- Messages
- 15
Re: HOW CAN THEY PUT ME INTO ESA WRAG GROUP WHEN MY WIFE IS
Hello, since writing that,
I was put into support group, coz I was having hypos day in day out too many to mention, they tried me on omnipod, best thing since sliced bread, but only stopped me from having to do so many injections, control was still not obtainable, and still extremely dangerous, I have severe neuropathy, in both feet and hands, and am now on morphine based tablets because they have tried everything else, can hardly walk, and hands are closing up coz also have chloripathy but some of specialists ( top ones in country in london ) have not seen anything like it with my hands, July 2012 had a PANCREAS only transplant and although went and still going through the grindstone with it, pancreas still holding out, but damage has been done to nerves in hands and feet, am in continuous pain with them, and at times becomes overpowering, only wish could have had transplant years ago, but spose you cud keep wishing, wife has to sort medication etc, staff at london hospital and Oxford hospital amazing, was hoping for maybe some improvement with neuropathy but hasnt, been through the card about can get worse b4 getting better but hands and feet are not improving and getting worse and Docs. not holding out any hope, still classed as Diabetic, coz they call it ongoing treatment, depending how long the transplant lasts for, operation was 12 hours, 10 hours in surgary and 2 in recovery, pancreas attached to bladder, so have 2 pancreas s now, just grateful for the Donor, and the donors family, was on active list 3 WEEKS !!!!!! coz was so dangerous, feeling sad for me self when having so many hypos, without warnings, I used to get really good warnings, so could do windsurfing for 27 years Winter, summer etc now use waking stick !!!!!!! used to be so active and fit but then couldnt go outside house without wife, like 6 year old child, now cant go outside coz of pain in feet, and in danger falling over, now taking so many anti-rejection drugs etc, some of the side effects !!!!!!! Would I go through with it again ???? not sure!!!! operation was ***** !!!!!! but recovered well as can be very dangerous, if didnt have this nerve damage would be amazing!!!!! spose cant have everything in this world!!!!!! just me being greedy LOL, as very fortunate, but got type 1 Diabetes in 1968 and now 53 and as nurses and docs. kept saying " Well your still here, even with all your problems" other **** thing have is short term memory loss coz of bad Hypos IV had in past, just thort would let you know how have got on since that post of mine, Oh yeah!!! am on level 2 DLA wife is carer and in the support group, hate it but without help!!!!!! I literally cry coz I would love to goto work as have worked all my life, and cameron telling you he is giving you pennys and taking away pounds!!!!!! want to tell him to stuff the lot, but cant do anything workwise coz of problems, get so angry when newspapers and Gov. treat you like scum of the earth, worked since age of 15 til about 3 years ago brought family up, 2nd youngest daughter in army, has served 3 tours Afghanistan and her husband she is 24 been in since 16 from army college, and I get treated like this!!!!!! Ill get off me soapbox now
Steve
Hello, since writing that,
I was put into support group, coz I was having hypos day in day out too many to mention, they tried me on omnipod, best thing since sliced bread, but only stopped me from having to do so many injections, control was still not obtainable, and still extremely dangerous, I have severe neuropathy, in both feet and hands, and am now on morphine based tablets because they have tried everything else, can hardly walk, and hands are closing up coz also have chloripathy but some of specialists ( top ones in country in london ) have not seen anything like it with my hands, July 2012 had a PANCREAS only transplant and although went and still going through the grindstone with it, pancreas still holding out, but damage has been done to nerves in hands and feet, am in continuous pain with them, and at times becomes overpowering, only wish could have had transplant years ago, but spose you cud keep wishing, wife has to sort medication etc, staff at london hospital and Oxford hospital amazing, was hoping for maybe some improvement with neuropathy but hasnt, been through the card about can get worse b4 getting better but hands and feet are not improving and getting worse and Docs. not holding out any hope, still classed as Diabetic, coz they call it ongoing treatment, depending how long the transplant lasts for, operation was 12 hours, 10 hours in surgary and 2 in recovery, pancreas attached to bladder, so have 2 pancreas s now, just grateful for the Donor, and the donors family, was on active list 3 WEEKS !!!!!! coz was so dangerous, feeling sad for me self when having so many hypos, without warnings, I used to get really good warnings, so could do windsurfing for 27 years Winter, summer etc now use waking stick !!!!!!! used to be so active and fit but then couldnt go outside house without wife, like 6 year old child, now cant go outside coz of pain in feet, and in danger falling over, now taking so many anti-rejection drugs etc, some of the side effects !!!!!!! Would I go through with it again ???? not sure!!!! operation was ***** !!!!!! but recovered well as can be very dangerous, if didnt have this nerve damage would be amazing!!!!! spose cant have everything in this world!!!!!! just me being greedy LOL, as very fortunate, but got type 1 Diabetes in 1968 and now 53 and as nurses and docs. kept saying " Well your still here, even with all your problems" other **** thing have is short term memory loss coz of bad Hypos IV had in past, just thort would let you know how have got on since that post of mine, Oh yeah!!! am on level 2 DLA wife is carer and in the support group, hate it but without help!!!!!! I literally cry coz I would love to goto work as have worked all my life, and cameron telling you he is giving you pennys and taking away pounds!!!!!! want to tell him to stuff the lot, but cant do anything workwise coz of problems, get so angry when newspapers and Gov. treat you like scum of the earth, worked since age of 15 til about 3 years ago brought family up, 2nd youngest daughter in army, has served 3 tours Afghanistan and her husband she is 24 been in since 16 from army college, and I get treated like this!!!!!! Ill get off me soapbox now
Steve