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[formerhondaman]

Hello everyone, I hope you can help.

I was diagnosed with cealiac two years ago, A long story short through the symptoms of extreme fatigue and the improvements I felt not eating gluten which at the time meant eating basically card board rice and water!!! well fast forward and it turns out that cealiacs can eat a plethra of sweet things without gluten, here in lies the issue my diet started to contain what I percieve as normal levels of sugar after discovering this and low an behold extreme fatigue returns. I came of the gluten free diet a couple of months ago and have good and bad days BUT it is not gluten related. Rather it seems to be sugar or derivatives of that effect me. so I have started testing myself with a finger prick test and the results in essence are after night time fasting the readings are between 6 and 7 for the most part. and 2 hours after eating generally are into the 6's 2 plus hours after. very rarely does it drop to below 6, unless i have a day of eating card and water then it gets down to 5.4 - 5.6.

There is also a direct correlation between the higher readings and the feeling of extreme fatigue, even when I'm well rested.

The other thing is waking up in the night, usually between 2 and 4 am. My blood pressure fluctuates from normal 80/120 to 160/120 without reason. Im not stressed and do not have a known heart problem.

I just wondered if these symptoms are related to diabetes or insulin as I do not want to embarrass myself at the doctors. I figuered if they were then someone here would Know????

I should aslo say im neither fat nor thing and do not have any medical conditions.

I appreciate this may be slightly random as a first post but any recognition would confirm I should go and see the doc. Last Time I went to GP reference the fatigue Iwas advised to take it easy and have a holiday!!

Thanks again.

Rob

 

[Guzzler]

Hello and welcome to the forum.

We are not doctors so we cannot diagnose you but I would advise you to take your readings and a food diary to your GP and request a HbA1c test. This test (done from a blood draw) should indicate if you have a problem with metabolising carbohydrates. Carry on with fasting readings then take a reading before the first bite of food then two hours after first bite (record all three readings).

Have a wander around the forum and ask as many questions as you like.

 

[Rokaab]

I was diagnosed with cealiac two years ago,

I came of the gluten free diet a couple of months ago and have good and bad days BUT it is not gluten related.

Just as a point, if you had the coeliac diagnosis (through a blood test or endoscopy I presume) you should try to stay gluten free. Not all coeliacs get obvious signs - I certainly didn't, I was eating all sorts of wheat based products before I got diagnosed, I didn't believe them when they told me I was gluten-intolerant cos I felt perfectly fine after bread, weetabix etc - however it did explain why over the previous 5-10 years I'd been eating at least two or three times as much as anyone else yet still slowly losing weight. It was actually causing malnutrution for me and also meant that I got a lot more colds than anyone else cos my immune system was busy fighting the gluten instead of the colds without me knowing.
But yes I have found a lot of gluten-free stuff (that would normally have gluten in it) does often tend to have a lot of carbs in it, and there are a lot of gluten free cakes, biscuits, and sugar-loaded choices out there

 

[Antje77]

and do not have any medical conditions.

Celiac is a medical condition.

 

[EllieM]

I came of the gluten free diet a couple of months ago and have good and bad days BUT it is not gluten related.

Is there a reason you came off the gluten free diet? As @Rokaab said, if you have an actual diagnosis of celiac's disease, then ingesting gluten is really bad news. If it's non-celiac gluten sensitivity, then I guess it's not such a big deal, but true celiac's disease means that your intestine is damaged every time you take gluten. (I'm sure the celiac sufferers on these boards will correct me if I'm wrong.)
I agree with @Guzzler, take your readings, symptoms etc to a doctor and get checked out.

As regards gluten free diets though, many of the T2s on here enjoy low carb diets which are gluten free because they have to avoid the carbs in wheat - there are lots of tasty choices with no cardboard involved! I think the problem may be that you try to eat gluten free versions of the food you like, rather than experimenting with naturally gluten free foods. (Avocado, bacon and egg, anyone?)

Good luck.

 

[formerhondaman]

I came off the gluten diet because there was no correlation between eating gluten and not to how I felt. the diagnosis was hypothosised by the specialist, he said I would need an endoscopy to confirm, I declined the endoscopy and just got on with the diet. this was all two years ago so given symptoms and diet at time the specialist summised it was cealiac.
So i dont believe I am cealiac, 99.9% sure.
however the correlation between eating low glycemic foods and high has a definate impact on how I feel and the blood sugar readings. and other generic symptoms.
Thanks for the response so far

 

[Rokaab]

I came off the gluten diet because there was no correlation between eating gluten and not to how I felt. the diagnosis was hypothosised by the specialist, he said I would need an endoscopy to confirm, I declined the endoscopy and just got on with the diet. this was all two years ago so given symptoms and diet at time the specialist summised it was cealiac.
So i dont believe I am cealiac, 99.9% sure.

That's exactly how I felt, I felt perfectly fine eating stuff packed with gluten - but an endoscopy proved it was coeliac, and although I never felt ill, I have (much as I hated to admit it) felt better since going gluten-free probably because my immune system isn't in a constant fight with gluten anymore. Go for the endoscopy as your specialist suggests, it shyould prove it one way or another