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I'm 1.7. Again

Don’t know if they said how long the ambulance would be but might be worth you or your mum phoning them with update on your struggle
 
PenguinMum said:
Don’t know if they said how long the ambulance would be but might be worth you or your mum phoning them with update on your struggle
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Mum is standing with me now, She won't leave until the ambulance arrives, I should be unciouse.. There is th golegen kit on my desk
 
I'm doing finger prick tsts every 10 munutes as well. Shoud be ok. I thinl
 
That's not right! I was 1.1 in the ambulance, I was way above that once I reached hospital, Sorry I haven't slept
 
plantae said:
I shoudn't have injected the lantus. I need to speak to my DN about thisl. I dropped from 5.6 to lower than 2 incredibly quickly. I can see it in the graoh
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maybe injected into muscle or blood vessel ... hope you are OK
 
Hi @plantae

I've had some major hypos in my time so I can imagine how scary this must be for you and your mother. (My husband has had some terrifying moments while I was completely out of it with a hypo).

As a fairly experienced T1 I am pretty confident to change my insulin doses when I need to. I am guessing you are still so new that this is not yet a possibility for you?

My suggestion would be to have a serious discussion about how to adjust your doses with your HCP? If you moved to a more traditional basal/bolus regime, where you adjust doses yourself according to what you eat, you might find it easier???

Edited to add some virtual hugs.
 
EllieM said:
Hi @plantae

I've had some major hypos in my time so I can imagine how scary this must be for you and your mother. (My husband has had some terrifying moments while I was completely out of it with a hypo).

As a fairly experienced T1 I am pretty confident to change my insulin doses when I need to. I am guessing you are still so new that this is not yet a possibility for you?

My suggestion would be to have a serious discussion about how to adjust your doses with your HCP? If you moved to a more traditional basal/bolus regime, where you adjust doses yourself according to what you eat, you might find it easier???

Edited to add some virtual hugs.
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Thanks for your reply. I'm still at hospital and will be for tonight as well. They are changing my fixed doses to a sliding scale because I'm sitting too low. I.e. they'd rather me not have novorapid at all if I'm, for example, 4.1, which does make sense to me and just eat without the dose. The scale will allow me to have insulin after a meal if I go too high. Before today I was on fixed doses before meals no matter what my level was. After today my novorapid will in most cases likely be after meals. They say this is not how they normally do things but I can't keep ending up in hospital. Glargine/lantus has also been reduced by another 2 units as well. I've eaten lunch (sandwiches) and only went up to 8 something so no insulin at all with that meal. Will see how it goes. I think they're keeping me in tonight as well because of the glargine which I have at 9PM
 
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I've never been happy with the fixed doses and although I didn't like to go against medical advice I have skipped some. I can't remember what I was the other night but I think it was 4.2 or something before the meal so I skipped the novorapid completely even though I wasn't supposed to. This sliding scale sounds more sensible for me. I just read it and if I'm below 5 I have nothing. 6.0-8.0 it's the same as my fixed doses were. It's not complicated. I think I was on fixed doses because I was/am new and they thought it'd be "easier". But these constant trips to hospital are probably costing too much. I have private health insurance so I'm not in a public hospital but someone still has to pay
 
Some of my comments last night were not appropriate. It's very easy to see now that my BSL is back in the normal range. My only defense is that I was so low I don't think I knew what I was doing. That's no excuse, but maybe a reason. I should not have been on the computer at all. I'm embarrased by some of them. All I can do is say that I'm sorry and ask for forgiveness and if not forgiveness then understanding
 
plantae said:
Some of my comments last night were not appropriate. It's very easy to see now that my BSL is back in the normal range. My only defense is that I was so low I don't think I knew what I was doing. That's no excuse, but maybe a reason. I should not have been on the computer at all. I'm embarrased by some of them. All I can do is say that I'm sorry and ask for forgiveness and if not forgiveness then understanding
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I'm sure your apologies will be accepted.

I know a number of those who experience hypos have said they can become uncharacteristically even a bit aggressive when low.

Now, please read my coming comments as my only thoughts. They aren't suggesting you take any action, other than that which you are already doing. I'm not an insulin user, so my comments are based on learnings over the years, watching others get to grips with their conditions.

I'm wondering if now that your body is recovering a bit from your horrid pancreatitis, and the introduction of injected insulin, and creon, if your pancreas has enjoyed a bit of a rest and support and is getting a bit more involved in things, meaning that sometimes your injections make you go hypo, quite quickly.

In your shoes, bearing in mind the Libre alarms aren't helping you out too much, I would be asking for at least a trial of another sort of CGM, with reliable warnings, in the hope it would help you out a bit more.I have views on what i, personally, would do with bolus injections in the meantime, but I won't post them in case there was any misunderstandings in what I would do.

I really do feel for you at the moment, and it all needs to be sorted for you. So much of the success or otherwise in any ytreatment we receive is confidence that things will work, and at the moment, yours must be a bit battered, to put it frankly.

I do hope you and your team can start to reduce these hypos, and certainly the severity of them, quickly. It can't be much fun, for sure.
 
@andbreath thanks for you comment
It really is hard for me because I'm normally an easy going person. My comments last night were not normal. I apparently went unconscious in the ambulance.
Yes, I go hypo very quickly and your comments about my pancreas having a bit of a rest might be correct. When I was first started on insulin I didn't get hypos. The other thing, and I told my doctor this this morning, is that the hospital meals are probably twice the size of what I'd normally eat. He's spoken to the people who give me my food and I'm getting smaller servings now in the hope that they can adjust my doses more appropriately. There's no point in adjusting my doses to suit 2x the food I normally eat and he agreed.

I hadn't thought about my CGM. Well I did yesterday, but forgot. I currently have a libre and the alarm is set to go off at 4.2. But it doesn't. It'll go off when I'm 2 something which is not ideal. I don't know if that's because of how frequently it measures or a software error. I've written a note to ask the Dr about this, thanks for reminding me.

They've changed me to a sliding scale for my bolus injections. Before today I was on fixed doses, but now I can adjust based on how low I am before eating.

Yeah things need to be fixed. I can't keep having these hypos, they make me become a monster apart from probably being dangerous. I'm very tired today but thinking lucidly (I think). It's not fun. It scares me and it scares my mum who lives with me because she doesn't know how to handle the lows or my behaviour changes. Apparently last night I refused to have my glucose tube. I can't remember that at all and it makes no sense. But mum wouldn't lie. I remember the numbers going up and down like crazy but the rest is just a blur. I do not, for example, remember going unconscious in the ambulance and only know it because the Dr told me I did
 
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