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I'm struggling and feeling alone.

A

AmandaJ123

Member
Messages
13
Type of diabetes
Type 1
Treatment type
Insulin
Lately I've been really struggling and stopped taking care of myself and loosing control of my Type 1 Diabetes.
I find it hard to speak to people about this as normally as I'm strong and deal with it all myself.
I just need some help and maybe tips on getting back into it and getting myself better.
I would really appreciate it.


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Hey @AmandaJ123 Sorry to hear of your struggles, can you tell me why you feel like this and was there a trigger for this happening ? I know from experience that once you start running high it will get you down, so can you take some small steps today to get back on track, like doing a bg test before each meal time and take your quick acting to cover it ? It's a case of breaking the cycle and maybe focussing on something positive about yourself. Would a call to your team to talk through what your experiencing too so your not going it alone ?
 
Hello @Juicyj :)
My triggers are when family problems are going on which is hard :(
I'll try some small steps and see if I can keep it up!
I am feeling more determined than I have the past fews weeks, I think it's because I'm feeling ill.
I'm too ashamed to speak to my nurse and embarrassed of letting people down. I should be able to cope alone but I'm just finding it so hard X


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Don't be ashamed of speaking to your DN and admitting you need help, there's plenty of people on here that have done just that and actually been surprised by their DNs understanding.

As juicyj has said small steps back to being your old self, or if you don't want to go back, your new self! There you go theres your focus on something positive, your new and improved self!!
 
You have already made a good start asking for help. There are a lot of people here who will offer advice. Keep going with the small steps and be patient with yourself. Plan for the future you and slip in some exciting treats along the way.
 
Thankyou for the support.
I'm just struggling at the moment and feeling not very supported so hopefully being on here will help me.
I really want to become a new me and a healthier me.
I'm starting to worry my slight social anxiety is hindering me as I am not comfortable doing anything diabetes related around people which is obviously a big issue X


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Hi Amanda - it's easy to put your diabetes in the back burner but as you know you need to put yourself first - you are the priority above everything else, please look after yourself. I ignore everyone around me now when testing or doing my diabetes stuff, it's almost like an act of rebellion in so much as I don't care what anyone else thinks it's what I have to do, I guess this has certainly cracked any anxieties I had about feeling self concious but definitely helps me get on with it.

Each day is a fresh start too, take care lovely ;)
 
I'm really going to start trying and look after me. Going to try not to care what people may be thinking!
Time to try and be strong


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AmandaJ123 said:
Thankyou for the support.
I'm just struggling at the moment and feeling not very supported so hopefully being on here will help me.
I really want to become a new me and a healthier me.
I'm starting to worry my slight social anxiety is hindering me as I am not comfortable doing anything diabetes related around people which is obviously a big issue X


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Click to expand...
Hi Amanda
Are you local to London, if you are we run regular meetups in Central London. Meeting a group of other T1d's might help with your anxiety around diabetes when out and about. Being with 15 other type ones when eating means it is natural to check BS and inject in front of others. A few people have found this to be a help overcoming that hurdle

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AmandaJ123 said:
That's sounds good :) unfortunately I live in Cambridgeshire x


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Click to expand...
Ahhh that's a shame. It might be worth looking at train options though, we have a regular from Cambridgeshire who comes to most meetups. Once we had a guy come all the way from Birmingham!! Well worth the journey in my opinion. Feel free to bring a friend if the journey worries you

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Hi Amanda,

I live in Cambridgeshire too I have struggled with my sugars for quite a few years (I was diagnosed at 12 now 26) and only in the last year or so, since I got married in August, and started to think about babies, that I have really been trying to get better control. I was doing really well, brought my HbA1c down from >10% to 7.2% but then I got super stressed out with so much going on in work/personal life I resorted to ignoring my diabetes again. My latest HbA1c was 8.5% I started again by just doing tests whenever I remembered and bolusing before I ate - otherwise I would forget. As someone else said start small and it becomes routine.

I had seen a post about the London meet ups and had meant to ask more about them? I think it would help me immensely to speak to other diabetics who may be on similar positions pre-pregnancy or have been through it. I can't find much online about it all! Nurses are great, but they haven't got the firsthand experience.
 
Pilzy-89 said:
Hi Amanda,

I live in Cambridgeshire too I have struggled with my sugars for quite a few years (I was diagnosed at 12 now 26) and only in the last year or so, since I got married in August, and started to think about babies, that I have really been trying to get better control. I was doing really well, brought my HbA1c down from >10% to 7.2% but then I got super stressed out with so much going on in work/personal life I resorted to ignoring my diabetes again. My latest HbA1c was 8.5% I started again by just doing tests whenever I remembered and bolusing before I ate - otherwise I would forget. As someone else said start small and it becomes routine.

I had seen a post about the London meet ups and had meant to ask more about them? I think it would help me immensely to speak to other diabetics who may be on similar positions pre-pregnancy or have been through it. I can't find much online about it all! Nurses are great, but they haven't got the firsthand experience.
Click to expand...
Would be great to see you at our meetups
Check out the stickies at top of type one forum
Also our Facebook group https://www.facebook.com/groups/864727986969226/

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Amanda, it's well worth persevering. Test before a meal, good tip, ask your diabetes team about adjusting the meal insulin dose according to b.s. level: 1 unit (Novorapid) to bring it down by 3 works for me, or eat less carbohydrate at that meal. Since I have cut down the amount of carb's I eat at a meal (and take proportionally less insulin, obviously) my blood sugars have been less erratic but DO seek medical advice before trying these out on your own. It's not an easy road, but I have been T1 for 57 years now and I am gradually getting better at it!
 
And good luck. We all need that. (You have this network behind you.)
 
So nice to hear that I'm not the only person wanting help! Finally starting to not feel alone!
Look back through the comments Type1Bri and maybe message the person who commented and they could help with more information?
Thankyou TJR56 for be advice :)
So nice to be able to speak to other people!


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Pilzy-89 said:
Hi Amanda,

I live in Cambridgeshire too I have struggled with my sugars for quite a few years (I was diagnosed at 12 now 26) and only in the last year or so, since I got married in August, and started to think about babies, that I have really been trying to get better control. I was doing really well, brought my HbA1c down from >10% to 7.2% but then I got super stressed out with so much going on in work/personal life I resorted to ignoring my diabetes again. My latest HbA1c was 8.5% I started again by just doing tests whenever I remembered and bolusing before I ate - otherwise I would forget. As someone else said start small and it becomes routine.

I had seen a post about the London meet ups and had meant to ask more about them? I think it would help me immensely to speak to other diabetics who may be on similar positions pre-pregnancy or have been through it. I can't find much online about it all! Nurses are great, but they haven't got the firsthand experience.
Click to expand...

Hey I've been through pregnancy and am currently working my Hba1c down ready for baby number 2 if you want to chat?x


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i'm far far away so can't offer meetups, but don't be sad, you're strong! dealing with it all by yourself and having come so far... type 1 are some of the strongest willed people i've seen even though we are quite prone to depression and rarely understood, but we're made of iron because we make a conscious decision to survive everyday when we poke ourselves with needles and we will.
on difficult days, i just pretend that i'm an alien shipwrecked on a planet that i can't live properly on and have to do injections until my mates come rescue me. :) hope that helps.
 
CarlyB said:
Hey I've been through pregnancy and am currently working my Hba1c down ready for baby number 2 if you want to chat?x


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Hello thanks, that would be great! I have sooo many questions that the nurses can't really answer your 2nd you say, so you have been through it and done it all once already? How is your HbA1c at the moment? As you saw mine went up really really trying with the sugars now to make the next one below 7%!


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Pilzy-89 said:
Hello thanks, that would be great! I have sooo many questions that the nurses can't really answer your 2nd you say, so you have been through it and done it all once already? How is your HbA1c at the moment? As you saw mine went up really really trying with the sugars now to make the next one below 7%!


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Click to expand...
Sorry I've only just seen this!

Yes I've been through it already. It's the same process as not being pregnant but your parameters for blood control are much stricter. Your bloods shouldn't go above 8 while pregnant.

My HbA1c was 7.4 in March - not good! Trying to lower it ready for baby no 2 but because I'm honeymooning my sugars are all over the place! Some days good, some days bad and there's no predictability to it. Very frustrating.
 
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