me

[ally1]

Just want to say I admire your open and honest account of your trials and tribulations here, @ally1 . I see your confidence has grown in dealing with the health care professionals. I wish you well, you are inspiring others.

I would add that this whole thread, and the supportive responses from members, demonstrates the ethos of DCUK at its best.

Thank you.
It took guts and honesty to admit that I am struggling, but I just Don, t want my bs levels to get so high like they were when I was diagnosed t2.
I know my last bs test was raised a bit and that was January, gp wasn,t worried but they are higher now 6 months on. Plus now with the bad neuropathy, to me signals that damage is now worse.
The main thing that had upset/annoyed me is DN and GP have, t done anything since to help. But in saying that, I Don, t know if they can do anything.
So am holding fire until my Gp gets the letter from my psych and see if he does anything.

 

[ally1]

I think you may be right Ally, moods do affect how and what we eat, you need to see someone who understands both your meds and bi-polar condition, a dietician may be of some use but I am thinking a nutritionist may be of more help, perhaps your pdoc could help you get to see the right person as your GP seems to be a right plonker........

Thank you. I do think like you that my Gp is a right plonker. I did see a dietician when I was first diagnosed as t2. She couldn't, t have been more then early 20,s. Her advice was to cut out sweet stuff but did say to eat bread, pasta, potatoes. She did say she would see me in 6 months but I said no because I have had more beneficial help from everyone here

 

[ally1]

Also I was told by my gp and DN that as being t2 and not taking insulin that there is no need to test.
Thank god I didn't, t listen because if I did what they said and only having a annual blood test, god knows what else could go wrong in that year.

 

[dbr10]

Also I was told by my gp and DN that as being t2 and not taking insulin that there is no need to test.
Thank god I didn't, t listen because if I did what they said and only having a annual blood test, god knows what else could go wrong in that year.

Yes. You are absolutely right.

 

[donnellysdogs]

Ally
A lady I know is T2, glicazide and also cancer hormone tablets..
she been under diabetes team at my hospital and is now starting a specialused diet and also therapy. 3 weeks to shift 1/3rd body weight..I think she has some mental health issues but not 100% on that..
diet is just 28pts milk n multi vitamin tablet for 7 days and then also allowed to drink bouillon or broth as well.
Hospital doing it to get her insulin meds and other meds for neuropathy reduced. She on a lot of meds for neuropathy. Wads of meds like tramadol. I mentioned R-ALA to her!!

Perhaps your doc should be helping you more to get specialist help?? Wish you were in my CCG. A lot depends upon location and whether you got hospitals near by that offer these services??

 

[ally1]

Ally
A lady I know is T2, glicazide and also cancer hormone tablets..
she been under diabetes team at my hospital and is now starting a specialused diet and also therapy. 3 weeks to shift 1/3rd body weight..I think she has some mental health issues but not 100% on that..
diet is just 28pts milk n multi vitamin tablet for 7 days and then also allowed to drink bouillon or broth as well.
Hospital doing it to get her insulin meds and other meds for neuropathy reduced. She on a lot of meds for neuropathy. Wads of meds like tramadol. I mentioned R-ALA to her!!

Perhaps your doc should be helping you more to get specialist help?? Wish you were in my CCG. A lot depends upon location and whether you got hospitals near by that offer these services??

Thank you.
I just need to wait for the letter that my psych is writing to reach my gp and see if my gp will do anything. I know with my last letter that the psych wrote to my gp, my gp did sweet fa. As it's now holiday time, I will have to wait a bit longer.
To be honest, I doubt my gp will do anything. My rise in BS levels are not what I call excessive but I Don, t want them to go too high. I would rather get help now before anymore damage us done.
I had written to my gp and practice manager and as yet no reply from either of them. I would have thought that I would have at least have heard to say that the letters had reached them.
Thinking back over the past few months, requests to the surgery have been ignored and not acted on.

 

[ally1]

I have been doing some thinking this afternoon. Lol
I know I am proberly over reacting, but I would rather get some help now before my bs levels rise to when I found out I was diabetic.
I feel that with my neuropathy, increasing bs levels surely in my opinion, is to get help with these now rather then risk further damage to my body. Surely if my gp worked with me giving some help, then in the long run, it would be cheaper on the nhs services.

 

[zand]

I have been doing some thinking this afternoon. Lol
I know I am proberly over reacting, but I would rather get some help now before my bs levels rise to when I found out I was diabetic.
I feel that with my neuropathy, increasing bs levels surely in my opinion, is to get help with these now rather then risk further damage to my body. Surely if my gp worked with me giving some help, then in the long run, it would be cheaper on the nhs services.

Yes! Exactly that! That's what you need to tell him so he knows you aren't just moaning for the sake of it (I know you wouldn't, that's not your style, but plenty do), let him know that you want to be proactive to save yourself from more suffering and him and the NHS from more work in the future.

 

[ally1]

On Saturday I received a letter from my Gp.
He enclosed a copy of a letter sent to him from the memory clinic.
They won,t do a memory test because I am under a psych.
Gp has suggested that I contact my psych secretary to see what could be done. To save the hassle of explaining it all over the phone, I went into the place where I see my psych. He is only there wednesday morning and Friday morning.
I spoke to a very nice lady and she has photo copied both letters and will pass it on. Not sure whether that meant onto my psych when he is next there on Wednesday or tp post onto his secretary.
Now I have left it in the hands of psych so will just see if my psych contacts to see if he feels I need a memory test through him.
The letter from the memory clinic to my gp was dated 3rd May.
As yet no feed back regarding the letters that I wrote to my gp and to the surgery practice manager, nor anything as yet from my gp regarding the letter that my psych had sent him.
To be honest, I would have expected a response from the surgery to at least the letters were or are being looked at.
Now I am very reluctant to visit the surgery

 

[leslie10152]

Thank you.
It took guts and honesty to admit that I am struggling, but I just Don, t want my bs levels to get so high like they were when I was diagnosed t2.
I know my last bs test was raised a bit and that was January, gp wasn,t worried but they are higher now 6 months on. Plus now with the bad neuropathy, to me signals that damage is now worse.
The main thing that had upset/annoyed me is DN and GP have, t done anything since to help. But in saying that, I Don, t know if they can do anything.
So am holding fire until my Gp gets the letter from my psych and see if he does anything.

It's a hard pill to swallow, but being honest with yourself will help. Never be ashamed to ask for help.

 

[ickihun]

@ally1 hundreds of patients contact their practice manager for intervention.
In a large health centre I was a patient of they publicised their complaint statistics etc.
Info that is available to patients if they want it.

There should be no cloak and dagger secrecy at your gp practice. Nhs publicise for transparency.

You go in and be firm but polite. You most likely will be surprised by their helpfulness.
You have huge support here. Don't ever forget it. ♡♥♡

 

[ally1]

An update. I had a phone call from my psych secretary regarding the letter that my gp/memory clinic that my gp sent me, the letter that I took into the office where I see my psych.
My psych was unaware about my memory problem as I had never mentioned it to him, I admit I didn't as hadn,t thought it was maybe bipolar related. My pdoc as off tomorrow is on holiday until end of August and have now got an app to see him on the 30th August. He did say if I thought I needed a more urgent app that he would agree for me to see another pdoc but I am happy to wait 5 weeks. He did say that if he thought I required a more extensive memory test then he would refer me to the same memory clinic that my gp did and can,t understand why they said they won,t see me because I am under the pdoc.
The Secretary then went onto ask if I have heard or seen my gp since I saw my pdoc on the 14th July as my pdoc expressed his concerns re me falling over because of the numbness in my left foot and leg and also the numbness in my right foot. The letter was faxed over to my surgery early afternoon on the 14th.
I explained that I have not heard anything from my surgery. So to me it's my surgery that are lacking in care and welfare of me. Now waiting with baited breath to see if my gp does anything. I did explain to the pdoc,s secretary that I am now too scared to see my gp.

 

[Bluetit1802]

@ally1 I do understand your fear of seeing your GP but you need to do something. Waiting for that particular GP to do anything will get you nowhere. Your GP surgery has had that letter nearly a fortnight. He should have contacted you before now. Sitting back and waiting, worrying, and stressing out isn't helping. I believe you should make an appointment to see him and tell him about your numbness etc and that he should have received a fax about the incident from your pdoc - who actually witnessed you falling over. It is either that or another complaint to the practice manager.

One other option could be a letter or visit to your MP. They do hold surgeries locally where you can speak to them. I suggest this because doing just that, my mother-in-law, who had been waiting far too long for a major operation, was suddenly called in to have the op when the MP intervened.

 

[ally1]

@ally1 I do understand your fear of seeing your GP but you need to do something. Waiting for that particular GP to do anything will get you nowhere. Your GP surgery has had that letter nearly a fortnight. He should have contacted you before now. Sitting back and waiting, worrying, and stressing out isn't helping. I believe you should make an appointment to see him and tell him about your numbness etc and that he should have received a fax about the incident from your pdoc - who actually witnessed you falling over. It is either that or another complaint to the practice manager.

One other option could be a letter or visit to your MP. They do hold surgeries locally where you can speak to them. I suggest this because doing just that, my mother-in-law, who had been waiting far too long for a major operation, was suddenly called in to have the op when the MP intervened.

At the moment I would prefer to go down the route of seeing the mp.

 

[ally1]

I have another appointment with the podiatrist on the 21st August. Last week I rang and left a message saying as last appointment, I was only in there literally 2 minutes so the podiatrist can look for any ulcers, cuts etc. The podiatry clinic rang me back this morning explain that is normal just to look over my feet. I explained that to get there it costs me £24 in taxi fares and that's alot of money as I am on benefits.
She also explained because of the neuropathy, it's even more important to get my feet checked. To which I agree but I explained that I have a lady who comes to me every 6 to 8 weeks and as she knows about my diabetes and neuropathy, she also checks for anything odd. She I feel does a more thorough check then the podiatrist. The lady that rang me said if that I refuse to go, then a letter will be sent to my gp saying I am refusing checks.
At the moment, my surgery have yet to respond to my letter and also have not acted on the last two letters from my psych explaining I need to at least be referred to a neurologist because of the damage and nerve pain, or at least have a one off appointment at the diabetic clinic for help.
So its catch 22.

 

[ickihun]

I have another appointment with the podiatrist on the 21st August. Last week I rang and left a message saying as last appointment, I was only in there literally 2 minutes so the podiatrist can look for any ulcers, cuts etc. The podiatry clinic rang me back this morning explain that is normal just to look over my feet. I explained that to get there it costs me £24 in taxi fares and that's alot of money as I am on benefits.
She also explained because of the neuropathy, it's even more important to get my feet checked. To which I agree but I explained that I have a lady who comes to me every 6 to 8 weeks and as she knows about my diabetes and neuropathy, she also checks for anything odd. She I feel does a more thorough check then the podiatrist. The lady that rang me said if that I refuse to go, then a letter will be sent to my gp saying I am refusing checks.
At the moment, my surgery have yet to respond to my letter and also have not acted on the last two letters from my psych explaining I need to at least be referred to a neurologist because of the damage and nerve pain, or at least have a one off appointment at the diabetic clinic for help.
So its catch 22.

Remind me again. Do you want your gp to do a referral or the MP to investigate your practice lack of care?
I personally would call practice and make an appointment with my gp or another who you like and walk in and say "I'm here for you to book my referral to neurologist please". Sit and watch for that gp to do it and give you the details.
It works like that for patients I know.
Go and ask for your health need hun.

 

[ally1]

Remind me again. Do you want your gp to do a referral or the MP to investigate your practice lack of care?
I personally would call practice and make an appointment with my gp or another who you like and walk in and say "I'm here for you to book my referral to neurologist please". Sit and watch for that gp to do it and give you the details.
It works like that for patients I know.
Go and ask for your health need hun.

Because I was getting nowhere with my gp with not responding to my letter or responding to my psych last two letters, I thought it was better to either see my mp or see PALS. My mp like them all are now on annual leave.
To be honest, I am too scared to see my gp or any gp at the surgery.
When I saw the podiatrist last time, she said to ask my gp to refer me to a neurologist. As my gp has, t responded to letters, he certainly won,t listen to me to being referee to a neurologist.
The past few weeks I have been feeling very down, I do think it's the combination of my t2 and having bipolar.
Normally I am a strong person at seeing professionals but now I am a nervous wreck

 

[ally1]

All I want/need is a little bit of help.
My bipolar is very up and down, for which my psych is seeing very regular to which I am grateful.
It's just that with this neuropathy, with numbness going
Up my left leg with nerve pain. Also as I can,t feel my feet, I constantly look at the ground. I have also fallen a few times over the past few months which worries me, it's got to the point where I only go out if it's vital.
All I want at the moment is a little help and guide nice because my eating is all out of control and I Don, t want to end up getting worse side effects from being diabetic.

 

[Salvia]

Hi ally1, It is possible that your gp is waiting for you to make an appointment to discuss the letter(s) rather than the other way round, or in preference to dealing with things over the phone. I know at my own surgery, it is left to the patient to push things forward, appointments, reviews etc. as a way of reducing, if possible, the number of missed appts & wasted time for the gp. Is it worth having another go and making an appt (even if it's with another gp so you don't have to face your own chap/chapess), and write everything down so that you can just hand that to the gp when you see them. That's what I did last time, and it worked really well for me, because I usually forget to say something or other, and kick myself afterwards. They ought to know all the things you have mentioned in this thread, and besides, if it is in writing then you have some evidence that you have made them aware of your problems and your needs.

 

[ally1]

Hi ally1, It is possible that your gp is waiting for you to make an appointment to discuss the letter(s) rather than the other way round, or in preference to dealing with things over the phone. I know at my own surgery, it is left to the patient to push things forward, appointments, reviews etc. as a way of reducing, if possible, the number of missed appts & wasted time for the gp. Is it worth having another go and making an appt (even if it's with another gp so you don't have to face your own chap/chapess), and write everything down so that you can just hand that to the gp when you see them. That's what I did last time, and it worked really well for me, because I usually forget to say something or other, and kick myself afterwards. They ought to know all the things you have mentioned in this thread, and besides, if it is in writing then you have some evidence that you have made them aware of your problems and your needs.

Yes you could be right. But normally the surgery would get in touch if anything needs doing/changing.
If I do make an appointment, I am afraid I would explode which could make things so much worse