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Making insulin but positive antibodies
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<blockquote data-quote="Rose22" data-source="post: 2177068" data-attributes="member: 509613"><p>Thankyou for your reply, it was really useful to read someone else’s story, and the similarities. </p><p>I’m sorry to hear your Uncle sadly died from a Type 1. My grandmother did too, a heart attack. She was diagnosed as Type 1 in her 30s (all those years ago, without all the tests they can do now) my other grandmother died from type 2 complications, she got an infection on her foot, which she ignored, turned gangrenous and was amputated, she died in hospital shortly after. So the risks are very real. I wish doctors would listen to our personal stories and not just look at a BMI and automatically diagnose a type. In 2018 one doctor I saw said she wasn’t sure I was type 2 and wrote asking whether they should be looking to see whether I had a different type. This was sadly shelved by my own doctor, who even in the referral letter she reluctantly wrote a few moths ago, saying in it she thought I was type 2. Then she phoned me to tell me they might not even see me. It’s crazy really, she was basing all this on her assumption rather than any test results! So I am waiting for the consultant to send across antibodies results and I can’t wait for her to see them! </p><p>I emailed the Endo department for my results but apparently the consultant has to authorise for me to have a copy, so I’m still waiting! </p><p>I feel calmer knowing that one day I will need insulin and not to resist it. Especially if I feel better as a result. </p><p>I think you could be right with a lower carb meal and then going low, as I cannot change dose of Repaglinide, it’s a set amount before each meal, and I’m taking the lowest possible dose. It’ll be interesting to see what my next hba1c is, hopefully lowest in a year! </p><p>I see the specialist diabetes nurse so I am hopeful to come up with a plan with her in January. It’s been great getting useful info on here, will help me be more informed for when I see her. </p><p>Many thanks.</p></blockquote><p></p>
[QUOTE="Rose22, post: 2177068, member: 509613"] Thankyou for your reply, it was really useful to read someone else’s story, and the similarities. I’m sorry to hear your Uncle sadly died from a Type 1. My grandmother did too, a heart attack. She was diagnosed as Type 1 in her 30s (all those years ago, without all the tests they can do now) my other grandmother died from type 2 complications, she got an infection on her foot, which she ignored, turned gangrenous and was amputated, she died in hospital shortly after. So the risks are very real. I wish doctors would listen to our personal stories and not just look at a BMI and automatically diagnose a type. In 2018 one doctor I saw said she wasn’t sure I was type 2 and wrote asking whether they should be looking to see whether I had a different type. This was sadly shelved by my own doctor, who even in the referral letter she reluctantly wrote a few moths ago, saying in it she thought I was type 2. Then she phoned me to tell me they might not even see me. It’s crazy really, she was basing all this on her assumption rather than any test results! So I am waiting for the consultant to send across antibodies results and I can’t wait for her to see them! I emailed the Endo department for my results but apparently the consultant has to authorise for me to have a copy, so I’m still waiting! I feel calmer knowing that one day I will need insulin and not to resist it. Especially if I feel better as a result. I think you could be right with a lower carb meal and then going low, as I cannot change dose of Repaglinide, it’s a set amount before each meal, and I’m taking the lowest possible dose. It’ll be interesting to see what my next hba1c is, hopefully lowest in a year! I see the specialist diabetes nurse so I am hopeful to come up with a plan with her in January. It’s been great getting useful info on here, will help me be more informed for when I see her. Many thanks. [/QUOTE]
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