I'm 1.7. Again

[zand]

I didn't think any of your comments were inappropriate. I've seen alot worse. You were obviously very worried and rightly so, and that came over in your posts.

 

[AndBreathe]

@andbreath thanks for you comment
It really is hard for me because I'm normally an easy going person. My comments last night were not normal. I apparently went unconscious in the ambulance.
Yes, I go hypo very quickly and your comments about my pancreas having a bit of a rest might be correct. When I was first started on insulin I didn't get hypos. The other thing, and I told my doctor this this morning, is that the hospital meals are probably twice the size of what I'd normally eat. He's spoken to the people who give me my food and I'm getting smaller servings now in the hope that they can adjust my doses more appropriately. There's no point in adjusting my doses to suit 2x the food I normally eat and he agreed.

I hadn't thought about my CGM. Well I did yesterday, but forgot. I currently have a libre and the alarm is set to go off at 4.2. But it doesn't. It'll go off when I'm 2 something which is not ideal. I don't know if that's because of how frequently it measures or a software error. I've written a note to ask the Dr about this, thanks for reminding me.

They've changed me to a sliding scale for my bolus injections. Before today I was on fixed doses, but now I can adjust based on how low I am before eating.

Yeah things need to be fixed. I can't keep having these hypos, they make me become a monster apart from probably being dangerous. I'm very tired today but thinking lucidly (I think). It's not fun. It scares me and it scares my mum who lives with me because she doesn't know how to handle the lows or my behaviour changes. Apparently last night I refused to have my glucose tube. I can't remember that at all and it makes no sense. But mum wouldn't lie. I remember the numbers going up and down like crazy but the rest is just a blur. I do not, for example, remember going unconscious in the ambulance and only know it because the Dr told me I did

Plantae, it would be really useful for your Mum to have some support, to help her better understand your condition and how hypos work. I’m NOT suggesting that so that she can be your career, or accountable in any way, but so that she can understand some of the things that happen just aren’t in your control.

Your Mum obviously loves you very much. She needs a bit of care from your NHS team too.

 

[JoKalsbeek]

Some of my comments last night were not appropriate. It's very easy to see now that my BSL is back in the normal range. My only defense is that I was so low I don't think I knew what I was doing. That's no excuse, but maybe a reason. I should not have been on the computer at all. I'm embarrased by some of them. All I can do is say that I'm sorry and ask for forgiveness and if not forgiveness then understanding

I missed the whole thing, didn't read anything until this morning, but... It was a hypo. They happen. And you can't be held accountable for anything you said or did then, because your brain just doesn't work like it should when that occurs. Don't beat yourself up for something you had no control over. I'm just glad you got the help you needed!

Hugs!
Jo (Who used to get combative during hypo's brought on by gliclazide, waaay back in the dark ages)

 

[EllieM]

Apparently last night I refused to have my glucose tube. I can't remember that at all and it makes no sense. But mum wouldn't lie. I remember the numbers going up and down like crazy but the rest is just a blur. I do not, for example, remember going unconscious in the ambulance and only know it because the Dr told me I did

I can totally relate to this. I have been known to deny I'm hypo when I'm low enough. ( And my family have a really annoying habit of accusing me of being hypo if I'm just upset.)

I've always thought that hypos are the worst thing about being T1, I hate and loathe them. And yes, if I am low enough I have no memory of what I've done or said. (And no responsibility, a hypo brain isn't rational)

For me, cgms have made a massive difference to my hypo management and fear. In the past I've lost hypo awareness after having too many hypos and I've had to raise my levels to regain that awareness. My cgm both warns me (mine is set at 4.4) so I can treat before I go too low and cuts down on the number of hypos so that I keep my hypo awareness (which isn't as good as it was 40 years ago but just about warns me when I'm in the 3s).

There are quite a few people having issues with libre alarns at the moment (I believe it's a problem with the latest android update???) . You could certainly ask about a reader or a different cgm (dexcom?) if they aren't working for you, because you clearly need those alarms.

Good luck, please try not to get too discouraged. Hopefully in a year's time you will be able to look back on this and smile, because you will have sorted out your insulin needs and dosing.

Virtual hugs from one hypo hater to another.

 

[plantae]

Doctor has just come and seen me. Do these people ever sleep?! I'm off the sliding scale, which was only started today, and going onto doses based on my carb intake. Edit: means another day in hospital to monitor but I guess I can handle that

 

[bulkbiker]

Some of my comments last night were not appropriate. It's very easy to see now that my BSL is back in the normal range. My only defense is that I was so low I don't think I knew what I was doing. That's no excuse, but maybe a reason. I should not have been on the computer at all. I'm embarrased by some of them. All I can do is say that I'm sorry and ask for forgiveness and if not forgiveness then understanding

Don't beat yourself up about it.. you weren't well and we're used to robust argument here!

Very glad to hear you are feeling better.. that's what is important .. not a few ruffled feathers..

What I was going to ask yesterday but then saw your "very low post" was were you confusing ketosis and ketoacidosis when talking about diet?

 

[bulkbiker]

Doctor has just come and seen me. Do these people ever sleep?! I'm off the sliding scale, which was only started today, and going onto doses based on my carb intake. Edit: means another day in hospital to monitor but I guess I can handle that

If you come out more in control of your condition I'd say that's a day well worth spending.

 

[EllieM]

Doctor has just come and seen me. Do these people ever sleep?! I'm off the sliding scale, which was only started today, and going onto doses based on my carb intake. Edit: means another day in hospital to monitor but I guess I can handle that

Totally worth waiting another day if it gives you a better regime.

There are 3 basic features of a basal/bolus regime for a T1 such as myself (well at least this is how I understand it)

1) The basal,: keeps you level when you are not eating. Typically if you go to bed with no food or short acting insulin in your system, your basal should mean that you have a roughly flat line overnight.
2) insulin ratio for meals. This can vary drastically - some people need 1 unit of insulin for 20g of carns, whilst others need 1 unit for 1g. And some people find the ratio is different at different times of day. In any case, it allows you to match your insulin to your food.
3) Correction ratio . This tells you how many mmol/L 1 unit of insulin will reduce your blood sugar by. If your levels are high before a meal, you take more imsulin. If your levels are low, you take less insulin for the food in your meal.

Hopefully this should give you more control of your levels, though you'll need to do some careful record keeping to calulate the doses and rations

Good luck.

 

[Melgar]

My heart goes out to you plantae. I have had a few f***** up lows and your mind goes all freakin weird. It is a very scary place. We are all standing there right with you. Big hugs.

 

[plantae]

I've kept a record of my diet since 2019. I think this is why the doctor suddenly decided to change my regime -- I don't know that for sure though. I don't keep a record every day, but most days.

Basal they think they have right because I was on fluids only until lunch today and they weren't concerned about the levels. The only concern is that when I had my basal last night I dropped very, very quickly. I think 4 mmol/L in one hour, from memory. My phone is charging so I can't check. They're a bit concerned about that but that's why I'm staying in hospital.

They have not talked to me about correction ratios yet. Maybe because every time I'm in hospital I'm stupidly low. I expect they'll have to though. I'm just very happy that they are going to allow me to adjust my doses. Breakfast and lunch are no problem because I have about the same amount of carbs. Dinner is a big problem though

 

[plantae]

My heart goes out to you plantae. I have had a few f***** up lows and your mind goes all freakin weird. It is a very scary place. We are all standing there right with you. Big hugs.

I'm really sorry about last night. Although I typed what I typed and accept that it was not me. I can't explain it

 

[plantae]

Don't beat yourself up about it.. you weren't well and we're used to robust argument here!

Very glad to hear you are feeling better.. that's what is important .. not a few ruffled feathers..

What I was going to ask yesterday but then saw your "very low post" was were you confusing ketosis and ketoacidosis when talking about diet?

I have just read that post (I think I read the right post). I honestly have no recollection of even writing it. I'm sorry

 

[Deleted member 567281]

I'm sure everyone was just worried about you - I'm glad you're feeling better.

 

[Melgar]

I'm really sorry about last night. Although I typed what I typed and accept that it was not me. I can't explain it

[B]plantae[/B] you certainly don't have to apologise, we all just want to see your sugars in the normal range and that your team will make sure this happens. And reading all the comments here you have a lot of support. Sorry for the bold type face , I can't get rid of the bold.​

 

[plantae]

[B]plantae[/B] you certainly don't have to apologise, we all just want to see your sugars in the normal range and that your team will make sure this happens. And reading all the comments here you have a lot of support. Sorry for the bold type face , I can't get rid of the bold.​

I don't mind bold

 

[Jaylee]

Some of my comments last night were not appropriate. It's very easy to see now that my BSL is back in the normal range. My only defense is that I was so low I don't think I knew what I was doing. That's no excuse, but maybe a reason. I should not have been on the computer at all. I'm embarrased by some of them. All I can do is say that I'm sorry and ask for forgiveness and if not forgiveness then understanding

Hi,

No worries. That what mods are for.

I’ve been handling hypos for over 46 years.. it’s taken the first 2 years to hold myself together & just treat whilst holding my composure in mixed company?

Give yer mum a hug.

 

[plantae]

Hi,

No worries. That what mods are for.

I’ve been handling hypos for over 46 years.. it’s taken the first 2 years to hold myself together & just treat whilst holding my composure in mixed company?

Give yer mum a hug.

I'll give my mum a hug. She and some mods on here saved my life even though I was 100% irrational

 

[plantae]

Not just the mods on here. Everybody. I could have died last night and apart from my apology I'd like to thank you all

 

[Lamont D]

Before diagnosis, when constantly in hypoglycaemia, most of which I don't remember I called it my hypo hell.
I wasn't me! Mood swings, anger, rage, then quiet and away from people, scared of my actions, had to get away from the dark thoughts and the symptoms, eyes, constant headache, tiredness, irritability, the little things would upset me.
So I understand, you're not yourself, there is no need to apologise, if I'm correct, I have been warned about what I've said on here many times, doesn't mean that your personal experience isn't of value even if it is in difficult circumstances.
One of the reasons I am still coming to the site, is my experience of my condition and understand everybody's experience of what confusing information is out there..

Keep safe, keep asking, stop apologising.

 

[bulkbiker]

I have just read that post (I think I read the right post). I honestly have no recollection of even writing it. I'm sorry

No prob... get well soon x