No I do have to be careful for GF but I can't eat lactose oats and sesame, plus I try and balance each meal so that I eat proteins and carbs together. I need to eat regularly to avoid the hypoglycaemic episodes. I carry apples, sultanas and nuts with me to eat if I need them. My food is all cooked from raw ingredients and I take leftovers for lunch. I usually eat eggs for breakfast. A typical evening meal would be made from chicken, tomato passata and veg,somtimes pulses or beans with a small portion of rice/potatoes (2/3tbsp), flavoured with various spices.
I find eating at home quite easy, but travelling is very difficult.
If your diagnosis is RH, and because of the tests, I don't doubt you have hypoglycaemic episodes, if that is the case you have intolerance like me, to carbs!
Which means that every time you eat carbs your could and almost always trigger an overshoot of insulin, this is why you feel awful all the time, never mind the coliec.
I am also lactose intolerant and all grains effect me badly, so do potatoes and other foods.
I was diagnosed over five years ago now, and since then, I have avoided carbs as much as possible. I have found that not triggering the overshoot, you avoid the Hypoglycaemic episodes.
The only way you can find out what certain foods you are intolerant to is by using a glucometer and a food diary, it is essential you discover, what happens to you when you eat.
All the symptoms, you describe is because your blood glucose levels are continually going up and down, as you are trying to counter the awful symptoms and as you have been advised to eat every time you feel awful.
The underlying cause of your symptoms is food and how your body copes with it.
Fasting, I can and do fast intermittently, I have found that my body is happier and healthier when I fast, there is certain different ways to fasting. Again only by trying and testing, can you know what is happening.
Before going very low carb, I had terrible night time experiences, hypos, vivid colourful dreams, sleep deprivation and fatigue during the day, add on the other symptoms, it is a hellish situation.
I can understand why you are confused and seeking help, your doctor, endocrinologist, probably have little experience with treatment of RH, they as my endocrinologist did at first, follow the recommended dietary advice, for such a condition, and would not recommend going without carbs as much as possible.
You have to have carbs, don't you?
Well, no you don't!
If you had an allergy, would they recommend eating what you are allergic to?
No, they wouldn't!
It is the same, because eating what causes the symptoms and the dreadful reaction to them is making you ill and your health is suffering because of it!
I have been on a very low carb diet for about five years, and my last hypo was my last test, which you have had is called a extended oral glucose tolerance test over four to five hours.
The only other test you may need is a fasting test over 72 hours.
And if you are going hypo when fasting, if it is not RH, it is probably a pancreatic condition such as insulinoma, but only tests can give you a definitive diagnosis.
Speak to your endocrinologist, ask him about a fasting test.
Best wishes and welcome to our forum.