I'm lost

Domi0205

Well-Known Member
Messages
59
Hi, I'm Domi, I'm 18 year old and I was diagnosed with diabetes type 1 since 23 September 2018 and from that day I have no idea what to do anymore. My family started to hate me now, saying its my fault and not wanting to have a proper conversation with me.. my friends... Well I don't have friends anymore just because of that and I almost was kicked out from college. I feel awful and like a trash because this destroyed my dreams of being a pilot..
I honestly lost and don't know what to do

My diabetic nurse suggested me to sign in to this app to maybe help me or something but idk...
Sorry that the message is so depressing
 

Domi0205

Well-Known Member
Messages
59
I've got from NHS a book and tons of leaflets showing what could have happened but they refused to read it
 

Angelofthemarches

Well-Known Member
Messages
848
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
Horrible shoes
Hi Domi
You are welcome here! You will get a lot of support and help from this forum.
First of all, I'm just tagging @daisy1 to give you the very basic information about diabetes. There is no need to despair about it - it will just take a little while to get your head round it.
Sending you a hug
Angela xxx
 
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Resurgam

Expert
Messages
9,868
Type of diabetes
Treatment type
Diet only
There are other things which could have stopped you being a pilot - the diabetes is only going to be a massive problem if you let it be - though I am sorry that I can't give you any more advice than you should take the time you need to look after yourself as your birthright - and if there are those who consider it is somehow your fault - they have not got a clue about it.
As you are 18 you would be an adult person in your own right in most places - you don't have to go on in the same way. If you options have changed perhaps there is someone at college you could consult to discus what you might do - there should be someone able to talk sense about the various opportunities open to you.
At your age I was at the point of leaving home and family and friends behind, heading for university, employment, marriage - so perhaps I don't quite understand your need for them. Check with your college to ensure they are up to speed on what might be needed - maybe show your tutors how to take a bloodtest and tell them what would be high or low. At least they should be interested as they should have a duty of care whilst you are with them.
 
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Antje77

Oracle
Retired Moderator
Messages
19,464
Type of diabetes
LADA
Treatment type
Insulin
Could it be worthwhile to discuss this with your GP or diabetes team? Having your family and friends act like this is not something easily dealt with on your own. Maybe some psychological aid could make things a bit easier for you.
 
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Domi0205

Well-Known Member
Messages
59
There are some Type 1 Diabetic pilots on this forum so maybe continue with your dream.....
When I was in the hospital for few days when I was diagnosed the doctor specialises in diabetes asked me what I want to do in future I said to become a pilot and he just said to change the future career to something more " normal" as he said
 

Domi0205

Well-Known Member
Messages
59
Could it be worthwhile to discuss this with your GP or diabetes team? Having your family and friends act like this is not something easily dealt with on your own. Maybe some psychological aid could make things a bit easier for you.
Yeaaa.... I need to change my GP
 
K

Knikki

Guest
Well T1D is an interesting thing, nobody wants it but once you have it you can't get rid of it. Well not at the moment, there is a fare amount of research going on which maybe give us something in the near future that will get rid of the need for finger pricks and injection.

Thing is DON'T PANIC. There is lots of info around, on this forum, on the web as whole. Get comfortable with your DSN team because e as you are newly diagnosed then early days will be tricky.

So long as you keep a track of what is going on, and beware of some of the pitfalls, then there is no reason that T1D should stop you from doing anything.

I was 18 mths old when diagnosed in 1965 so I have grown up with it been through many various treatments, insulins, new tech etc etc and still here and still have all my bit attached :)

There is somewhere on the Forum a Young Persons thread plus a place to seek friends so see if anyone knows of a Diabetes Club or meet up for a coffee.

Don't stop asking questions and there is usually someone around even if it an old fart like me who can usually help out.

Good luck, chin up and don't let T1D stop you from pursuing your dreams.

If Theresa May can be PM of country with T1D then hey worlds our oyster.
 

HSSS

Expert
Messages
7,474
Type of diabetes
Type 2
Treatment type
Diet only
It’s incredibly harsh of your family to not support you and they obviously have no idea about diabetes. Is this usual behaviour from them or out of character. It’s understandable that although now an adult you still want their support and feel let down by the lack of it. Why would your friends turn away from you because of diabetes? Is it possible your own emotions are clouding your assessment of their actions? It’s a tough adjustment for you and also for those that care about you.

That said in here you will find all sorts of help and support, especially if it’s lacking irl. Talk to college and a gp or nurse asking for more support. Get you head round this then decide where your dreams lie. Life isn’t always a straight line and new opportunities will always occur and can be sought out. You’re still young and have time even if the route isn’t clear yet. Too much pressure is on people your age to have a life mapped out in detail right now. Lots of people change their minds or have obstacles and get there a few years down the line.
 
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JAT1

Well-Known Member
Messages
565
Type of diabetes
Type 1
Treatment type
Insulin
Hi Domi - As long as you manage your blood glucose and continue to learn, learn, learn about type 1 and about how your blood glucose is affected by what you eat, do and feel - that's the most important thing by far. Your diabetes has exposed truths you weren't aware of before. You need to find new friends and move out on your own. Let things take the time needed. You need to get away from the negativity generated by the people in your life or learn to completely ignore it. And your doctor had no right to say your dream of being a pilot is not "normal". Your inner strength will grow. Don't ever give up on your dreams !!
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Domi0205
Hello Domi and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
Hi @Domi0205, Welcome to a great group of individuals all with blood sugar troubles of some sort.
I was 13 when diagnosed with T1D, 52 years ago. My dreams of becoming an astronaut were dashed (A childhood dream prompted by all the events occurring in those days).
What diabetes did was push me along into becoming a doctor - back when there were no glucose meters, fancy insulins, pens and pumps. Have I regretted the loss of my original dream? NO, I think being diabetic helped me become a better doctor.
And these days the technology for diabetics is so much better that some occupations previously banned for diabetics are being opened.
How I compensated I think for the restrictions on what I could and could not do was to become as independent as possible - doing week long canoe trips through wilderness country, similarly with hiking trips, cycling etc..
What stopped my continued push against diabetes and its constrictions was listening to the GP who originally diagnosed me.
He asked me: Who was I trying to impress? What was I trying to prove? Was is worth it?
I came to realise that just living well with diabetes, accepting it for what is was (swear words and all) was enough of a challenge.
And what do I think about Type 1 diabetics climbing Mt Everest now? I think on the one hand it is an achievement, but on the other, but how many other people did they put at risk for the sake of glory? They had to have a support team and the risk of their diabetes causing trouble, plus all the more usual risks meant that the overall risk is greater. The climb was not essential. No-one's life was going to be saved, improved overly by climbing Mt Everest. It was all about ego.
So know how you end up with whatever decision you make about your career. Why a pilot? How long do pilots stay flying as a career.? What other parts of one's life may improve or suffer as a consequence? A list of pluses and minuses. and talking with some pilots along the way. The same applies to anyone, whether diabetic or not looking at a range of careers.
Also what are your interests and hobbies? Sometimes we end working in a field we love second best after our favourite interest or hobby.
Even in medicine I ended up in 7 different types of medical practice throughout my career.
As a pilot, how much might one end up actually flying an airplane as opposed to flying a desk? How much control does one have over how a career pans out.
I was lucky to be able to choose work in which I could keep moving, even if the work was often desk and consulting room based at times. Exercise was important to me in controlling my diabetes. Sitting in a chair steering a craft for hours would drive me bonkers particularly if it was stressful at times.(not that any good job is stress-free)
By all means follow your dream, just make sure it is aligned with reality !!
Please keep posting and asking questions as you progress through managing your diabetes. We have made enough mistakes in real life (as opposed to simulators) to tell most people something about diabetes!!
Talking about flying: Most things are possible. Good Luck and Best wishes!!

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kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
Hi again @Domi0205, A lot of people I have meet in my life so far and fearful of becoming diabetic. They have had a relative who suffered with it, or are scared of the thought of having needles and so on. It is possible members of your family are scared and maybe putting the blame on you and refusing to read about diabetes is a defence against that fear. And staying ignorant about the real facts about diabetes these days, as opposed to years ago, is all part of it.
Give them time. Yes it is rough on you, just when their support is something you may have counted on in the past.
As others have said, finding a peer group of people with diabetes, going on-line as you have, confiding in good friends is the way forward.
And in coping with things make sure you develop and use humour: I used to call injection time - javelin practice; the husband and son of mother with diabetes would bet on what the mother's Blood Sugar Level (BSLs) before dinner would be, and the loser would do the washing up!
Unexplainable blood sugars would be the work of a diabetes gremlin, invisible carbohydrates or the weather.
And before smarter insulin pens that can tell you when you last had an insulin injection, no smaller number of us have doubled up on a dose -if done a night time with say long and short acting insulin you could end up at an all night ice-cream parlour to keep low BSLs at bay (great excuse but too much ice-cream can be a problem to)!!
Best Wishes finding supports and your family coming around.
Oh, And i found another occupation for you - captaining this ship. :):):)

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