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Hi all

Jonte'

Newbie
Messages
3
Type of diabetes
Type 2
I have just been diagnosed 3 days ago with type 2 ,my sugar level was at 28.6 .
My Dr put me on Metformin ,My sugar has come down but not as low as it should ,I seem to be staying on 16 when i check 2 hours after breakfast and I have dropped all sugar just eating low carb and plenty of water ,my question is what am I doing wrong that my levels won't come down
 
Hi Jonte and welcome! Can you give us a little more detail about your diet, testing and medication. How much Metformin you’re on, how often you test your blood sugars and your exact carbohydrate count for the day.
I'm now five months from diagnosis. Once I was over the initial shock, I saw it as the proverbial kick up the bum to get healthier. I was started on Metformin 500mg x 3/day and tolerate it well now after a bit of stomach upset in the early days, this drug alone does only a little to help lower levels. I wasn't advised to eat low carb by my GP or Diabetes education course, but stumbled on this forum by chance and took up a low carb life style with self monitoring (self funded). I started by eating less than 100g carbs/day and after 6 weeks reduced it to 50-70g/day. The best way to see what foods suit you is to test right before a meal and then two hours after the first bite, you’re looking for a rise of no more than 2 mmol/l and to be within the recommended ranges. This has worked for me, to date I've lost nearly 4 stone and got my HbA1c down to a non diabetic level, all due to the fantastic support and advise I got here. Lots of people on this forum say it’s a marathon not a sprint, it’s very early days yet, it may take a while for you to see better levels.
 
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Hello and welcome. Metformin does not have a great deal of affect on blood glucose levels. Your diet will be much, much more important in this regard.

I shall tag @daisy1 who will swing by with great advice for you but meanwhile if you could say what a typical day's food intake would be then this may throw up some things that members could help you with.
 
I have just been diagnosed 3 days ago with type 2 ,my sugar level was at 28.6 .

Welcome! You have come to the right place.

The previous posters are giving great advice.

You may have noticed that @Rachox talked about getting "HbA1c down to a non-diabetic level."

Over the medium-term (months, rather than weeks or days) this is the statistic to monitor. The HbA1c is a measure of the average blood glucose over the previous 8 to 12 weeks. If you haven't been given that information, make sure to ask you doctor what your HbA1c was, at diagnosis.

They should test it again in a few months, typically three months for a newly diagnosed Type 2 diabetic. You are looking for a downward trend toward the non-diabetic range, if possible. Many of us on this forum have achieved this, either with diet only or in your case diet+Metformin.

More information here: http://www.diabetes.co.uk/what-is-hba1c.html.

You said you have dropped "all sugar" and just eating low-carb. I am sure you know this already, but "sugar" is not the whole story. Carbohydrates lurk in lots of common foods, including those we normally consider to be "healthy."

When I was first diagnosed, I was scared and depressed. After a few weeks however, I realized that the key thing is self-education. Type 2 diabetes is largely "self-treated." Your doctors can prescribe drugs/devices and give advice, but it's really almost 99 percent up to you!
 
Hello and welcome,

Some very good advice already. All I want to add is that 3 days is far too soon to see good results. All you need to look for is a downward trend over weeks. This isn't a sprint, it takes time. Metformin is no miracle drug - diet is the key. Get that right and your levels will drop. Set yourself a target that is realistic for you at the moment. Once you reach that target you can lower it.

May I ask exactly when do you do your tests? You say you are stuck on 16 at 2 hours after breakfast. Is this the only time you check?
 
Welcome! You have come to the right place.

The previous posters are giving great advice.

You may have noticed that @Rachox talked about getting "HbA1c down to a non-diabetic level."

Over the medium-term (months, rather than weeks or days) this is the statistic to monitor. The HbA1c is a measure of the average blood glucose over the previous 8 to 12 weeks. If you haven't been given that information, make sure to ask you doctor what your HbA1c was, at diagnosis.

They should test it again in a few months, typically three months for a newly diagnosed Type 2 diabetic. You are looking for a downward trend toward the non-diabetic range, if possible. Many of us on this forum have achieved this, either with diet only or in your case diet+Metformin.

More information here: http://www.diabetes.co.uk/what-is-hba1c.html.

You said you have dropped "all sugar" and just eating low-carb. I am sure you know this already, but "sugar" is not the whole story. Carbohydrates lurk in lots of common foods, including those we normally consider to be "healthy."

When I was first diagnosed, I was scared and depressed. After a few weeks however, I realized that the key thing is self-education. Type 2 diabetes is largely "self-treated." Your doctors can prescribe drugs/devices and give advice, but it's really almost 99 percent up to you!
Just one point. Here in U.K one generally has two HbA1c tests before a firm diagnosis of T2 is given. In my case, my A1c was very high so there was little doubt but I was still tested one month later to confirm.
 
Just one point. Here in U.K one generally has two HbA1c tests before a firm diagnosis of T2 is given. In my case, my A1c was very high so there was little doubt but I was still tested one month later to confirm.
Indeed I had two HbA1c tests 8 days apart, my GP won’t diagnose on one result incase there’s an error. In those 8 days my HbA1c rose from 67 to 70!
 
Hello and welcome,

Some very good advice already. All I want to add is that 3 days is far too soon to see good results. All you need to look for is a downward trend over weeks. This isn't a sprint, it takes time. Metformin is no miracle drug - diet is the key. Get that right and your levels will drop. Set yourself a target that is realistic for you at the moment. Once you reach that target you can lower it.

May I ask exactly when do you do your tests? You say you are stuck on 16 at 2 hours after breakfast. Is this the only time you check?
Hi i test before breakfast and 2 hours after .
 
Just one point. Here in U.K one generally has two HbA1c tests before a firm diagnosis of T2 is given. In my case, my A1c was very high so there was little doubt but I was still tested one month later to confirm.

Excellent point. Here in America, when I was diagnosed I had an astronomical score on the fasting blood glucose test, during a regular annual medical (I had not been fasting, but the spike was large enough to cause concern I guess). At that point my doctor ran the A1C, only once. His reasoning was that I had two (different) tests that both indicated full-blown diabetes.

One of the more desperate things I did after diagnosis was to question whether there could have been a "mixup in the lab" or something, which is when the doctor provided the above explanation.

On diagnosis, everyone should have at least two tests, considering how life-changing the diagnosis is, and the consequences of an erroneous diagnosis!

(Mind you, I have not yet come across a case of false diagnosis i.e. someone being told they were in the diabetic range, later revealed to be an error. But I haven't been on this forum for very long.)
 
Excellent point. Here in America, when I was diagnosed I had an astronomical score on the fasting blood glucose test, during a regular annual medical (I had not been fasting, but the spike was large enough to cause concern I guess). At that point my doctor ran the A1C, only once. His reasoning was that I had two (different) tests that both indicated full-blown diabetes.

One of the more desperate things I did after diagnosis was to question whether there could have been a "mixup in the lab" or something, which is when the doctor provided the above explanation.

On diagnosis, everyone should have at least two tests, considering how life-changing the diagnosis is, and the consequences of an erroneous diagnosis!

(Mind you, I have not yet come across a case of false diagnosis i.e. someone being told they were in the diabetic range, later revealed to be an error. But I haven't been on this forum for very long.)
There has been one case of lab error misdiagnosis that I have read about on the forum.
 
Hi i test before breakfast and 2 hours after .

Is that way of testing teaching you anything?

With testing you need to be organised and consistent, and you need to test all your meals initially (not just breakfast). This is the general advice:

Test before eating
Test 2 hours after first bite
Look at the rise from before to after
If it is more than 2mmol/l there are too many carbs in that meal
It is preferable to keep any rise as flat as possible
Keep a detailed food diary including portion sizes
Record your levels alongside the food
Look for patterns emerging that show which are your personal danger foods, These will be carbs.
Play around with reducing portion sizes of those foods and be prepared to eliminate some.

The amount of the rise from before to after is the most important level for us. Initially, when you are newly diagnosed and learning, it is best not to stress over the actual before and after levels - just concentrate on the amount of the rise - the rest will follow.
 
There has been one case of lab error misdiagnosis that I have read about on the forum.

Yes, and possibly two. The first one was miles out!

Scary.

And of course, if you have a bad diagnosis and start treatment (by diet, drugs, whatever) it will then be too late to get a reliable result months later. Because, if the later test shows your A1C in the normal range, that is taken as evidence of successful treatment even if the treatment was unnecessary.

I think it must be very rare though.

(At diagnosis: I was particularly concerned about this. One good reason: I had absolutely no symptoms, but of course that is not unusual. One bad reason: back then I thought that "only fat people get diabetes." Finally, the typical psychological reason: Denial. It was just so crazy, unexpected, wild.)
 
Scary.

And of course, if you have a bad diagnosis and start treatment (by diet, drugs, whatever) it will then be too late to get a reliable result months later. Because, if the later test shows your A1C in the normal range, that is taken as evidence of successful treatment even if the treatment was unnecessary.

I think it must be very rare though.

(At diagnosis: I was particularly concerned about this. One good reason: I had absolutely no symptoms, but of course that is not unusual. One bad reason: back then I thought that "only fat people get diabetes." Finally, the typical psychological reason: Denial. It was just so crazy, unexpected, wild.)
Rare but has happened enough to merit the second confirm test to be mandatory. My second A1c was after one month because between tests I moved to a new Practice. When T2 was mentioned by a locum after my first A1c I laughed in his face and bet him £1 that the test result was an error. One month later and Boy!was I wrong. Note to self: Must give that Locum the pound I owe him.
 
@Jonte'

Hello Jonte` and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask questions when you need to and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 250,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
First off, well done - that is quite a drop in blood glucose in a short time - you obviously hit the ground running.
I did manage to drop my blood glucose down quite significantly fairly fast, I ordered a whole sheep on the way back from the clinic - great butchers help a lot with the diet.
Once I had got down to about 8mmol/l with all the foods which caused spikes eliminated or reduced right down, then I stuck to that menu and saw that my numbers were dropping without further changing my diet - I think that my metabolism was able to sort itself out once the pressure of too many carbs was removed.
At the first check I was no longer diabetic and at the second at 6 months everything was normal. Now I check from time to time and my numbers are normal. I think the last one was 6mmol/l after dinner
I could eat more than the maximum of 60gm per day I set myself, but I am losing weight and size just by eating this way - I have had my trousers fall down around my ankles but at least it was in my own kitchen and not the supermarket. I think I am on my third set of clothes now, no more X size
 
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