking is she, is she....
Good luck

 

[Scott-C]

She'd had pizza (40g ish) and then some cheese on toast

That's your answer pretty much there. Whether a person is T1 or not, the fat in the cheese on both the pizza and toast will slow down absorption of the carbs so levels will be elevated for longer because of the drip feed from the carbs coming in over a longer than usual period.

Plus how many kids chew their food properly (or adults for that matter)? Why is that important? You bolt some pizza base down without properly chewing it, you end up with big lumps of pizza dough inside you which take longer to break down so, as well as the fat, there'll also be an extended period of breakdown/ drip feed from that cause as well.

 

[Ambersilva]

Yes my diabetes is well controlled but it's a struggle. Imagine the struggle in managing it in a toddler. Virtually impossible.
It's a 24/7 job and I still have lows and highs like everyone else with t1. I will be strongly advising my children not to have children and risk passing this on any further. It's a life sentence and that's if you're lucky.
It's stopped me doing plenty of things and made most other things difficult. How can you be positive about something that is so miserable with no end in sight?

Really! Your comments make me angry. My son is T1D and my daughter is not Diabetic. If I had advised my children not to procreate just in case they passed on T1D, I would not have my four wonderful non diabetic grandchildren.

Edited due to typing while angry and missing the vital word grand before children

 

[Ambersilva]

Does 8mmol two and a half hours after eating not fall within impaired tolerance?
No I think she is t1 but what I meant was obviously 8 that long after eating isn't normal although I agree not diabetic levels yet.

No it does not. It means that she carb loaded.

 

[lucylocket61]

Does 8mmol two and a half hours after eating not fall within impaired tolerance?
No I think she is t1 but what I meant was obviously 8 that long after eating isn't normal although I agree not diabetic levels yet.

that amount of carbs for a non diabetic adult in that time frame would produce a spike. For a very small child, multiply the carb load of that meal by your daughters relative size to an adult. It is your choice what you feed your child, and how much. No question of that. But as a test of her reaction to carbs its not a sensible amount of carbs in one sitting.

 

[Bluetit1802]

I will be strongly advising my children not to have children and risk passing this on any further.

I find that rather cruel if I'm honest. You would be better warning them of the dangers of eating too many carbs and too much fruit. (Not to avoid possible T1 as that will depend on their autoimmune system) but to avoid almost certain T2 if their food is carb heavy from such a young age. When your daughter had the pizza then declared she was still hungry, it would be all the carbs in the pizza making her feel hungry. That's what carbs do - and it also leads to carb cravings. Vicious circle.

 

[lucylocket61]

My dad is type 1. He was rebranded from t2 to LADA.

Yes it was a particularly rubbish eating day.
Normal days are not like that. Doesn't everyone have days where their kids eat not so well?
Normally it is a sensible dinner and then some fruit for pudding. Perhaps 30g of carbohydrate.

I do think t1s should be made more aware of the risk when having children.

Then why have you used it to test your child and then worry about her levels? You seem aware that the day was a rare carb heavy one, so the result is not an indication of how she reacts to a normal day.

 

[ExtremelyW0rried]

She didn't have 90g all in one go - it was over maybe 4 hours. And I'm including the milk in that amount.

I don't mean to offend, it is just my personal opinion. I wouldn't wish t1 on anyone, let alone people I love as much as I love my children. I think when it is multi generational it just becomes too risky. The stats they quote I think are on the low side actually, in practice it seems more genetic than it's supposed to be.

 

[ExtremelyW0rried]

Because

Then why have you used it to test your child and then worry about her levels? You seem aware that the day was a rare carb heavy one, so the result is not an indication of how she reacts to a normal day.

it shouldn't matter though should it - how much she eats. She should be able to if she wants to.
Look at the carbs in a lot of foods and it's not hard to rack up 50, 60, 70g.
The ogtt isn't a true life scenario - who eats 75g of pure glucose - but you still 'fail' it if over 7.8mmol at two hours. That's how it works.

 

[ExtremelyW0rried]

Really! Your comments make me angry. My son is T1D and my daughter is not Diabetic. If I had advised my children not to procreate just in case they passed on T1D, I would not have my four wonderful non diabetic grandchildren.

Edited due to typing while angry and missing the vital word grand before children

I am sorry to make you angry. I am glad that your grandchildren are not diabetic.
But I feel once it's in two or three generations you really are rolling a loaded dice. Once the risk becomes greater than 10% I think that is too much risk.

 

[Bluetit1802]

The ogtt isn't a true life scenario - who eats 75g of pure glucose - but you still 'fail' it if over 7.8mmol at two hours. That's how it works.

You are right, it isn't a true life scenario. However, the 75g of pure glucose has absolutely no other bits and bobs such as protein and fats and fibre to interfere. That is why it is pure glucose and why it doesn't work on a comparable number of carbs in a meal that also contains protein, fats and fibre. Pure glucose spikes immediately and very quickly and often hits double figures, then drops quickly in non-diabetics within the 2 hour mark. You just cannot compare it with proper food.