Ketones DR seems very concerned

[sweetisha]

, Up until a few days ago, I thought I could manage this with diet and exercise and meds, Sadly I have seen people really screw up with insulin and have hypos, I suppose that is the bit worry, just need to get more knowledge

Sounds like its a deeper problem as in thyroid disfunction.. thats really hard to detec t.. only very very special labs can do that not many in the world....Have a look at the vitamins and minerals and that you take and if they are healing your thyroids.. here is an example thyroids need iodine, not jodium in table salt but real iodine.. chuck out table salt, buy himalayan or celtic for cooking etc.. get some good quality supplements for all minerals and iodine and a few vitamins like D3, B12( shot is beter methylcobalamine once a week), B5, B6, B1, B2, magnesium..multi vits even from healthy store have synthetic folium acid that disrupts the cell nutrician of the thyroids so thats a no no... folium acid you get from dark greens...
alpha lipoeic is also good and a tsp of cinnamon a day on food or in drink as juices or smoothies...
other thyroid disruptors are cooking oils,soya, wheat, and a few other grains.. so do a research for the alternatives...
I hope you get a better result soon..
I was put on glicliacide aswell 3 months ago and i was just beginning to go lchf.. and quickly i started to get hypo's as in sweating so i stopped taking them and continued with the metformine and lchf way of eating and taking my supplements... when i went to the doctor after 2 months they were surprised and told me i did the right thing to stop the glicliazide as it lowers your bs very quickly so i could of gone in a coma... they have reduced my meds and want to see me every month now as the turn around is so fast they are excited... I would never have believed that the thyroids are so important to all kinds of autoimmune deseases but now I'm living it so have to believe.. Amy Myers is a good doctor she is on fb aswell as her own site, there is alot of info to find i did 2 years research before i decided to give it a go.. I'm glad i did as i hated going on extra meds...On insulin if you have to go on for T1 you will also benefit from thes supplements and lchf and can eventually get off again..My doctor is happy that i did this research and that i chose to follow it as he is very interested in the results being so fast and positive... so lots of success Tisha

 

[orchidlady]

Wish Gliclazide would lower my bs but it seems to have little effect. I have a massively underactive thyroid on 200 mg of thyroxine so can not really mess around with that. Hope I will get this all sorted soon

 

[donnellysdogs]

It will get sorted, and you will manage whatever Type you are classified as.

What appalled me initially on reading your post is that people are just being sent home with levels from 17 upward (@ally56 as well for example). Why don't hospitals get you under 8.0 before sending home and actually do the type 1 or 2 test when in a&e. Can't be that hard surely to do a test?

I remember 30yrs+ ago and gp just did a wee test on me and was sent to hospital for 4 days for a type 1 to be sorted out. I know things have changed, but people are going through hell to get sorted...not on.

Hoping that hospital consultant will sort you out and you start to feel better soon.

 

[sweetisha]

read on Dr Ben Lynch, Izabelle Wentz( had hashimoto's cured herself is a pharmasist so knows what medicines do what and whats in them) jill carnahan, suzy cohen( also very knowledgable about what is in meds and how they work)..... theyre all dr's md's etc Lynch researches as a hobby, he is one of the founders of cyrex labs in usa that does special blood lab tests.. there is a summit starting monday on how to cure naturally ( diabetes, thyroids and other autoimmune deseases)with a lot of dr's and scientists you can listen in in the early evening for free .. you can register for free at Dr Josh Axe.com.... it starts on the 6th october till the 13th..Dr perlmutter is speaking aswell founder of grain brain... will be very interesting.. I'm already registered and am looking forward to it..I attended the reversing diabetes and the thyroid summit and learnt alot made alot of notes.. I really advise it for you as you are on these meds.. these dr's and scientists etc will know what is happening to you.. there is the possibility to ask questions aswell...scroll down and you see them....
Its down to you, but i know for myself it helped me alot understand what happens inside my body and cells etc...
I believe that my thyroids is actually the reason i got diabetes which i learnt at the thyroid summit.. and i believe that with this way of eating and using supplements to heal my thyroids is helping my BG go down.. so a plus...
I hope you give it a try if you dont have much time through work etc its available for 24 hours... i sometimes listen in on my free day, or if there is a Dr or scientist or naturapath i really dont want to miss i stay up to listen.. the speakers range between 30 to 60 minutes and usually 3 to 4 speakers a day...
lots of success
Tisha

 

[Ambersilva]

It will get sorted, and you will manage whatever Type you are classified as.

What appalled me initially on reading your post is that people are just being sent home with levels from 17 upward (@ally56 as well for example). Why don't hospitals get you under 8.0 before sending home and actually do the type 1 or 2 test when in a&e. Can't be that hard surely to do a test?

I remember 30yrs+ ago and gp just did a wee test on me and was sent to hospital for 4 days for a type 1 to be sorted out....

Hoping that hospital consultant will sort you out and you start to feel better soon.

Hello @orchidlady
It has been suggested to you that insulin is the way to go. If your body is lacking a natural insulin response oral meds will not lower your blood sugar levels. I was diagnosed Type One the same way as @donnellysdogs. My GP knew immediately when high ketones were found that tablets would not help me.

Just to reassure you...It's no big deal to have to inject insulin.

 

[jack412]

even kids can do it

 

[orchidlady]

Thanks again for your replies. Managed to keep levels a bit better this weekend, though BS 16.9. feeling a bit ropey. Re insulin, I am not worried about the injection itself just worried I will get the amounts wrong. I eat very little so the thought of having to eat because of insulin does not appeal. Think I need to be thinking about short acting.

 

[phoenix]

I eat very little so the thought of having to eat because of insulin does not appeal

.
Then really make sure that if you do start using insulin they don't try to make you use a mixed insulin.
ie not Humulin M3, Insuman comb , Humalog mix or Novo mix

The type of regimes that most T1s on here use ) is flexible and so you take amounts according to what you eat.(basal :long term to take care of the glucose released from the liver between meals, together with bolus ie rapid for food
When you think of it, parents of some toddlers can't predict how much of any meal they will eat so they often give the insulin after the meal

 

[jack412]

tell your dr how you feel, it's normal to be scared of a hypo
the long acting doesn't rely on what you eat, it covers your base metabolism or however it's said. the short acting is taken with meals if you need more

 

[orchidlady]

Ketones very high again just called DR, think I might end up in A & E again. BS 14.6 drinking loads of liquid, any other tips to get ketone level down. Should I eat?

 

[donnellysdogs]

What did Gp advise on eating? Your GP should slot you in and see you. This is not an A&E issue, its down to your GP to sort you out...

 

[orchidlady]

He did not know and has gone to consultant a colleague. Have drank pints and pints of water and eaten nuts and chicken stir fry which I made so know no added sugar. Thank goodness ketones seem to be going down. If my ketones had stayed @ that level it was most def a A and E situation, just out of interest why do you say it is not?

 

[donnellysdogs]

Not saying it not an A&E as such... Just that your GP should be able to slot you in and give you advice... The GP's should be doing everything they can to keep patients from being unplanned admissions....

 

[donnellysdogs]

Ie GP's are open... Your condition is not an accident and although being with ketones it is something that a GP service should be able to deal with....
Not saying that it wouldn't be an A&E.. Just that your GP should be able to fit you in, adjust meds etc and give advice.
A&E seems to put on a sluding scale and chuck you out at any lesser level nowadays... Back to a GP that has led to you going to A&E in the first place!!

If people needA&E they should go...

 

[jack412]

it's coming up to a fortnight, you should be getting your head around the idea of insulin

 

[donnellysdogs]

You should have been given a test to find out if you are a type 1. I would be asking GP for this test.
You're GP does not seem to be taking your high levels seriously and they should.

 

[orchidlady]

Blood test is booked for tomorrow morning re type 1/2. have appointment with specialist nurse on Friday and insulin prescribed , just need to sit down with her and to learn how to take in

*donnely* A and E stands for Accident and Emergency, how is the GP going to deal with massively high ketone levels, I presume you have heard of ketoacidosis, as I understand it can be fatal, going to GP to "adjust my meds" totally pointless and they are having little effect now. A drip and insulin would be the only way to go. Hoping I can keep things under control till Friday

 

[donnellysdogs]

Totally understand that, but GP or Nurse should have fitted you in today.... But not doing so they are forcing you in to a situation of an unplanned admission.... That's what I meant. Of course I know what DKA is but they should be giving you a higher priority than you are getting....

I would not blame anybody going to A&E at all in your situ.... But it should not be made an emergency when your GP service has appts kept free for this sort of situation.

 

[donnellysdogs]

They could have put you on insulin today...

 

[orchidlady]

oh Thanks *donnelly* I know you are right.

Good news though, GP has referred me to head nurse in our area and have now prescribed insulin including fast acting, I an getting a home visit tomorrow to get me one my way. Just have to keep things under control tonight hopefully not admitted to A and , keep drinking ti water