Thanks so much Lamont, I’m working my way through your posts and all hugely helpful.
So I’ve had M.E since age 13 (now 37!) albeit managed fairly well after the first few years. However had lots of the symptoms you all talk about, notably extreme fatigue, passing out episodes, shakiness etc. Passed out on a plane on our honeymoon last year!
Recently I had gynae surgery in February and have had huge issues recovering since then. I sought the advice of an endocrinologist in May as my fatigue and sleepiness just wasn’t improving. After a serious of blood tests my hbac1 came back as low (below scale) and thus this week I’ve been in hospital for 4 days having the OGGT and 72 hour fast test. Bloods went down to 2.8 (Lower on bloods in lab) and not much above 3.1.
Confirmed as non diabetic reactive hypoglycemia however awaiting the full picture of results next week once all the bloods have been analysed together. I had stomach surgery a few years ago and my consultant feels it’s likely I have that type of RH.
I’m feeling glad that I have some answers (possibly after years) but also daunted as to how to go forward. My endo will talk me through everything next week.
Thanks again for the info and support.
That's daunting but you must have a really decent endocrinologist and some great support, and it can be a relief to find out what is actually going on and getting a true diagnosis.
It is possible that the stomach surgery, could be the cause for the RH, but I leave that to the tests to get them answers, but one thing I've discovered about RH is how different we all are, wether, symptoms, causes, other conditions and more importantly how we treat it.
One of the big questions is if all the so called healthy foods, for instance staple foodstuff, like bread, potatoes, fruit, are triggering the insulin response. How did our body change to cause this?
We know the why, but the history is obscure.
My endocrinologist and I, have had some interesting things to discuss about dietary control, yours will be different to mine, because I don't have those other conditions that you have.
So testing is important, a glucometer or cgm, will be a great tool to use, a food diary is a must.
I hope you get your head around what is happening to you.
My 72 (actually 80 hrs) hours hospital test was very interesting to my start to understand what my body was telling me for years, it was what I was putting down my throat, thanks to all those medical care team that didn't have a clue, that non diabetic people do get hypos! It was the recommended diets that was slowly and steadily killing me.
I learned about how my body likes fasting and my energy levels increase fasting, that avoiding the triggers, would get rid of the excess weight and because of a very low carb diet, made me healthy, and I got my life back.
Discuss with your endocrinologist, how the other conditions and how RH will effect any dietary control that you wish to try.
Fats, protein are your future, which ones you choose, with the limited carbs, is going to be critical to your future health.
Keep asking, the more information you get, the more knowledge you gain, which will help you in the future, there is no cure, no magic pill, there is relatively new meds, that can help, but they don't stop the hypos if you go hyper.
Best wishes