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Gliclazide

hisjen84

hisjen84

Well-Known Member
Messages
73
Type of diabetes
Other
Treatment type
Tablets (oral)
I was diagnosed 18 months ago with a rare form of diabetes. I was put on gliclazide to control it but couldn't seem to find a balance and often got low readings. I found it easier to keep my levels running high rather than dealing with lows. I know I shouldn't but recently I stopped taking my tablets altogether and just wanted to feel 'normal' nights out with friends drining cocktilas, fast food and cake. I have stated my gliclazide again but my blood sugar won't go below 15 and was 27.5 last night. I'm not sure what to do and can't face the doctors as they say sy they haven't heard of my type of diabetes it's very frustrating and lonely at times
 
eventhorizon said:
What form of diabetes do you have? Is it just the GP/diabetes nurse looking after you? It sounds like you need specialist help.

Sent from my Redmi Note 3 using Diabetes.co.uk Forum mobile app
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Hi, it's called transient neo natal diabetes a mutation in one of my genes apparently. I see doctor at the hospital but not very often. I think I may try and contact the nurse that originally diagnosed me at the hospital. I just worry as they have said I may have to switch to insulin at some point in my life and I know I'm not looking after myself like I should.
 
Hi @hisjen84
insulin is not an enemy and given your blood readings I would certainly think about talking to your nurse.

just sending you big hugs cuz I know you won't be feeling great with your bloods
[[[[[hugs]]]]]
 
hisjen84 said:
I was diagnosed 18 months ago with a rare form of diabetes. I was put on gliclazide to control it but couldn't seem to find a balance and often got low readings. I found it easier to keep my levels running high rather than dealing with lows. I know I shouldn't but recently I stopped taking my tablets altogether and just wanted to feel 'normal' nights out with friends drining cocktilas, fast food and cake. I have stated my gliclazide again but my blood sugar won't go below 15 and was 27.5 last night. I'm not sure what to do and can't face the doctors as they say sy they haven't heard of my type of diabetes it's very frustrating and lonely at times
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27.5 is way too high and you must be feeling very rough. Do you have the number of your local hospital diabetes centre?

Are you seeing a consultant? If you are and they don't have any experience with your type of diabetes, ask if there's anyone else you can see.

You might find insulin will actually help you control your blood sugar better and give you more flexibility for things like nights out.
 
Hey. If you need insulin you gotta have it. Insulin really isn't that bad! It's as flexible as you you want it to be and pretty much infinitely tailorable to you. You might not need it but I guarantee (almost!) the fear of injections is far worse than actually doing them.

Sent from my Redmi Note 3 using Diabetes.co.uk Forum mobile app
 
I have had a good read about your type of D -- and it looks like over time you may indeed need insulin -- I am not sure what sort of diet you follow - but lowering carbs may help with blood sugars
I genuinely feel for you young lady -- you don't seem to be having a great time recently
just hugs [[[hugs]]]
 
himtoo said:
I have had a good read about your type of D -- and it looks like over time you may indeed need insulin -- I am not sure what sort of diet you follow - but lowering carbs may help with blood sugars
I genuinely feel for you young lady -- you don't seem to be having a great time recently
just hugs [[[hugs]]]
Click to expand...
Thank you,
I just really struggle to get a grip with the dosage of my gliclazide it's quite Eratic. I panic that if I take my tablet I'll have a hypo which I really hate they panic me, alternatively my blood sugar goes so high so quickly. I'm best requesting to see a specialist nurse and talking about it.
 
that really is a worry for you -- I don't really know much about gliclazide doses -- could you perhaps get a smaller dose than you currently take. ?
I would definitely get in touch about seeing a specialist nurse. it is no good having to feel worried all the time.

just like all of us with Diabetes -- your own body will be playing it's part too -- just think things like stress , exercise , girl type issues, or sickness etc -- they all have an affect on blood sugars
 
I'm LADA and pre DX I was on gliclazide and had the same experience as you. Lots of lows and no control. Large rollercoasters and felt awful.
I as well feared insulin but would fight with everything I have if someone tried to take it away from me now.

Not only is it not your enemy it makes control so much easier. The finger sticks are far worse than the tummy sticks.
I don't go out and eat what I want but that's is my choice. I am vlc because that's how I feel best but I do enjoy some cocktails/ wine without issue. I feel so much better with controlled bs. The swings were the awful part.

I have no idea hat your DX is but if you need insulin please don't fear it. It's better than what you have going on now without a doubt
 
Hi @hisjen84

Ask your doctor about Forxiga and discuss the pro/coms with him/her.

I expect you will get better control by eating few carbs but do that you must learn not to fear fat. As it is unlikely the NHS will help you with this, you have to learn about it yourself, one of the best books is The Art and Science of Low Carbohydrate Living. It is worth becoming an expert in how your body works, as you have over 60 more years of having it to look forward to.

See if you can get your fasting insulin level checked as from my reading a few people with "neo natal diabetes" have high fasting insulin levels and therefore most like someone with Type2, but most have low fasting insulin levels, so are more like someone with Type1.

I can see no good reason for gliclazide when insulin gives people better control however by eating less carbs and/or Forxiga you may be able to come off gliclazide without needing insulin.
 
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