Help , does it sound like I’mVery insulin resistant??

[Grumpy Porridge]

I feel I need more insulin than lots of other people with type 1 diabetes on here ? Eg people say they have only 4 units for breakfast , no way could I only have that ?!
Eg I had a prawn sandwich today for breakfast ( at about 3:50 pm( I don’t eat early / I get up late and dont gey myself anything , find it way too much to do / can not be bothered )

it said it was 39g of carbs . I injected 12 . 2 hours later my blood has gone to 4.3 now . So I’ve had half a chocolate biscuit . ( had a whole one few days ago and it Spiked to 8 ( it was 4 something before ) so guessing that’s not ideal

I feel
I am too dumb I really
Do . The team (after me asking again and again always say let’s start at 1:10 g of carbs ( finding out my insulin to carb ratio ) it’s clearly not that !! As it spikes way too much !! Eg above 9 or 10 help !!

 

[Grumpy Porridge]

And in the past ( as some of you know ) I’ve taken 400 unit overdoses , I havnt had fast hypos atall , I’ve had to take over 1000 to have any considerable prolonged difference .

with novorapid overdoses ( eg 2 pen worth’s ) it would not go below 2.8

I think I’m
Type 2 , can’t bear the thought of me being to
Blame , help . I don’t sound like the typical people type 1 surely ?? Is it true people with LADA show more resistance ?? I do have PCOS which can cause resistance too.

 

[Grumpy Porridge]

Now my blood glucose is 3.3 . Had 3 sweets . And nuts ( I’ve always done that to protect my teeth .)

 

[Fenn]

Hi, I’m confused why you ate the biscuit with a bg of 4.3, wouldn’t that mean the 12 units was pretty much perfect? I also don’t think a spike of 8 after eating a chocolate biscuit is bad.

Having type two means you are to blame? Hmm I’ve come to disbelieve that

 

[Antje77]

I'm a type LADA with insulin resistance.
I'm not worried about it (and neither is my endo).
It just means I need a bit more insulin than most T1's to keep in range, so what?

With or without insulin resistance, the main thing is finding the right dose for you.
It's completely normal to spike before coming down again.

I think I’m
Type 2 , can’t bear the thought of me being to
Blame

Please do not blame people with T2 for their condition.

 

[Deleted member 527103]

Now my blood glucose is 3.3 . Had 3 sweets . And nuts ( I’ve always done that to protect my teeth .)

Having nuts with your hypo treatment is not a good idea as they are high in fat which slows down the sugar absorption from the sweets.
You must treat hypos with fast acting carbs and nothing else until your levels have risen back to normal levels.

The longer it takes you to recover from a hypo the more your body gets used to having low blood sugars and the more likely you are to lose hypo awareness.

Please wait until you have recovered form your hypo before worrying about your teeth.

 

[Grumpy Porridge]

Sorry I didn’t mean
It in the way .. it’s just what everyone knows
/
Eg weight / being sedentary

 

[Fenn]

Hmm, blaming type 2,s for being overweight etc is like blaming someone with depression for their condition because they didn’t smile more, it’s kinda ridiculous, it also suggest that overweight people that do not have diabetes, do in fact deserve it.

Show of type two hands, who wants to be over weight? Who amongst us hasn’t tried a thousand times harder than naturally thin people?

I could go on, kinda touched a nerve sorry

 

[zand]

Sorry I didn’t mean
It in the way .. it’s just what everyone knows
/
Eg weight / being sedentary

T2 is a metabolic disorder where insulin resistance causes weight gain.

 

[Grumpy Porridge]

I don’t really have communication skills
So
I’ll answer oh .

no one actually actually answered me . How helpful . Absolutely hate humans .

 

[Jaylee]

And in the past ( as some of you know ) I’ve taken 400 unit overdoses , I havnt had fast hypos atall , I’ve had to take over 1000 to have any considerable prolonged difference .

with novorapid overdoses ( eg 2 pen worth’s ) it would not go below 2.8

I think I’m
Type 2 , can’t bear the thought of me being to
Blame , help . I don’t sound like the typical people type 1 surely ?? Is it true people with LADA show more resistance ?? I do have PCOS which can cause resistance too.

Hi Miss Porridge,

Unfortunatly we can't diagnose anyone on this forum.
There are members on the forum that require a specific dosage to help combat insulin resistance.
Dosage can also vary at different times of the day too?
But that is the nature of the indevidual condition, there is no "one size fits all.."

Please contact your diabetic team with regards to your concern with what type you feel you maybe.
They can do cpep & GAD tests to find these things out..?

Best wishes.

 

[Antje77]

I don’t really have communication skills
So
I’ll answer oh .

no one actually actually answered me . How helpful . Absolutely hate humans .

I did answer your question. Why would the insulin resistance be a problem, assuming you eve have it?

 

[Rokaab]

As it spikes way too much !! Eg above 9 or 10 help !!

FYI a spike of 9 or 10 is not too much, if it was I wouldn't still be around.
And in the space of 30ish years I'm pretty sure I have probably had less than 50 days where I didn't go above 8 at some point (I say 30ish cos there was no blood testing much before then)

I feel I need more insulin than lots of other people with type 1 diabetes on here ? Eg people say they have only 4 units for breakfast , no way could I only have that ?!

I only ever have that few if there is less than about 20 carbs in the meal as well (which is not often unless I've run out of cereal), people just need different amounts, DO NOT judge your amounts with others, its pointless not to put too fine a point on it.

A lot of days breakfast will push me above 10 but it comes back down to roughly what its should be after a while, 10 is not as evil as you seem to think it is

 

[ickihun]

I don’t really have communication skills
So
I’ll answer oh .

no one actually actually answered me . How helpful . Absolutely hate humans .

Your diabetes team should have more clear answers for you. Right down what you want answering in time for your next appointment/or calling for a callback. All of our diabetes team appointments are via telephone in the North-East unless life threatening not to. At the moment.
Are you feeling overwhelmed by it all?
I had a nasty burnout a few years ago and it's very damaging. Let your team know exactly what's going on for you. They can clarify what you feel is pressing for you.
Yes of course type1s can have insulin resistance. As of whether you are one is for your team to diagnose and advise you.
How much do you weigh? Is weight a concern for you?
You communicate OK for me. I'm sure your team have great experience helping with all varieties of conversational patients. I'm sure of it.
Let us know how you get on? Please.

Make that left message for your diabetes nurse now. The answering machine will keep it for the morning. Give them a chance to get updated on your case so they can call you back. They are available for you. Even if only telephone appointments only (mostly).

 

[EllieM]

I think I’m
Type 2 , can’t bear the thought of me being to
Blame , help . I don’t sound like the typical people type 1 surely ?? Is it true people with LADA show more resistance ?? I do have PCOS which can cause resistance too.

I've been T1 for 50 years and definitely have some insulin resistance (thanks T2 dad ) and some extra weight (thanks insulin resistance ).

Your team did the tests to determine your diabetes type, and though some people get misdiagnosed as T2 when they are in fact T1 it is incredibly rare for it to happen the other way round. Plenty of T1s have insulin resistance.

I think your expectations for bg control may be overly influenced by the T2s on these forums. I have a cgm and my upper limit is set to 10. I cheer on the very rare occasions I get a 100% in range day.

And you've only been diagnosed for about a year, in the middle of covid, so I'm not surprised that you are finding things hard. In an ideal world you'd be able to go on education courses (I believe DAFNE is the UK one?) and get more help.

If you keep some good records (bgs before and 2 hours after meals and carbs taken for those meals), your team should be able to help you calculate your new insulin ratio. Whenever I go to my clinic (in New Zealand) they have me fill out bgs, food and exercise for 2 days before I go in. It may be old style (on paper) but it tells them a lot. New Zealand health care tends to be a little behind the times, so your team may have an app for you to use? We're quite limited on the advice we give here (we're not allowed to suggest medication amounts) so I agree with @ickihun that you should contact your team. They are there to help you, let them know that you want that help.

Edited to correct spelling for DAFNE

 

[ickihun]

I've been T1 for 50 years and definitely have some insulin resistance (thanks T2 dad ) and some extra weight (thanks insulin resistance ).

Your team did the tests to determine your diabetes type, and though some people get misdiagnosed as T2 when they are in fact T1 it is incredibly rare for it to happen the other way round. Plenty of T1s have insulin resistance.

I think your expectations for bg control may be overly influenced by the T2s on these forums. I have a cgm and my upper limit is set to 10. I cheer on the very rare occasions I get a 100% in range day.

And you've only been diagnosed for about a year, in the middle of covid, so I'm not surprised that you are finding things hard. In an ideal world you'd be able to go on education courses (I believe DAFNE is the UK one?) and get more help.

If you keep some good records (bgs before and 2 hours after meals and carbs taken for those meals), your team should be able to help you calculate your new insulin ratio. Whenever I go to my clinic (in New Zealand) they have me fill out bgs, food and exercise for 2 days before I go in. It may be old style (on paper) but it tells them a lot. New Zealand health care tends to be a little behind the times, so your team may have an app for you to use? We're quite limited on the advice we give here (we're not allowed to suggest medication amounts) so I agree with @ickihun that you should contact your team. They are there to help you, let them know that you want that help.

Edited to correct spelling for DAFNE

@Grumpy Porridge I prefer using the old fashioned diary as I can look straight away at any patterns or needs to reduce/increase my basal etc. I started on paper diaries so it gives me confidence with any run of excellent bgs or the need for them.
Currently I've reduced my insulin as low as I dare but need an updated hba1c first before I consider any medication alterations further. I think getting my back fixed might make all the difference. I'm awaiting a specialist and a MRI. I think my insulin resistance will be hugely appreciative. Exercise currently is very limited even on very strong painkillers. I've read even those can influence weight gain so it explains why I'm soooo close to ditching insulin safely.
@Grumpy Porridge you will get your diabetes in a better position. It's inevitable because you care. Well done for posting here even.