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AlexCant

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I was diagonesd with Diabetes type 1 on Wednesday. The Nurse told me that on average the age is cut by 20 years. However the Doctor then told me that I will be able to live as long as a person without diabetes, with new technology.

Also when people where telling me stories about people with type 1 diabetes it was always someones son or someones nephew etc, never someones mam or dad, this making me believe that there are not many old people with type 1 diabetes making me belive that the 20 years may be true.

However when I did research the 20 years life expectancy I found that the results started from 1930 where technology will not have been as good

Thanks
 
Hi Alex and welcome to the forum :) There will be a lot of opinions on this from the members as you can't just say that 20 years will come off your life - there are too many variables involved. I agree with what your doctor said. One of our members, Viviennem, has a friend, I forget the details, who is extremely old and has had diabetes since a child. I am sure she will see this and post the details. And one thing you can do is to look after your diabetes as well as possible. This information, written for new members, will give you an idea what to do. Any questions, just ask and someone will come along and help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates
A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi Alex!

As you've already realised, a lot of the stats they throw around about diabetes are based on old evidence. Treatments are much better now - I think sometimes they say these things to us to scare us into behaving ourselves!

There's no diabetes in my family except me (I'm Type 2), but I remember an old friend of my grandmother's who was Type 1, and who lived into her 80s. She died in the 60s, so she didn't have modern advantages such as blood glucose meters or modern drugs.

The longest-lived Type 1 is an American man who has had it more than 80 years :shock: .

Finally, I have a Type 1 friend who is now in her 90s, having had it for more than 50 years, and she can still run rings round me!

So - if you take good care of yourself, and manage your diabetes properly, I don't see any reason why you shouldn't live out your full lifespan :D .

There are plenty of Type 1s on here with lots of experience; I'm sure someone will be along soon to help.

Viv 8)

PS I see Daisy1 got in before me, as usual! Slight typo in my name (viviennem, not ...b!) :wink:
 
Sorry Viv - I realised I'd made a typo and corrected it before I saw you'd already posted! :)
 
Hi Alex

I was also told about shortened life expectancy when diagnosed many, many years ago I never thought I would live to 50. Well this month I got to 48 without any complications...but from the day I was told that my life would be shorter, it did have a big impact on the way I thought about age....

I did a post ages ago, asking about how long people had been type 1-who was the longest living person on this forum with it.....there was some really, really good responses....I was really glad to see them...because as said - that remark made to me has always stayed in my brain.

I was also told I WOULD get complications...NOT that I MAY get complications...and that too has always stayed with me...

I realise why the HCP's at the time gave these statements, and treatments and care and technology have made huge advances, so there is a positive side that outcomes are definitely better. I know that when I was diagnosed I cried myself to sleep everynight for 6 weeks, it was a huge shock. I wish this forum had been around, I would not have gone through so much hell and back in those first 6 weeks had it have been here....you will get huge support from here, and people talk from actually living with diabetes and from their experiences.....dearly wish you had not joined the 'D' club-but now that you have, and you have found this site...welcome and you will get huge help from here......
 
viviennem said:
The longest-lived Type 1 is an American man who has had it more than 80 years
I believe this is the American who has now had type 1 for 85 years. He was diagnosed 1 year after insulin was discovered!
Good luck, it aint that bad,
Malc
 
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