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Hypos are changing

Discussion in 'Reactive Hypoglycemia' started by Bw2534, Dec 22, 2021.

  1. Bw2534

    Bw2534 · Member

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    I seem to post a lot on here at the moment so I apologise!

    So yesterday I had a “hypo” that started at 3.8 I was slightly symptomatic but didn’t treat as my body normally corrects but on this occasion it didn’t and dropped to 3.5 at this point I was sweaty shivery felt really sick had treatment as advised by nhs website, checked after 10 minutes still 3.5 so more treatment checked again 3.6 so I had another glucose tablet and it came up to 4.0.
    I was really scared as it normally corrects itself but just didn’t and didn’t come up either,also came out the blue.
    Consultant won’t diagnose or acknowledge anything above 2.5 so I don’t really know what to do, it’s definitely changed and it’s scary.
    I thought I was going to have to call an ambulance I felt so bad and my treatment wasn’t working.
    Any advice? IMG_6091.jpg
     
  2. ert

    ert Type 1 · Well-Known Member

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    3.5 mmol/l and above are not classified as hypos. If you aren't on insulin or sulphonic ureas and haven't been diagnosed with reactive hypoglycemia then as your specialist is indicating these are within the accuracy of our device or finger prick and blood glucose monitor which is always out by a percentage.

    I was on a recent trial for the Glucose RX where my finger pricks (from 15 machines) ranged plus or minus 3 mmol/l compared to my blood test result.

    It's often common to feel a false hypo when your blood sugars are at their lowest.

    Have you been asked to monitor your blood sugars? Are you diabetic? If not, then it may be less stressful not to.
     
    • Agree Agree x 2
  3. Bw2534

    Bw2534 · Member

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    Nobody will listen I will speak to the GP about it as I’m currently being checked for issues with the pituitary gland so that can cause a drop and symptoms.

    Am I just meant to leave it then as I tried that and it just went in the opposite direction?

    I’m in a bit of a tricky situation as these episodes make me feel really ill and I never used to get this before my other issues came along.
     
    • Hug Hug x 1
  4. ert

    ert Type 1 · Well-Known Member

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    Keep talking to your GP, but a very rare pituitary insulin-producing tumours or hypothalamic hypopituitarism would cause a severe drop in blood sugars and would show up in blood tests. I think you should trust your specialist at the moment without anything else to go on. I'm sorry your pituitary gland issues are making you feel unwell.
     
    • Agree Agree x 1
  5. Bw2534

    Bw2534 · Member

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    I will do, I haven’t had any blood tests for the glucose issue at all so I’m only going off finger pricks.

    I’ll speak to the gp in January and for the minute just try and accept this is the situation and I can’t change it.
     
  6. Lamont D

    Lamont D Reactive hypoglycemia · Master

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    I agree with @ert, the figures that you have shown are not hypos, and because you are not diabetic, along with the pituitary issue. Put that with, no tests for RH.
    Until that issue is resolved or they find the cause of your health issues.
    I believe you do need to be patient and await for your doctors appointment.
    But I would still use the glucometer, write down your fasting and a couple hours after eating, just to give you peace of mind and it will help your doctor diagnose you with the information.
     
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