JAT1
Well-Known Member
- Messages
- 565
- Type of diabetes
- Type 1
- Treatment type
- Insulin
I have relatives in Canada and they say as soon as someone is diagnosed as T1, they have the islet transfer op?![/QUOTE]
Not where I am.
Not where I am.
Not where I am.[/QUOTE]I have relatives in Canada and they say as soon as someone is diagnosed as T1, they have the islet transfer op?!
I still don't see any indication why he isn't still honeymooning. Don't forget LADA is a form of T1 in that it's auto immune, but it doesn't behave like 'childhood diabetes' does.That was the month before his diagnosis 4 1/2 years ago.
I still don't see any indication why he isn't still honeymooning. Don't forget LADA is a form of T1 in that it's auto immune, but it doesn't behave like 'childhood diabetes' does.
Your posting on a thread with the title: "Keep getting told by people that I can get rid of Diabetes Type one" suggests your post has something to do with that subject. If it's a post about prolonging the honeymoon period in LADA's I suggest you start a thread of your own, as it's off topic.Don't think I ever claimed it did?
I think that you introduced LADA in the first place without reading what the guy on twitter had to say but I'll be bowing out anyway.Your posting on a thread with the title: "Keep getting told by people that I can get rid of Diabetes Type one" suggests your post has something to do with that subject. If it's a post about prolonging the honeymoon period in LADA's I suggest you start a thread of your own, as it's off topic.
He says he's kept healthy bg's for almost 5 years since his T1 diagnosis without insulin.I think that you introduced LADA in the first place without reading what the guy on twitter had to say but I'll be bowing out anyway.
You are assuming.. he's the doctor and has diagnosed himself we have no idea? But I'm out goodbye.That means he has LADA
You are assuming.. he's the doctor and has diagnosed himself we have no idea? But I'm out goodbye.
You've really hit the nail on the head @EllieM I was in a very poor state 10 years ago due to failing kidneys. When I was offered a pancreas at the same time, my immediate thought was 'Why have a fully functioning kidney if the defective islets in my existing pancreas are going to allow the same damage?' I would also say that your pancreas (as did mine) produces lipase and amylase which are vital in the breaking down of fat. My current pancreas is doing that, but I had a very unpleasant scare last year when I had 3 times the acceptable levels of both enzymes in the blood, suggesting rejection. Regarding anti-rejection drugs, they do have side effects, the most invasive in my case being tremors in my hands. Although it feels like I have been cured, I am not classified as such. However, like you, I endured years of "There will be a cure in 5 years..." which can be proved by cuttings going back to the early 60's in my 'museum'. With regard to misinformation or lack of understanding, people who have known me for over 30 years, even knowing that I no longer inject, still say "Oh, of course, you musn't have sugar"!! Keep healthy!Like the others, after 49 years of T1 my faith in a cure in "ten" or "twenty" years has just about vanished, though I'm optimistic for new young T1s.
But the treatment has improved dramatically from my childhood, when the only sugar level test was a test tube, a tablet, 5 drops of urine and ten of water. Glucometers were life changing, and so are cgms (or would be if they worked for me sigh).
There is a (sort of) cure now - I could have a pancreas transplant. (Though obviously that would depend on a match becoming available and the doctors being willing to give me one). Two reasons why I don't want to go down that route - rejection drugs and issues and the fact that though my pancreas doesn't produce insulin it does lots of other useful stuff (glucagon anyone?) and I'd really like for it to continue doing that. But I can see why people go for joint kidney pancreas transplants, as if you need a kidney you might as well get the pancreas too.
And going off topic slightly - given that T1s bodies presumably killed off our insulin producing cells - what's to stop our bodies from killing off any new insulin producing cells that are introduced?
And perhaps some of the educated may not.Some of the more open minded amongst us might find this guy's reports interesting..
https://twitter.com/JcVauthier
No obligation to read it whatsoever..And perhaps some of the educated may not.
I was in a very poor state 10 years ago due to failing kidneys. When I was offered a pancreas at the same time, my immediate thought was 'Why have a fully functioning kidney if the defective islets in my existing pancreas are going to allow the same damage?'
The usual reaction I get is "I've never heard of that!" which is not really surprising as only 200 are done a year in the UK as shown on this link:Now this, I can get my head round..
My wife came back from a hair dressing appointment a good while back. Chatting to the hairdresser (as you would.)
"My husband is a diabetic." came up... "So was mine!" said the stylist.
Turned out his story regarding the new pancreas reflects your account. (My wife relaying it 3rd party.)
Though I get the impression the hairdresser was surprised a transplant wasn't common procedure with all T1s...
Blimey, I've seen tentative claims from the odd member on here, canabis manages BG levels..
Interestingly, I wonder if there may be a slither of truth in that for some folk? It lowers the heart rate and brings about a feeling of immense relaxation (allegedly) so I guess it's not impossible that it may lower circulating cortisol levels and discourage the liver from releasing glucose?
Back on topic...