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Libre NHS criteria

Discussion in 'Type 1 Diabetes' started by Fatima_94, Mar 3, 2018.

  1. yakudueye1

    yakudueye1 Type 1 · Active Member

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    The ones who do the cost for the didn't do math as not realising the amount of money spent on the mental health of people with diabetes after poor control and ambulances that are called can help but better equipment for diabetes department
     
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  2. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

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    Hi. Really interested to hear that as I live in Epsom though go to Guildford for my care. Are you treated at the John Kilner or did you go via your GP. My friend in Leatherhead (treated at Kingston) cannot get them yet. Also know of a guy in our pub group of diabetics who gets them straight from his GP in Epsom!
     
  3. smc4761

    smc4761 Type 1 · Well-Known Member

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    Lanarkshire NHS have released the criteria for people to receive the Freestyle Libre. Basically type 1 who are testing at least 8 times a day and those with no hypo awareness. They are only rolling out around 12 per month

    Luckily I was a DAFNE course a few weeks ago and expressed an interest to the DSN running the course. She put me forward and yesterday I received my new Freestyle Libre.

    Hopefully this will have a huge impact on my life and improve my overall control

    I do agree that the bean counters only look at the headline figures on cost and forget to look at the ongoing cost that may be in background, hypos--ambulance costs, health issues, amputation blindness etc.

    The difference in cost between sensors and test strips is not that huge which makes it even more frustrating
     
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  4. ScottyD

    ScottyD Type 1 · Well-Known Member

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    I just went directly through my GP.
     
  5. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

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    Thanks! Will try the same then.
     
  6. Celsus

    Celsus Type 1 · Well-Known Member

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    Why is the NHS such a mess?
    What I have been reading here of testimonials over the prior 5 pages is like what happens in a banana republic.
    (I love bananas as a delicious fruit, so no mal intent there, but hope you know what I mean :))
     
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  7. Keith_Simpson

    Keith_Simpson Type 2 · Active Member

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    On the bright side the Libre is not particularly accurate, more often consistently under reading against a finger prick test & by a significant amoount. Safer to test by finger pricking until the technology improves.
     
  8. becca59

    becca59 Type 1 · Well-Known Member

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    @keith-Simpson. Unfortunately for you the Libre is not accurate enough. However, for many it is, and those using it effectively are getting great HBA1C results. I agree there is still room for improvement not least with issues of allergic reactions.
     
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  9. Wjohn

    Wjohn Type 1 · Active Member

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    I think that all of these hoops that diabetics have to jump through are all delaying factors .
    I have been buying the libre ,Boots gives very good deal ,but don’t believe what our Minister for Health says for medical services says about no interruption,I have just been told that updates will feature very low in UK because of Brexit ,so our minister has ,yet again been caught not telling the truth ,,
     
  10. 22nw22

    22nw22 Type 1 · Well-Known Member

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    Blame Theresa May.
     
  11. 22nw22

    22nw22 Type 1 · Well-Known Member

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    I think one of my appointments this year (March), my doctor mentioned that I would be eligible and meet the criteria, I did match the criteria. July was a bit quiet, as the time needed to be changed. I still need my accu chek expert, but they found I need a Freestyle Libre as well. It was sad that I didn't get to use them much in 2016, when I started and stopped I think, due to the fact the sensors are expensive if I wasn't funded, the sensors weren't even made fundable until this year I think, either this year or last. Now I'll get the Libre full time, since the NHS will fund mine for me, so I get them and pay nothing, unlike 2016.

    Now, I don't know whether I'll get a new reader, or if we have to find one that I had been using before or what, since I am meant to be restarting the sensors from my 2nd Libre training (3rd technically). I'll probably have nothing between the 4th (First (2nd) training) and 18th. I do have to wake up early since trainings are at 9:30am for both of them.
     
    #111 22nw22, Dec 29, 2018 at 8:33 AM
    Last edited: Dec 29, 2018
  12. 22nw22

    22nw22 Type 1 · Well-Known Member

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    I only reacted to that numbing cream they put on the arm for blood tests, such a shame, as they were meant to help you not feel pain. Now when I have one I don't get the cream, since I'm probably allergic to them. Since I was numbed, I didn't feel it happening, but there were weird patches on my skin. No good having the numbing cream if my skin will react to it.

    Strangely I didn't notice any reactions before, but they probably think I'm allergic to the cream so they don't offer it, yet it doesn't show up on their systems, well, as a known allergy, but I am not allowed the cream. Better safe than sorry

    I have no other allergies, not even to the cats in my house, or my peanut butter. I would notice if I became that way.
     
  13. Wjohn

    Wjohn Type 1 · Active Member

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    Dear Fatima ,
    Yes the Hoops ,are what I would call political failures/excuses . I bescame a Type 1 insulin dependant diabetic 56 years ago . For me it was a wonderful great NHS support service ,but gradually, this support has reduced ,let me try and explain ,
    I attended diabetic clinic ,every 6 month was thoroughly examined, spoke to and received advice from ,foot clinic ,dietician ,ophthalmic as well as diabetic specialists , now ,
    My clinic visits are ,every 15 months ,foot clinic nil ,( via doctor it’s 14 months for appointment ) ,dietician make appointment again 14 month ,same for eye clinic .in no way is this a criticism of staff ,the blame lies entirely on the politics ,mainly the Conservatives policies
    Your Libre problems ,Libre ,(Abbott ) is a French Co .part of the EU ,,in preparation for the Uk leaving the EU ,Abbott has downgrade the supply of Libre to the Uk ,so we are now near bottom of the list ,this government is unaware /not telling the truth ?
    I find that Boots are the cheapest place to buy Libre ,
    Wjowen
     
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  14. 22nw22

    22nw22 Type 1 · Well-Known Member

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    I am set to be given the libre funded by the NHS
     
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  15. EllieM

    EllieM Type 1 · Well-Known Member

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    That's very interesting. Have you got any references/links to corroborate this statement?
     
  16. Mel dCP

    Mel dCP Type 1 · Well-Known Member

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    I believe they are actually made in Oxfordshire.
     
  17. db89

    db89 Type 1 · Well-Known Member

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    I have had a replacement sensor shipped from France earlier this year - it wouldn't surprise me if they were producing them at multiple sites to meet demand.
     
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  18. Copernicus

    Copernicus Type 1 · Well-Known Member

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    Lot of dodgy political anti government "facts" in this thread. The sensors we get in this country are manufactured here, so we are not near the bottom of the supply chain. Why is it the Prime Ministers fault that it is still hard to get in on the NHS, surely that's down to local CCG boards ? Theresa May is a great supported of the Freestyle system. Is she meant to wave her magic wand and force the CCG's to make them available for anyone who wants them ? Would the poster who states that they get it from Boots because it's the cheapest way please say how much they pay. None of my local Boots will supply them unless you have a prescription. I get mine from Asda at £44 a pop. Still cheaper than from Abbott Laboratories. In a perfect world we would all get them freely on the NHS but unfortunately we don't live in a perfect world.
     
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  19. Jaylee

    Jaylee Type 1 · Expert
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