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Help!!

Amy6825

Active Member
Messages
32
Type of diabetes
Other
Treatment type
Other
Ok so my story is a bit long winded but please bare with me as I need advice, i started 18months ago with gestational diabetes, my readings were so high I was put straight on insulin, the doctors were convinced I must have been an undiagnosed type 1 so kept me on insulin for a week until I kept having hypos on one dose of 4units.
I was ok with good readings for about 2 months and my gp had my hba1c tested again and it was high again so I was put straight back onto insulin.
Again after 6months my readings have dropped and my antibodies results are negative and c peptides were equivocal so basically they are clueless what is going on with me and have now put me on gliclazide as I was only having a total of 10units of insulin over 2 injections.
After 4 days I feel awful, such a lack of energy and my readings are up and down, I'm having readings in the 4s then 16s later making no connections with my diet which is good usually.
Please help!
 
Ok so my story is a bit long winded but please bare with me as I need advice, i started 18months ago with gestational diabetes, my readings were so high I was put straight on insulin, the doctors were convinced I must have been an undiagnosed type 1 so kept me on insulin for a week until I kept having hypos on one dose of 4units.
I was ok with good readings for about 2 months and my gp had my hba1c tested again and it was high again so I was put straight back onto insulin.
Again after 6months my readings have dropped and my antibodies results are negative and c peptides were equivocal so basically they are clueless what is going on with me and have now put me on gliclazide as I was only having a total of 10units of insulin over 2 injections.
After 4 days I feel awful, such a lack of energy and my readings are up and down, I'm having readings in the 4s then 16s later making no connections with my diet which is good usually.
Please help!

The only info I can give is that I know that Gliclazide can suddenly drop your blood sugar, which is why the doctors will give you test strips on prescription so you can test. I don't know if that's any help.
 
Thank you, I do have test strips and have to check 4 times a day, my original post should have said I was kept on insulin for a week after having the baby.
 
Maybe I should also add that I am 28, not overweight and don't have any family with diabetes.
 
Although I am older (42 at diagnosis last year) I wasn't and have never been overweight, but the tablets I take have a side effect of increasing or decreasing blood sugar. I was in them for 3 years without any blood tests. There can be other causes.
 
Although I am older (42 at diagnosis last year) I wasn't and have never been overweight, but the tablets I take have a side effect of increasing or decreasing blood sugar. I was in them for 3 years without any blood tests. There can be other causes.
Other causes for high blood sugars?
 
Hi and welcome. Might be worth looking at diet even if it is to rule this out, an idea of a typical day would be useful as what people think is healthy isn't slays the case for diabetes. Are you on any other medication?
 
Hi and thank you. No other medication, I have seen 2 diabetes dieticians and been through my diet of a typical day including keeping a diary, my diet really isn't bad at all I have been told by them, when I was pregnant my downfall was too much fruit and fruit juice as I didn't realise how bad it was but as soon as it was pointed out I cut it down to one to two pieces a day and no juice.
 
Hello, are you T1 or T2? I can't work it out.
Anyway, it would be useful to know what your "good diet" is, and we may be able to help with that.
Well done for taking the plunge and joining the forum.
 
Hello, are you T1 or T2? I can't work it out.
Anyway, it would be useful to know what your "good diet" is, and we may be able to help with that.
Well done for taking the plunge and joining the forum.
They haven't given me a diagnosis of either type yet, they still aren't sure
Ok so typically breakfast is weetabix and a coffee no sugar, lunch either a sandwich on brown bread or soup with a piece of bread and tea will be oven chips with chicken or boiled potatoes with veg and meat or something similar, I only drink water or sugar free juice all day and rarely snack, I will occasionally have a small piece of cake or ice cream for a pudding but that doesn't seem to effect my readings too much. Does anyone know much about what I should expect changing from insulin to gliclazide or even anything much about gliclazide?
 
Some grainy food products such as weetabix can raise your levels... Would you be comfortable at perhaps just having say berries and greek yogurt or scrambled egg (no toast) or bacon n egg??

You may finf that carb laden foods such as weetabix and bread raise your levels. If you had a few days trying to avoid just those two foods you may well find your levels do not swing up too hIgh.
This would be a good basic start to see how foods containing carbs affect your blood levels....
 
Thanks I will give it a try however my readings are only maybe 1 reading about 10 every other day, they are generally below 7 and I check 4 times a day, my queries were more to do with gliclazide and if anyone had any suggestions at what type I may be based on my story.
 
Hi and welcome to the forum @Amy6825:)

I'm going to tag @daisy1 as she has some information that you should find extremely useful.
 
Other causes for high blood sugars?

Certain medications have been linked with diabetes, statins, beta blockers, anti depressants, not every single brand but some. Diabetes type 2 isn't always caused by being overweight despite what the media would have you believe.
 
@Amy6825

Hello Amy and welcome to the forum :)

Here is the information Noblehead mentioned which is the advice we give to new members. I hope you will find this useful.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi Amy , are you seeing a specialist nurse or being treated via your GP? I'm a newly diagnosed type one and I'm currently in the 'Honeymoon phase' basically this means that once you start on insulin therapy, your pancreas kicks back into action for a while meaning that insulin needs decrease.
For example, initially I was taking 12 units of background insulin AM & PM (which subsequently caused several hypos) and I now take 2 units PM and 1 unit AM. The insulin I take with food has also changed from 1 unit to 10g of carbohydrate to 1 unit to 20g.
It doesn't mean I'm not type 1, just that for now, my pancreas is working albeit in a sluggish fashion!
I'm not suggesting that this is definitely the case for you of course, just that GP's don't seem to know too much about type 1 and you're better supported under a specialist team. It may be worth enquiring about?
I was also told that even if the antibody test came back negatively, it wouldn't make a difference regarding my diagnosis, as it happens it was in excess of 2200 so no doubt there unfortunately!
I have zero knowledge on gestational diabetes, I can only give you my own story.
What was your Hba1c?
Congrats on your baby :dummy::dummy1:
 
Hi Amy , are you seeing a specialist nurse or being treated via your GP? I'm a newly diagnosed type one and I'm currently in the 'Honeymoon phase' basically this means that once you start on insulin therapy, your pancreas kicks back into action for a while meaning that insulin needs decrease.
For example, initially I was taking 12 units of background insulin AM & PM (which subsequently caused several hypos) and I now take 2 units PM and 1 unit AM. The insulin I take with food has also changed from 1 unit to 10g of carbohydrate to 1 unit to 20g.
It doesn't mean I'm not type 1, just that for now, my pancreas is working albeit in a sluggish fashion!
I'm not suggesting that this is definitely the case for you of course, just that GP's don't seem to know too much about type 1 and you're better supported under a specialist team. It may be worth enquiring about?
I was also told that even if the antibody test came back negatively, it wouldn't make a difference regarding my diagnosis, as it happens it was in excess of 2200 so no doubt there unfortunately!
I have zero knowledge on gestational diabetes, I can only give you my own story.
What was your Hba1c?
Congrats on your baby :dummy::dummy1:
Hi thank you, I am having regular appointments with a diabetes consultant and keeping in touch often with a specialist nurse, none of them can make any sense of my case, there are pointers to type 1 and pointers away from it also and while they won't give me a definite diagnosis they won't educate me according to any type so the whole carb counting is a mystery that I can't work out right now and it's driving me crazy not knowing.
My hba1c while pregnant was over 100 don't remember exact figure then 6weeks after birth was 43, then 2-3months later was back up to 108 so went straight on insulin and got it down to 43 then 47 and now it's 50, I have had the tests repeated a lot as you can see, every time they check for antibodies (which results have been lost 3 times) they have done hba1c.
 
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