Libre2 Prescription rejected

[Smiter55]

As some of you may know my gp accepted that, due to new meds that can cause hypo, I can have the sensors on repeat. This was about a month or so ago. Ive Had 3 with no prob last was on 18th november. I was ordering my meds on 29th so popped a tick in my sensor. Imag8ne my horror when I logged in to check and find full lot had been rejected. Phoned reception lovely lady said she'd sort it and to call back that evening. Did so to be told by a rather abrupt lady that it had not been and she doesn't know what I was looking at the nhs patient site, but she could see the prescription had gone over to pharmacy. However she also told me sensor was rejected. Mo reason, nothing. I asked her to find out. That was Thursday, I still don't know why.

Thing is I'm having really bad lows during the night and the sensor alarm wakes me. Last night was worst yet, sudden drop and really felt bad. Terrifies me what could have happened without sensor.

Anyone else had repeats rejected with no explanation.

BTW I have sent over in writing asking why.
Photo is last 24 hours readings.View attachment 57907

 

[Smiter55]

Well still no explanation as to why originally declined but message must have made a difference. Just had the pharmacy at door with a libre 2. Thankfully.

 

[Jaylee]

Hi @Smiter55 ,

I had something similar? Regarding my online surgery repeat. They were listed on mine but with no tickbox.
Only, I was advised from a V nice receptionist at my surgery when I rang that my Libres were put on a “batch.” & My orders to be made direct from the chemist for the Libres.. some new “initiative.”

There is a possibility someone at your surgery contacted your chemist on your behalf?

 

[JudiP]

As some of you may know my gp accepted that, due to new meds that can cause hypo, I can have the sensors on repeat. This was about a month or so ago. Ive Had 3 with no prob last was on 18th november. I was ordering my meds on 29th so popped a tick in my sensor. Imag8ne my horror when I logged in to check and find full lot had been rejected. Phoned reception lovely lady said she'd sort it and to call back that evening. Did so to be told by a rather abrupt lady that it had not been and she doesn't know what I was looking at the nhs patient site, but she could see the prescription had gone over to pharmacy. However she also told me sensor was rejected. Mo reason, nothing. I asked her to find out. That was Thursday, I still don't know why.

Thing is I'm having really bad lows during the night and the sensor alarm wakes me. Last night was worst yet, sudden drop and really felt bad. Terrifies me what could have happened without sensor.

Anyone else had repeats rejected with no explanation.

BTW I have sent over in writing asking why.
Photo is last 24 hours readings.View attachment 57907

I can understand your worry. I have just been prescribed the Libre2 which has been a tremendous help and so took get alarms in the early hours telling me I am low.
I hope I don’t have your problem but I do wonder if getting it direct from the chemist is a new general idea.
Can I ask you how you dispose of the used applicator and sensor? I see that the information leaflet says it should be disposed of with the ‘electrical and electronic equipment waste’ but I don’t know if that is just the sensor.

 

[victoriaa12!]

Hi guys !

I had the same issue. The reason I was given is that the NHS contract with free style Libre is only contracted to 26 sensors per year. 2 each month and an extra 2 incase of any faults.
Some Drs will prescribe without any problem, others are sticking to the contracted amount of 26 in a year.
Really inconvenient for us type 1s considering 25% of the sensors are faulty

 

[Rokaab]

Really inconvenient for us type 1s considering 25% of the sensors are faulty

If faulty you should contact Abbott and they will replace them for free - you shouldn't just be ordering more on prescription you should be reporting the fault and get replacements that way - as that way it does not cost the NHS.

 

[Dean.m]

I can understand your worry. I have just been prescribed the Libre2 which has been a tremendous help and so took get alarms in the early hours telling me I am low.
I hope I don’t have your problem but I do wonder if getting it direct from the chemist is a new general idea.
Can I ask you how you dispose of the used applicator and sensor? I see that the information leaflet says it should be disposed of with the ‘electrical and electronic equipment waste’ but I don’t know if that is just the sensor.

Apparently all sensors are currently only prescribed by specialists in Hospital. That what I was told yesterday.

 

[silversurfer57]

Type 2 diabetics are not entitled to the Libre2, or at least that's what I have been told by my clinic. Despite having a thing about pricking my fingers I am not entitled. I have paid £150 for these in the past and they work well, taking away my anguish and keeping me informed of my levels. However, I cannot afford to pay for them as I am retired and on a small pension. Well done if you get them for free.

 

[sue512]

I can understand your worry. I have just been prescribed the Libre2 which has been a tremendous help and so took get alarms in the early hours telling me I am low.
I hope I don’t have your problem but I do wonder if getting it direct from the chemist is a new general idea.
Can I ask you how you dispose of the used applicator and sensor? I see that the information leaflet says it should be disposed of with the ‘electrical and electronic equipment waste’ but I don’t know if that is just the sensor.

I have a sharps bin on prescription and abbot suggest that’s how you dispose of them

 

[Ladybird1]

As some of you may know my gp accepted that, due to new meds that can cause hypo, I can have the sensors on repeat. This was about a month or so ago. Ive Had 3 with no prob last was on 18th november. I was ordering my meds on 29th so popped a tick in my sensor. Imag8ne my horror when I logged in to check and find full lot had been rejected. Phoned reception lovely lady said she'd sort it and to call back that evening. Did so to be told by a rather abrupt lady that it had not been and she doesn't know what I was looking at the nhs patient site, but she could see the prescription had gone over to pharmacy. However she also told me sensor was rejected. Mo reason, nothing. I asked her to find out. That was Thursday, I still don't know why.

Thing is I'm having really bad lows during the night and the sensor alarm wakes me. Last night was worst yet, sudden drop and really felt bad. Terrifies me what could have happened without sensor.

Anyone else had repeats rejected with no explanation.

BTW I have sent over in writing asking why.
Photo is last 24 hours readings.View attachment 57907

I was on a 3month trial in June, finished the trial, no hb1c tests and heard nothing from gp or hospital. Rang hospital today and low and behold I can have another 3 month trial after a hb1c. Fed up of banging my head against a brick wall

 

[JudiP]

Type 2 diabetics are not entitled to the Libre2, or at least that's what I have been told by my clinic. Despite having a thing about pricking my fingers I am not entitled. I have paid £150 for these in the past and they work well, taking away my anguish and keeping me informed of my levels. However, I cannot afford to pay for them as I am retired and on a small pension. Well done if you get them for free.

The reason I was put forward by the hospital diabetic nurses was because my thin fingers were reacting to the constant pricking and becoming painful. As someone else has just said, it seems the hospital have to make the case so I recomntnd you try that route.

 

[Smiter55]

Type 2 diabetics are not entitled to the Libre2, or at least that's what I have been told by my clinic. Despite having a thing about pricking my fingers I am not entitled. I have paid £150 for these in the past and they work well, taking away my anguish and keeping me informed of my levels. However, I cannot afford to pay for them as I am retired and on a small pension. Well done if you get them for free.

I only got it because the meds I'm on can and have caused hypos. I sent in a request explaining that I had trialed one and that it had warned me of impending lows that I wouldn't have picked up with normal testing. There are exceptions as I found on NICE guidelines.

 

[josette_bartlett]

Apparently all sensors are currently only prescribed by specialists in Hospital. That what I was told yesterday.

That is definitely not the case down in the Southwest. I get seen by my Diabetes Consultant every 6 months and he still hasn't prescribed it for me even though I went down the route of asking for a free trial from Abbott online (as that's what I was told to do by my nurse). In the 2 weeks trial I was shocked to see some things I'd never knew was happening. I have been Type 1 diabetic on insulin for 27 years. I always had great hypo alertness. While I was trialing the Libre for 2 weeks, one of the results that came back was how many hypos were registered on the Libre but I wasn't aware of the hypo until my readings got down to 2.2 with some as low as 1.8. The only thing my Consultant said about these results is that the Libre is not accurate. He even said that 3.0 isn't a hypo. Absolutely unbelievable.

 

[Smiter55]

If 3 isn't hypo I'd like to know what it is as I was just below that, couldn't stand up sweating, confused and slurred speech.

 

[JudiP]

I have a sharps bin on prescription and abbot suggest that’s how you dispose of them

Thanks for the advice. I do have a sharps bin but it seems the local council are no longer replacing them when one is collected. Is it just the used sensor which you put in the sharps bin? The applicator would practically fill it!

 

[JudiP]

That is definitely not the case down in the Southwest. I get seen by my Diabetes Consultant every 6 months and he still hasn't prescribed it for me even though I went down the route of asking for a free trial from Abbott online (as that's what I was told to do by my nurse). In the 2 weeks trial I was shocked to see some things I'd never knew was happening. I have been Type 1 diabetic on insulin for 27 years. I always had great hypo alertness. While I was trialing the Libre for 2 weeks, one of the results that came back was how many hypos were registered on the Libre but I wasn't aware of the hypo until my readings got down to 2.2 with some as low as 1.8. The only thing my Consultant said about these results is that the Libre is not accurate. He even said that 3.0 isn't a hypo. Absolutely unbelievable.

I found that the Libre reads at least two units lower than the Accuchek monitor which I was using. I now find that if I keep my bedtime reading to 10 (as I have been doing because my levels drop considerably by morning) I keep getting early morning alarms because they have dropped to around 3. I certainly don’t feel hypo at that level and I would have done with the Accuchek so it does make you wonder about the accuracy of the Libre.

 

[Nurse1973]

As some of you may know my gp accepted that, due to new meds that can cause hypo, I can have the sensors on repeat. This was about a month or so ago. Ive Had 3 with no prob last was on 18th november. I was ordering my meds on 29th so popped a tick in my sensor. Imag8ne my horror when I logged in to check and find full lot had been rejected. Phoned reception lovely lady said she'd sort it and to call back that evening. Did so to be told by a rather abrupt lady that it had not been and she doesn't know what I was looking at the nhs patient site, but she could see the prescription had gone over to pharmacy. However she also told me sensor was rejected. Mo reason, nothing. I asked her to find out. That was Thursday, I still don't know why.

Thing is I'm having really bad lows during the night and the sensor alarm wakes me. Last night was worst yet, sudden drop and really felt bad. Terrifies me what could have happened without sensor.

Anyone else had repeats rejected with no explanation.

BTW I have sent over in writing asking why.
Photo is last 24 hours readings.View attachment 57907

I was told by my consultant that although NICE Guidelines and NHS England states type 2 on insulin x 2 a day should have sensors on NHS. Each area has a comishing group which pays budget for prescription on NHS and some areas are not funding flash glucose monitors on NHS. Itself fund mine.

 

[victoriaa12!]

If faulty you should contact Abbott and they will replace them for free - you shouldn't just be ordering more on prescription you should be reporting the fault and get replacements that way - as that way it does not cost the NHS.

Yes, and I do. But having to complete a questionnaire with over 15 questions and then wait 3/4 days for delivery isn’t ideal, However my initial message was regarding just a general prescription for the sensor, not faulty ones.

 

[Blanchoid]

Type 2 diabetics are not entitled to the Libre2, or at least that's what I have been told by my clinic. Despite having a thing about pricking my fingers I am not entitled. I have paid £150 for these in the past and they work well, taking away my anguish and keeping me informed of my levels. However, I cannot afford to pay for them as I am retired and on a small pension. Well done if you get them for free.

That is incorrect, type 2 diabetics can now be prescribed Libre2.

You just need to speak to your DSN and ask them, I originally was not fussed as I couldn't se the value and they were literally force on me! (BTW I am Type 1)

 

[Echob]

Well still no explanation as to why originally declined but message must have made a difference. Just had the pharmacy at door with a libre 2. Thankfully.

What do I have to do to get a libre