@donnellysdogs I've been on the pump 7 years and before I was on 4 injections a day. I used to get on with it really well but it doesn't seem to be working any more. And I'm having trouble with the insets going in
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I had had 5 years pretty **** brilliant controland then i got constant highs straight after set changes.
I have tried 3 different pump cannulas and all of the sets possible!
Do have a go at possibly changing set or length of them as well, may help.
After using for 7 years I am guessing that you know to try different areas.
(Mine wouldnt even work in pretty much unused stomach!)
Are you getting occlusions or rises after set changes that cant be explained and having to correct by pen?
According to my hospital consultant I am not the only one to come off a pump and I do know tgere wasanother member here that also came off. I also know of a teenager that came off it but not due to set problems.
Its worthwhile discussing with your consultant and DSN sooner rather than later if you've tried everything and still struggling.
Log everything, time of change, if eat, or not, rises etc and uf you corrrect or go back to pen to correct and hiw ling occlusions take to alarm.
My worst episode was trying and had five failed cannulas in a row.. took a photo of them as it was all within 12 hours! That convinced consultant and my records that things were really not good with cannukas in my skin..
Injections still work fine but not in my stomach. Havent used that area more than a dozen or so times in 30+ years and it just does not accept injections or cannulas.
I think the small doses I was on wasnt enough to get pushed through my skin rejections. I have no lumps or bumps anywhere.
Pumps are newish technology and it isnt really established how our bodies react having cannulas feeding insulin in to us all the time 24/7/365. There may well be more people in years to come that have longterm probs with sets and skin.
However before jumping the gun, so to speak, do speak to your team and log everything carefully and also possibly try different length cannukas or different type if you are able. I am too lean for plastic cannulas and always had kink problems with them.