1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2020 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Hba1C test booked this week - should I cancel?

Discussion in 'Type 2 Diabetes' started by svgittins, Mar 29, 2020.

  1. svgittins

    svgittins Type 2 · Member

    Messages:
    15
    Likes Received:
    11
    Trophy Points:
    23
    I have a 3 monthly a1C test booked in 5 days. My inclination is to cancel this as its not essential, involves going to medical practice, and it looks like there is going to be a big increase in Covid-19 infections in London, where I live.

    Some background - I was diagnosed 9 months ago with a very high Hba1C (117) but since then seem to have managed to get things well under control with LCHF diet, metformin and weight loss. At my last test three months ago my Hba1C was 38 mmol/mol, but this week's test would only be my third post diagnosis test so all 3 of the tests I have had in the past year have had really different results. I have kept more or less to my diet regime and I am hoping things have not changed too much (e.g. my weight is at almost the same as last test). I am 64 years old.

    My feeling is going to a doctor's surgery in central London at this time and having a blood sample taken is just a risk not worth taking. Does anyone feel differently?
     
    • Agree Agree x 1
  2. Rachox

    Rachox Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    10,606
    Likes Received:
    12,934
    Trophy Points:
    298
    My next diabetic review including bloods is due the end of April, beginning of May and I have already had a text message from my practice saying they are not doing annual diabetic reviews at the moment. They have provided a phone number to call if I have any concerns about my diabetes.
    I’m surprised your surgery hasn’t contacted you yet, however you sound like you’re doing well with your control so if I was in your position I would be inclined to email rather than phone suggesting you postpone yours too.
     
    • Agree Agree x 2
  3. svgittins

    svgittins Type 2 · Member

    Messages:
    15
    Likes Received:
    11
    Trophy Points:
    23
    That is interesting that the policy at your doctors is to postpone reviews - my surgery sent me a text confirmation of my appointment a couple of days ago.
     
  4. Bluetit1802

    Bluetit1802 Type 2 (in remission!) · Guru

    Messages:
    24,803
    Likes Received:
    30,398
    Trophy Points:
    298
    Have you checked your surgery website? That would be my first step. Reminders and confirmations are often sent automatically, computer generated.
     
    • Agree Agree x 2
  5. Chook

    Chook Type 2 · Well-Known Member

    Messages:
    4,713
    Likes Received:
    7,051
    Trophy Points:
    198
    Are you testing your blood glucose with a meter? If so and they are stable i wouldn't take the risk of going for your review. However you might want to phone your GP to discuss it.
     
    • Agree Agree x 4
    • Like Like x 1
  6. Goonergal

    Goonergal Type 2 · Moderator
    Staff Member

    Messages:
    8,399
    Likes Received:
    15,808
    Trophy Points:
    198
    I share your reluctance @svgittins - I cancelled my foot check a couple of weeks ago as I didn’t deem it essential (also in a crowded area of London).

    From what you write it sounds like you’re not monitoring your own blood glucose levels. It would be worth starting to do this if that’s the case, so you get early warning signs of any radical changes to your levels. @Rachox can help with information about the most commonly used ones among those self-funding.
     
    • Agree Agree x 1
  7. 84green

    84green · Well-Known Member

    Messages:
    138
    Likes Received:
    421
    Trophy Points:
    63
    I am also due a quarterly check next week. I am keen to know the figure as I have lost 52 lbs in the last 12 weeks. Regularly monitoring my levels and hope to see a reduction from my 56 mmol/mol in February.

    I have arranged to have this via a private service and will email the results to my surgery.

    I recently started taking a statin and did this last week to check my lipids and liver function. Posted the sample on Thursday, received the results by email the following day.

    May be something to consider, if you are keen to get the results.
     
  8. borderter

    borderter Type 2 · Well-Known Member

    Messages:
    485
    Likes Received:
    226
    Trophy Points:
    83
    My checks were cancelled the day before a couple of weeks ago however hubbys warfarin tests still needed so he goes in 2 weekly ,scary times
     
  9. bulkbiker

    bulkbiker Type 2 · Oracle

    Messages:
    15,298
    Likes Received:
    10,874
    Trophy Points:
    298
    Any particular reason why?
     
  10. Rachox

    Rachox Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    10,606
    Likes Received:
    12,934
    Trophy Points:
    298
    Thanks for the tag @Goonergal , if you want to get one @svgittins here’s some info on UK meters, and to be clear I have no commercial connections with any of the companies mentioned. For a meter with cheap strips go for the Tee2 + found here:

    http://spirit-healthcare.co.uk/product/tee2-plus-blood-glucose-meter/ with the strips found here:

    http://spirit-healthcare.co.uk/product/tee2-testing-strips/

    Some members have got a free Tee2+ by phoning up to order, with a large order of strips they often throw the meter in for free:

    Phone number 0800 8815423


    With more expensive strips is the Caresens Dual which I currently use, this one has the advantage of glucose and ketone testing in one machine, it’s to be found here:

    https://shop.spirit-health.co.uk/collections/caresens-dual


    Home Health have recently bought out this one, but I haven’t heard any reviews yet, links to strips and the meter:

    https://homehealth-uk.com/all-products/glucose-navii-blood-glucose-test-strips-50-strip-pack/

    https://homehealth-uk.com/all-products/gluconavii-blood-sugar-meter-glucose-monitor-starter-kit/

    And to be totally transparent I used to use the SD Code Free from Home Health which has the cheapest strips available if bought in quantities of 5 or 10 pots with the codes below. However I found it to be becoming less and less reliable. Here it is for anyone wanting to give it a go, just bear in mind it seems they are replacing it with the Navii, details above.

    http://homehealth-uk.com/product-category/blood-glucose/blood-glucose-monitor/

    and here for the extra strips

    http://homehealth-uk.com/all-products/sd-codefree-test-strips-to-be-used-only-with-the-sd-monitor/

    There are discount codes if you buy in bulk.

    5 packs 264086

    10 packs 975833


    Don’t forget to check the box if you have pre diabetes or diabetes so you can buy VAT free. (for all meters and strips)
     
    • Like Like x 1
  11. svgittins

    svgittins Type 2 · Member

    Messages:
    15
    Likes Received:
    11
    Trophy Points:
    23
    Thanks @Chook and @Goonergal - but in fact I regularly monitor my blood glucose levels and use the MySugr app to track them. During last few months I am usually under 6, but several times a week up to 6.5, but very rarely higher. According to the MySugr I have a low 30s estimated Hba1C but in the past I have never found it accurately estimates the actual reading I get, alway giving a much lower value than I actually receive. I have discussed this situation on these forums previously, and in fact in the past months I have tried to be much more rigorous (only testing morning fasting, before eating and 2 hours afterwards) so it would have been interesting to see whether it was any more accurate. BUT - it would interesting, but not worth getting sick over, and I think I am okay, maybe I could be into pre-diabetic ranges, but unlikely for anything to be seriously worried about.
     
    • Like Like x 2
  12. 84green

    84green · Well-Known Member

    Messages:
    138
    Likes Received:
    421
    Trophy Points:
    63
    Prescribed by cardiologist (40mg Atorvastatin) following a diagnosis of non obstructive coronary artery disease.

    My cholesterol was OK (high end of normal) but his advice was that it was helpful in stabilising existing plaque.

    Whilst I’m happy I can manage my cholesterol without it, I think the stabilisation of plaque is important.

    Meds to be reviewed with him shortly.
     
  13. Max68

    Max68 · Well-Known Member

    Messages:
    121
    Likes Received:
    46
    Trophy Points:
    28
    I wondered about this. Since Jan 2018 my HBA1C was 53, 49, 49, 48 but then in December had shot up to 58 in 6 months. I was shocked but I had a real bad 6 months with my mum having dementia and moving into care so I suspect I fell off the wagon a fair bit. Was due a re test in June but no idea if that will happen now. Ironically with all this self isolating I'm doing a bit on the exercise bike and only eating what the next door neighbour can get me so no take aways!!!! Will see if by June things have calmed down although I very much doubt it.
     
  14. Captain Crunch

    Captain Crunch Type 2 · Well-Known Member

    Messages:
    186
    Likes Received:
    341
    Trophy Points:
    83
    I saw my GP (yes saw - in person) on 19th March. The COVID-19 emergency was well underway then. This appointment was primarily nothing to do with my diabetes but the subject did come up in passing. I had previously been advised to go for a HbA1c test in May but my GP wants to bring it forward to April. I did question that on the basis of what's going on with the NHS and COVID-19 and he assured me that it'd be OK although I'll have to book an appointment instead of the usual 'drop-in' system. I found that a bit strange TBH. My local phlebotomy department isn't in Central London but in one of the outlying boroughs.
     
  15. HSSS

    HSSS Type 2 · Well-Known Member

    Messages:
    3,948
    Likes Received:
    1,937
    Trophy Points:
    198
    Would it be the case that covid testing is only happening in certain places? So all other labs are probably seeing a lower case load as fewer people are having the usual run of tests due to minimal appointments etc If that’s true then hb1ac’s are more about risks of exposure/ nurse/phlebotomists availability than capability of labs. Mine rarely have an appointment after but I guess that’s another issue with staffing levels. - just thinking out loud here. Mine is due end of May see what’s happening nearer the time I guess
     
  16. bulkbiker

    bulkbiker Type 2 · Oracle

    Messages:
    15,298
    Likes Received:
    10,874
    Trophy Points:
    298
    Did you get a CAC scan?
     
  17. 84green

    84green · Well-Known Member

    Messages:
    138
    Likes Received:
    421
    Trophy Points:
    63
    As part of a CT cardio angiogram, yes. 133 - which subsequent, irrelevant, research showed was the same score as Donald Trump had during his pre presidential medical.

    The artery blockages ranged from minimal (1 -24%) to mild (25 - 49%).

    So medication and lifestyle changes prescribed. This includes controlling my blood sugar and reducing blood pressure - the weight loss and increased exercise seems to have helped with both.

    Started with the Newcastle Diet but moved on to focusing on low carb. ND was useful for a quick start. LC seems as effective in terms of weight loss and blood sugar, with the added benefits of being more tasty and sustainable!
     
    #17 84green, Mar 29, 2020 at 6:45 PM
    Last edited: Mar 29, 2020
  18. svgittins

    svgittins Type 2 · Member

    Messages:
    15
    Likes Received:
    11
    Trophy Points:
    23
    Update from my original post. Today (Monday 23rd March) I was intending to cancel my blood test appointment using my medical practice's website. Before I got around to doing this, one of the nurses called up to tell me they were cancelling the appointment (due in 4 days from now) as it is a non-essential routine check. This makes sense.
     
    • Informative Informative x 2
    • Like Like x 1
  19. Daphne917

    Daphne917 Type 2 (in remission!) · Well-Known Member

    Messages:
    2,722
    Likes Received:
    7,480
    Trophy Points:
    198
    Mine is due in May as well and I was told that if I felt I needed one they would do it but otherwise not too worry however if I felt unwell to give them a ring.
     
    • Like Like x 1
    • Agree Agree x 1
  20. Daphne917

    Daphne917 Type 2 (in remission!) · Well-Known Member

    Messages:
    2,722
    Likes Received:
    7,480
    Trophy Points:
    198
    Watch your BS levels - my hba1c went up 6 points from 48 to 54 when I started taking statins. Came off them due to other side effects and hba1c now at non-diabetic levels
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook