1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Just been told to shield

Discussion in 'Ask A Question' started by Doireallyneedanams, Feb 18, 2021.

  1. HSSS

    HSSS Type 2 · Expert

    Messages:
    5,499
    Likes Received:
    2,721
    Trophy Points:
    198
    Found some interesting lists. These show the approximate weighting attributed to each factor which might go some way to explaining surprising results

    9AB469E3-8C05-42B8-AA5E-17F8A8308BA5.png 2F2F0F39-992C-455E-9D6A-F63BEDC2AA11.png 25523897-4B32-4FA7-A5C1-E6424F1329F3.png
     
    • Informative Informative x 2
  2. HSSS

    HSSS Type 2 · Expert

    Messages:
    5,499
    Likes Received:
    2,721
    Trophy Points:
    198
    And this one basically says any gestational diabetes history is treated the same as current type 2 :( which i for one find surprising

    D1DF5544-33B7-4E94-9903-D1E64F83C7AE.png
     
    • Informative Informative x 1
  3. Amrit1712

    Amrit1712 Type 1 · Well-Known Member

    Messages:
    107
    Likes Received:
    55
    Trophy Points:
    68
    My risk group was 37/100 but I've been told to shield.

    I found that the threshold recommended for shielding is

    >0.5% for absolute risk
    >10 for relative risk

    My absolute risk was 0.0014% as I'm only 21 but my relative risk compared to people the same age and sex was 14 so even though I have a very low absolute risk I've still been told to shield so think they're been over cautious and take it with a pinch of salt.

    Ultimately I think the risk group has little relevance its more to do with your risk results. I also found that location is a key factor and so is ethnicity. Both factors for me raised my relative risk by 4 each and near enough doubled my relative risk compared to if my only risk factor was t1 diabetes.

    Hope this helps! Screenshot_20210219-170316_Chrome.jpg
     
    • Agree Agree x 1
  4. KK123

    KK123 Type 1 · Well-Known Member

    Messages:
    3,767
    Likes Received:
    2,393
    Trophy Points:
    198
    I doubt VERY much whether that level of depth entered into the equation! x
     
    • Agree Agree x 2
  5. Doireallyneedanams

    Doireallyneedanams · Well-Known Member

    Messages:
    135
    Likes Received:
    14
    Trophy Points:
    58
    I read that differently. I think it’s because they are aware of the risks after GD, yet many don’t have follow ups and are undiagnosed diabetics. This, coupled with another risk factor would probably push you over the edge here and get you sent a letter. Much like many diabetics have too, it seems.
     
  6. Doireallyneedanams

    Doireallyneedanams · Well-Known Member

    Messages:
    135
    Likes Received:
    14
    Trophy Points:
    58
    Why are lots of prediabetics with other risk factors not being told to shield though? Haven’t seen any posts about it!
     
    • Agree Agree x 1
  7. MarkHaZ123

    MarkHaZ123 · Well-Known Member

    Messages:
    137
    Likes Received:
    76
    Trophy Points:
    48
    Strange isn't it. I'd never if expected to get one
    Just done the score on that link above and got 62/100 so middle of the road really.

    Might ring the docs on Monday and just ask them for some background on why. I need to ring them anyway for old medical records of an old surgery Iv had
     
  8. HSSS

    HSSS Type 2 · Expert

    Messages:
    5,499
    Likes Received:
    2,721
    Trophy Points:
    198
    Exactly. Whilst I hear your point that past gestational women may be undiagnosed and may be at risk, those already diagnosed are definitely at greater risk rather than just potentially. Additional risk factors apply to everyone so doesn’t change the reasoning imo.
     
    • Agree Agree x 1
  9. Doireallyneedanams

    Doireallyneedanams · Well-Known Member

    Messages:
    135
    Likes Received:
    14
    Trophy Points:
    58
    So why GD then and not prediabetics? My anxiety would significantly ease if I didn’t feel there was a huge piece of the puzzle missing that somehow makes me incredibly vulnerable to Covid.
     
  10. lucylocket61

    lucylocket61 Type 2 · Expert

    Messages:
    5,614
    Likes Received:
    2,411
    Trophy Points:
    178
    The missing piece of the puzzle is probably just some silly glitch in an algorithm, due to it having to be put together quickly.

    Please don't see it as sinister. I suppose it's better for them to be overcautious by mistake. The opposite could be deadly.

    It's up to you what you decide to do. I really don't think it's a case of you being in special danger personally.
     
    • Like Like x 1
    • Friendly Friendly x 1
  11. Doireallyneedanams

    Doireallyneedanams · Well-Known Member

    Messages:
    135
    Likes Received:
    14
    Trophy Points:
    58
  12. bulkbiker

    bulkbiker Type 2 · Oracle

    Messages:
    18,398
    Likes Received:
    12,248
    Trophy Points:
    298
    I had a call this afternoon asking me to book which I politely declined so maybe we are moving up the queue.. I thought I would have been Group 8 expecting contact in May.
     
  13. Doireallyneedanams

    Doireallyneedanams · Well-Known Member

    Messages:
    135
    Likes Received:
    14
    Trophy Points:
    58
    Why did you decline? If you don’t mind me asking
     
  14. bulkbiker

    bulkbiker Type 2 · Oracle

    Messages:
    18,398
    Likes Received:
    12,248
    Trophy Points:
    298
    Not interested in being a guinea pig.
    No long term safety or efficacy trials for any of the jabs.
    Must be an "I'm all right Jack" kinda person I guess.
     
  15. Andydragon

    Andydragon Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    2,422
    Likes Received:
    3,233
    Trophy Points:
    198
    You have diabetes, you are group 6. Why did you think you'd be group 8?
     
    • Agree Agree x 2
  16. bulkbiker

    bulkbiker Type 2 · Oracle

    Messages:
    18,398
    Likes Received:
    12,248
    Trophy Points:
    298
    In remission? Officially classed as such for over a year.
     
  17. Andydragon

    Andydragon Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    2,422
    Likes Received:
    3,233
    Trophy Points:
    198
    It's an interesting medical point I guess, we remain diabetic whether we are in remission or not. Some may not agree but if we start eating carbs it'll go back, therefore i believe we are. I may be nearly in remission too but will want to be monitored as a diabetic regardless, what has the impact on us been during any points our bloods haven't been controlled? Can we reverse all damage?

    I think the answer is that according to the NHS, once diabetic, always diabetic, so group 6

    Talking for type 2 here, I don't know about other types (does gestational diabetes reverse itself? But according to others, those are triggering the score system too)
     
    • Agree Agree x 2
    • Like Like x 1
    #58 Andydragon, Feb 19, 2021 at 7:32 PM
    Last edited: Feb 19, 2021
  18. bulkbiker

    bulkbiker Type 2 · Oracle

    Messages:
    18,398
    Likes Received:
    12,248
    Trophy Points:
    298
    I'm not sure I care that much how the NHS classify me though.
    They have proven relatively ineffective in my personal remission.
    Looks pretty likely . my only damage was mild retinopathy which has resolved itself.
    I have "passed" all diagnostic tests for T2 so... am I in remission or cured.. do I care?
     
    • Like Like x 1
  19. Andydragon

    Andydragon Type 2 (in remission!) · Moderator
    Staff Member

    Messages:
    2,422
    Likes Received:
    3,233
    Trophy Points:
    198
    Well quite, you have control of your own health as do we all. I will never say I am cured, as I personally do not believe I am or can be. But that's what I need to keep me in check.

    The shielding question is still unclear, the NHS is determining diabetes flag on our records is important, but very inconsistent
     
    • Agree Agree x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook