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Hello...just thought I'd peek in!

Geordie lass

Well-Known Member
Messages
160
Location
North East England
Type of diabetes
Type 1
Treatment type
Pump
Hello, my name is Michelle and I have had Type 1 diabetes since 2004. Can I share my story? I have only just found this brilliant forum and wanted to be a part of it, along with all you lovely people.

In February 2004 my husband died when I was 7 weeks pregnant with our first child. I was 31 years old at the time and it was a very traumatic time for me. In July I started to become very thirsty, drinking hot coffee like it was iced pop! I was going to the toilet a lot and feeling generally tired and unwell. I thought it was part of being 6 months pregnant so didn't bother going to my GP. So, in August during my regular antenatal checkup I was told I had sugar in my urine. Well, I didn't know what the midwife was talking about so didn't really take in what she was telling me. So, I continued my daily life as normal, going to work...then, I received a call from the midwife stating I had to return to the hospital that day as they had discovered I had gestational diabetes. Well, I didn't understand the urgency so I told them I couldn't make that day as I had meetings with work but could see them the following week during my next antenatal appointment. The poor midwife nearly had a heart attack on the phone and of course I didn't understand the urgency. So after having my lunch of a chunky kit Kat, I cancelled my afternoon meeting and headed to the hospital. On arrival I was taken to the consultation room and was given the full explanation and seriousness of gestational diabetes, met my consultant and had my BS levels taken. This was 18 at that time. Oops shouldn't have had that chunky kit Kat!

Fast forward to October 2004, after having to inject insulin for the last two months of my pregnancy, I was told by my consultant that she didn't think the diabetes would leave me when my baby was born. And, she was right...I still suffered from diabetes after my beautiful daughter was born. I was given a GTT in December 2004 to test the level of my diabetes. The test came back at a level of 10.2 - this at the time didn't mean anything to me but I was told that I had diabetes and that was that. So for the next few months after that I was told to follow a specific diet and they would review in February 2005.

February 2005 arrived and my BS levels were still running high, so I was placed on Metformin. Fast forward to October 2005 and my consultant decided to put me on insulin and my BS levels were increasing. It was this point that my consultant didn't really know if I was type 2 or type 1 diabetic. So, not really understanding the difference between the two types I just continued with my life on insulin, unsure of how I got diabetes or which type I was.

It took me nearly five years to find out after being under a new consultant (as I moved areas) to actually have a GAD test which confirmed that I was actually Type 1 diabetic. I just assumed that I had brought this on myself with my bad eating habits, although I was a normal weight at that time. I asked my consultant what had triggered this condition and for my body to react in this way and he said it could have been underlying for some time and triggered due to the trauma I experienced in Feb 2004 when my husband died!

So now 10 years later my control hasn't been great, but I have been on a pump since November 2012 and my control is so much better. Since I have been on insulin though my weight has increased to a point when it has really been getting me down. So in April this year I decided to have a sleeve gastrectomy to help with my portion control and my diabetes. So far, 6 weeks post surgery and I have lost 3 stone and I have my next diabetes check next week so will update you all on that progress.

My last diabetes check was 2 months ago and my Hba1C was 8.3 (67) which is a slight increase from my December appointment 8.0 (64).

I hope you have enjoyed reading my story and I look forward to being a part of this forum and learning from you all as well as offering any advice I can. Thank you all so much for reading. M x
 
Hello and welcome. Hope you find this place as useful as I have. Everyone is very friendly and supportive of one another, and there's lots of good advice no matter where you are on your diabetes journey. Good luck with weight loss and the upcoming check up.
 
Thanks cold ethyl. I normally dread my diabetes appointments as I know that I've not done good and it always shows in my blood results! But now that I've lost a lot of weight and kept my BS levels under strict control I am actually looking forward to seeing my consultant's face when she sees that I have lost 18kgs since my last check up! I have all my printouts ready to show her my food diary as well as my BS levels which I print out from Medtronic Carelink - that is such a good diabetes management programme (saves me having to log my own BS levels daily).
 
Hi and welcome. It's been a difficult few years for you. At least you have a firm diagnosis with the GAD test and know how to move forward. Normally I would suggest anyone on insulin who is gaining weight to pull back on the carbs but you have solved the problem another way and it appears to be working!
 
Hello and welcome to the forum. Also thank you for sharing your story, it's been a very traumatic one you, but you seem to have come through it pretty well. I hope you find the forum helpful and supportive, and anything you need to know, just ask, someone will be along to help out or point you in the right direction:) Take care
 
Many thanks Diabell and Robinredbreast for your posts. Yes since being diagnosed in 2004 it has been quite a roller coaster ride. Since having the GAD test in 2009 it didn't really sink in that I had T1, I guess I just carried on being in denial, looking after my daughter as a single parent and burying my head in the sand. It has only been since before Christmas last year that I really took control of myself after having a neurological health scare that forced me to get a grip on reality and take control. So that is what I did. I gave myself a good talking to and decided enough is enough...get my blood sugars under control and lose those excess 6 stones that had crept on over the years. Now, having lost 3 stone and eating 50g carbs a day has really gave me a new lease on life and I am so proud of my achievements...if I am allowed to say that myself! I should have really took control years ago but I didn't fully appreciate how much diabetes can affect your life until I actually took notice and listened to what my health team were telling me! So, I have turned a corner and hopefully my body has not been damaged too much with my stupidity of denial! I am sure I will have questions for this forum, even after 10 years of having T1, but having tried to ignore my condition for so long, I feel like a newbie! Thanks again everyone for your replies and support. M x


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Hi Geordie Lass. You've been through it thats for sure. You have my sympathies. I was a student in Newcastle for a few years in the 1970s and this tribute to Bobby Robson, Blaydon Races by Jimmy Nail, Tim Healy and Kevin Whately always makes me smile and reminds me of those happy times, even if Fog on the Tyne was probably more popular. These guys though condense Newcastle for me so I always have a taste. Thank goodness for Vera.

 
Hi Geordie Lass. You've been through it thats for sure. You have my sympathies. I was a student in Newcastle for a few years in the 1970s and this tribute to Bobby Robson, Blaydon Races by Jimmy Nail, Tim Healy and Kevin Whately always makes me smile and reminds me of those happy times, even if Fog on the Tyne was probably more popular. These guys though condense Newcastle for me so I always have a taste. Thank goodness for Vera.


Aaw, Yorksman, that brought back memories. Those lads make me laugh so much...I had a good sing along to that! Thanks for the reminder. Brilliant!


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Welcome, Michelle :)
We are sort of neighbours, only I'm in Northumberland. We were diagnosed the same year too !
Great to have you here :D

Signy
 
Welcome, Michelle :)
We are sort of neighbours, only I'm in Northumberland. We were diagnosed the same year too !
Great to have you here :D

Signy

Wow, that's amazing! What a small world we live in! I'm currently in Northumberland too! Love the country living, but it's easier to say Newcastle!!


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Wow, that's amazing! What a small world we live in! I'm currently in Northumberland too! Love the country living, but it's easier to say Newcastle!!


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LOL! It is! No one has ever heard of where I live, not surprising as the neighbours I see are sheep :-)


I generally say "Oh, near Carlisle . Ish" as that's the nearest city :D Border Rievers Rock!:D

Signy
 
Was over in Carlisle last week for a job interview. It's over an hour from me, so quite a trek! I have four cows where I live. They are just in the field at the bottom of my garden. They watched me mow my lawn last night and enjoyed grazing on the cut grass! Funny old things!


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Was over in Carlisle last week for a job interview. It's over an hour from me, so quite a trek! I have four cows where I live. They are just in the field at the bottom of my garden. They watched me mow my lawn last night and enjoyed grazing on the cut grass! Funny old things!


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Heh! It's about that far for me,, only it's the closest reference point, slightly closer than Newcastle by a couple of miles, I suppose I'm midway :D

It sounds like you have had a really rough time of it, I hope life is much better for you now ? How are you finding your diabetes care ? Mine is and was abysmal, apart from a couple of appointments at the old diabetes centre at the old General before they closed it down, I've been under the "care" of my GP and "Diabetic Nurse ", who told me I'm the only Type 1 on their books, which explains an awful lot! :eek:

Last week I finally, got them to refer me to Hexham only because they had a new GP in and I'd been advised to do a bit of foot stamping :p The place is small, the vets is much larger :D

Signy
 
Heh! It's about that far for me,, only it's the closest reference point, slightly closer than Newcastle by a couple of miles, I suppose I'm midway :D

It sounds like you have had a really rough time of it, I hope life is much better for you now ? How are you finding your diabetes care ? Mine is and was abysmal, apart from a couple of appointments at the old diabetes centre at the old General before they closed it down, I've been under the "care" of my GP and "Diabetic Nurse ", who told me I'm the only Type 1 on their books, which explains an awful lot! :eek:

Last week I finally, got them to refer me to Hexham only because they had a new GP in and I'd been advised to do a bit of foot stamping :p The place is small, the vets is much larger :D

Signy
Handy to have a nurse who is diabetic.:nurse:
 
Hi geordie lass, I had gestational diabetes about the same time as you with my 2nd child, this year I was diagnosed with type 2, I do often wonder if it really went away after she was born as I was not followed up at all afterwards :/ anyways here we both are 10 years down the line :) hope your daughter is doing well too :)
 
I spent a few days in Haltwhistle, as a base for exploring Hadrian's Wall. Started off in the museum in Carlisle and ended up at Bede's World.
 
Handy to have a nurse who is diabetic.:nurse:
Years ago, for a short while before she retired, I did have a nurse who was diabetic, and she was great :)

I remember admitting to her that I greatly enjoy a single malt (or two!) at the end of a hard day, and she winked, and said " Well, we have to have something don't we ?":)

Signy
 
I spent a few days in Haltwhistle, as a base for exploring Hadrian's Wall. Started off in the museum in Carlisle and ended up at Bede's World.
Ah yes, Halty - "The centre of Britain " :D

If you visited the fort at Carrawburgh (Brocolitia ) you would have passed very near me :) It's beautiful countryside, bleak and dour in winter, still has that raw beauty even then.:)

That's quite a treck, Yorksman ! I hope you enjoyed it :)

Signy
 
Heh! It's about that far for me,, only it's the closest reference point, slightly closer than Newcastle by a couple of miles, I suppose I'm midway :D

It sounds like you have had a really rough time of it, I hope life is much better for you now ? How are you finding your diabetes care ? Mine is and was abysmal, apart from a couple of appointments at the old diabetes centre at the old General before they closed it down, I've been under the "care" of my GP and "Diabetic Nurse ", who told me I'm the only Type 1 on their books, which explains an awful lot! :eek:

Last week I finally, got them to refer me to Hexham only because they had a new GP in and I'd been advised to do a bit of foot stamping :p The place is small, the vets is much larger :D

Signy

Life is going well for both of us now. My daughter will be 10 in October and is doing just great. She has done so much in her little life already, including living in Australia for 2 years.

My diabetes care in Australia was fantastic. I think it helped that my diabetes nurse was T1 diabetic too, so she fully understood the condition! We came back to the UK last September so my diabetes care was set up at the diabetes centre at the old general hospital in Newcastle. It's certainly not closed down now! My first appointment was in December which went ok. Although I have been told that my consultant I saw back then has now left the centre so my appointment next week is with another consultant. Hopefully that will be ok. I wasn't totally impressed during my first appointment though! We'll see what happens next Tuesday!
 
Hi geordie lass, I had gestational diabetes about the same time as you with my 2nd child, this year I was diagnosed with type 2, I do often wonder if it really went away after she was born as I was not followed up at all afterwards :/ anyways here we both are 10 years down the line :) hope your daughter is doing well too :)

The consultant told me that gestational diabetes does go away once the baby is born but it is a precursor to getting T2 sometime along the road! but she then went on to tell me that my diabetes wouldn't be going anywhere and I had after care following my child being born in the October time. I had to go to the hospital in December 2004 for a GTT. My daughter is doing well. She has had a very good life and still does! :)
 
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