I just don't get this start of a light hypo at 4.6

[AndBreathe]

TBH, doing that diet was a bit silly, yes it stopped the hypos but didn't work on my long distance stuff. when needing a lot of leg power for climbing and running which uses stored glycogen, why the keto doesn't work for that, the ketosis part of fat burning doesn't work very well when needing a load of power with a higher heart rate suddenly, just too slow to react causing lactic acid.

it got so silly that i was eating salads only and 2 tiny meals a day, i felt great until i needed full thrust from my legs lol, tbh can't avoid sugars and for most people that small amount would be ok but for what i did wasn't

never heard of tofu, just looked it up, will give it a try.

a cooked meal would be colliflower, peas and carrots, tasted nice but lacks something.

Small salads won’t fuel anyone who is active. If you are starving yourself, or malnourishment yourself, there will be issues.

In my experience of low carb/keto living whilst active, I need to fuel early - well before activity, but once fuelled efficiently, there are few “I need fuel NOW” moments, because my body was fat adapted, so working well.

I say, “was” because my own insulin sensitivity has improved and I have much more leaway in terms of eating/drinking vs blood sugars. Being clear, I don’t live with RH, so there are some differences.

I would urge you to explore a nutritionally dense way of eating - getting adequate protein, along with a decent range of vitamins and energ. Eating a heavily carb based diet, with RH is a bit like throwing paraffin on a BBQ, then expecting it not to flare up.

Few folks, in my observation, find positive outcomes from RH without a degree of dietary management.

I would still strongly urge you to seek a 24/48 hour BP monitoring exercise.

If you remain dissatisfied with the feedback from your hospital visit, then you can ask for a second opinion. If you elect to do that, I suggest you do your research into the RH experts with a distance you are prepared to travel and ask for a named referral to that person. That person could be in another Health Board, but be aware, it may not be a quick process.

 

[Shaky-kate]

Small salads won’t fuel anyone who is active. If you are starving yourself, or malnourishment yourself, there will be issues.

In my experience of low carb/keto living whilst active, I need to fuel early - well before activity, but once fuelled efficiently, there are few “I need fuel NOW” moments, because my body was fat adapted, so working well.

I say, “was” because my own insulin sensitivity has improved and I have much more leaway in terms of eating/drinking vs blood sugars. Being clear, I don’t live with RH, so there are some differences.

I would urge you to explore a nutritionally dense way of eating - getting adequate protein, along with a decent range of vitamins and energ. Eating a heavily carb based diet, with RH is a bit like throwing paraffin on a BBQ, then expecting it not to flare up.

Few folks, in my observation, find positive outcomes from RH without a degree of dietary management.

I would still strongly urge you to seek a 24/48 hour BP monitoring exercise.

If you remain dissatisfied with the feedback from your hospital visit, then you can ask for a second opinion. If you elect to do that, I suggest you do your research into the RH experts with a distance you are prepared to travel and ask for a named referral to that person. That person could be in another Health Board, but be aware, it may not be a quick process.

Yes i soon found the diet wasn't working for the ecisse related parts, ok for normal.

Will be updating with new foods this week it took 4 days to complete stop the low blood sugars back in June last year, but i,mnot having the extream hypos like i was last year since that diet, more of pre lows, warning shots. Have to wait for the results from the hospital this week and have an appointment with my go on the 3rd.

Never been a great eater, never really enjoyed food due to being a boring eater, gathering info at the moment to the stuff i already have.

yes will look into that thanks.

 

[Lamont D]

Excuse me for buying in @AndBreathe.
My wife suffers with spinal disability.
Her diagnosis is two discs and a third starting to crumble.
The second disc has her sciatica nerve trapped.
This of course means that her leg movements are restricted and her muscles get very tired and ache.
Her mobility and pain is why she is registered disabled.

it could be as you say the nervous system from your back to your legs.

I learned a few years ago, that if I do vigorous exercise, even too much housework or gardening, walking etc and doing some gym work, was actually triggering the rollercoaster BG levels and hypos.
So if I feel like I am, while I do stuff, I go and rest, drink some water and maybe a few carbs just in case.
There are also some T2s that have the same issues with exercise.

Maybe, this could be part of the whole thing, you are going through.

Best wishes.

 

[Shaky-kate]

Excuse me for buying in @AndBreathe.
My wife suffers with spinal disability.
Her diagnosis is two discs and a third starting to crumble.
The second disc has her sciatica nerve trapped.
This of course means that her leg movements are restricted and her muscles get very tired and ache.
Her mobility and pain is why she is registered disabled.

it could be as you say the nervous system from your back to your legs.

I learned a few years ago, that if I do vigorous exercise, even too much housework or gardening, walking etc and doing some gym work, was actually triggering the rollercoaster BG levels and hypos.
So if I feel like I am, while I do stuff, I go and rest, drink some water and maybe a few carbs just in case.
There are also some T2s that have the same issues with exercise.

Maybe, this could be part of the whole thing, you are going through.

Best wishes.

My back problems have been ongoing since 1990, massive motorbike crash, high sided, londed on my knees and 115 mph then cartwheeled for ages, walked away but with loads of blood everywhere. did a lot of sports, mountain bike racing, loads of crashes and injuries and thats when i started to noticed the legs wasn't working plus the hypos were appearing more and more as i got older.

Hospital are unsure if its the bike crashes, my other sports that did my back. Oddly walking plays my legs up, yet when i used to run 7 miles, not a bloody issue. but the running forces the muscles to work harder, building more power where the walking is more repetitive and my body hates doing same things for a long period of time without going as stiff as a bord.

So you too used to have radom, no warning hypos? but why would I have hypos in bed? over the years it must be in the many thousands, either just laying there, feel it come on or would wake me up shaking like crazy.

yep, i would have the shakes, sweating like crazy, dizzy, rush for a drink, fast carbs, sit down and then ok after about 20 minutes. sometimes it wouldn't list long tho.

Thats so strange you do what i do and have the same outcome.

tomorrow will be testing a protein only breakfast then trying the same walk and tests again and changing parts of the diet which im partly on to something more protein bastet like tofu so on. Nuts seem to suit me a lot, seeds so on. noodles, rice, portage oats.

took 4 days last year to completely stop the hypos but ended in no energy fr walking due to hardly any food intake, so i need high vaule foods that taste ok and not explodes those levels but i feel its not highs i suffer from i think unless the carbs causes something to happen.

 

[Lamont D]

My back problems have been ongoing since 1990, massive motorbike crash, high sided, londed on my knees and 115 mph then cartwheeled for ages, walked away but with loads of blood everywhere. did a lot of sports, mountain bike racing, loads of crashes and injuries and thats when i started to noticed the legs wasn't working plus the hypos were appearing more and more as i got older.

Hospital are unsure if its the bike crashes, my other sports that did my back. Oddly walking plays my legs up, yet when i used to run 7 miles, not a bloody issue. but the running forces the muscles to work harder, building more power where the walking is more repetitive and my body hates doing same things for a long period of time without going as stiff as a bord.

So you too used to have radom, no warning hypos? but why would I have hypos in bed? over the years it must be in the many thousands, either just laying there, feel it come on or would wake me up shaking like crazy.

yep, i would have the shakes, sweating like crazy, dizzy, rush for a drink, fast carbs, sit down and then ok after about 20 minutes. sometimes it wouldn't list long tho.

Thats so strange you do what i do and have the same outcome.

tomorrow will be testing a protein only breakfast then trying the same walk and tests again and changing parts of the diet which im partly on to something more protein bastet like tofu so on. Nuts seem to suit me a lot, seeds so on. noodles, rice, portage oats.

took 4 days last year to completely stop the hypos but ended in no energy fr walking due to hardly any food intake, so i need high vaule foods that taste ok and not explodes those levels but i feel its not highs i suffer from i think unless the carbs causes something to happen.

It is the level of the spike that triggers the excess insulin that sends you hypo. So it might not be good but also other hormonal, liver, pain, and so on.
So for example, you get a cold/ flu. The most normal thing is to take something for it.
With RH it is only paracetamol.
For pain it is paracetamol.
For infection, only certain sugar free, lactose free anti biotic.
You have to be so careful with your food, your drink, your exercise, your whole ljfe.
Your health of it can will only improve to stop the constant threat and being in hypo levels.
This is why keto works for many, because it doesn't spike your BG levels, no spike, no hypo.
You are only just finding out why it is happening, it is strange and weird, and no reference to now to deal with ig.
There is the curse of having the reaction at anytime, hence the window of fasting, cos the hypos are not happening during the night time. That is what I do. It works for me.
This is early stages of your tests, readings, treatment, you are trying to get your head around something you have not heard about it come across, and it is overwhelming, and of course the constant why? Why me? Help!

It is not easy, there is pitfalls, you have to experiment, explore, experience the best way to proceed.
There is no cure, no magic pill, only control of your BG levels.
And being circumspect, only you can decide if you take the advice.
We can help. With our experience.
So keep asking, keep safe. It is a long journey, things don't happen overnight.
Just like his you got here.
Best wishes.

 

[MrsA2]

I would urge you to explore a nutritionally dense way of eating - getting adequate protein, along with a decent range of vitamins and energ. Eating a heavily carb based diet, with RH is a bit like throwing paraffin on a BBQ, then expecting it not to flare up.

Just what I was going to say! But better put

And @Shaky-kate remember things are unlikely to resolve over 1 night. Our bodies aren't 24 hour clocks that reset to zero daily. You may need to give your body several days to get real results to a change in food. And months to recover and rebuild a working metabolism .
And that's assuming your issues are only bg related

 

[Shaky-kate]

Just what I was going to say! But better put

And @Shaky-kate remember things are unlikely to resolve over 1 night. Our bodies aren't 24 hour clocks that reset to zero daily. You may need to give your body several days to get real results to a change in food. And months to recover and rebuild a working metabolism .
And that's assuming your issues are only bg related

last year the keto diet started fully working in 4 days, from loads of hypos to known, just the energy issues for hiking and running was an issue when calling on ful thrust from the legs, instead it was lactic acid from hell. so it went wrong in the end due to trying to add carbs back. im in deep doo doo in that sense.

if a high amount of protine can do the same trick s carbs then cool, will up the that.

 

[AndBreathe]

@Shaky-kate - I know I have mentioned fuelling well ahead of exercise several times, but I'mm also conscious I haven't put any context on what that means.

For me, when fat adapted, my body is pretty quick to respond to a protein and fat rich meal, but there is probably an element of fuelling left from earlier eating episodes.
In your shoes, if I wanted to try a protein and fat focused way of eating, with reduced carbs, then to be honest, I'd likely want to be eating that way for a couple of day, at least, before any heavy exercise. You will still need to carry hypo treatments with you, even when protein/fat adapted - just in case.

For those on protein based diets, some find they have virtually no rise in blood sugars - just a wavy line (as opposed to peaks and troughs), but for some, they find a more modest rise.

It does take the body a few days to get used to any new form of fuelling. You may find your body goes into a form of withdrawal from carbs. The most usual symptoms are headache and sometimes a bit of tiredness.

If you have RH, I refer you back to my tennis ball/ceiling tale. If you don't thrust the bloods up, they are less likely to overshoot on the way down.

As a matter of interest, did they do any insulin testing, alongside the blood glucose testing when you were in hospital. I'm assuming at least some of your tests were veinous blood, as opposed to finger prick testing?

 

[Shaky-kate]

@Shaky-kate - I know I have mentioned fuelling well ahead of exercise several times, but I'mm also conscious I haven't put any context on what that means.

For me, when fat adapted, my body is pretty quick to respond to a protein and fat rich meal, but there is probably an element of fuelling left from earlier eating episodes.
In your shoes, if I wanted to try a protein and fat focused way of eating, with reduced carbs, then to be honest, I'd likely want to be eating that way for a couple of day, at least, before any heavy exercise. You will still need to carry hypo treatments with you, even when protein/fat adapted - just in case.

For those on protein based diets, some find they have virtually no rise in blood sugars - just a wavy line (as opposed to peaks and troughs), but for some, they find a more modest rise.

It does take the body a few days to get used to any new form of fuelling. You may find your body goes into a form of withdrawal from carbs. The most usual symptoms are headache and sometimes a bit of tiredness.

If you have RH, I refer you back to my tennis ball/ceiling tale. If you don't thrust the bloods up, they are less likely to overshoot on the way down.

As a matter of interest, did they do any insulin testing, alongside the blood glucose testing when you were in hospital. I'm assuming at least some of your tests were veinous blood, as opposed to finger prick testing?

One day it may get sorted and have enough energy.

yeah they where taking bloods from my arm every 6 hours