Motor neuropathy

[Ryann1990]

I'm 23 years old diabetic type 1 6 years and worried about motor neuropathy two years ago I started getting pains in my lower back and then my thighs and then my knees and feet and ankles the pain is always there now and I am becoming progressively stiffer my right leg is causing me concern now as it has been giving out and my toes have been doing a claw like motion and I can't lift my foot off the floor my blood sugar is controlled or so I am told by my doctor I have had two emgs in the past both negative and tons of blood tests for auto immune stuff and other things the leg weakness and dragging is always worse after I eat and my foot does strange jerky movemnts if anyone knows or has suffered with diabetic motor neuropathy please let me know what it was like as I am becoming really worried I will end up paralyzed

 

[jake60]

I'm 23 years old diabetic type 1 6 years and worried about motor neuropathy two years ago I started getting pains in my lower back and then my thighs and then my knees and feet and ankles the pain is always there now and I am becoming progressively stiffer my right leg is causing me concern now as it has been giving out and my toes have been doing a claw like motion and I can't lift my foot off the floor my blood sugar is controlled or so I am told by my doctor I have had two emgs in the past both negative and tons of blood tests for auto immune stuff and other things the leg weakness and dragging is always worse after I eat and my foot does strange jerky movemnts if anyone knows or has suffered with diabetic motor neuropathy please let me know what it was like as I am becoming really worried I will end up paralyzed

Sorry to be useless as usual but I'm on a steep learning curve with this stuff.
I've never heard of it and never heard of anyone becoming paralysed by diabetes so would like to hear more.
I'll do a Google job after and see what I can come up with.

 

[Hobs]

None of us are experts in here but if not already done so, I'd ask for a full screwed down definitive diagnosis.
It is not unknown for motor neuropathy to be confused with a like condition called amyotrophic lateral sclerosis. Motor neuropathy usually involves no pain other than from cramping muscles, so that's why I mentioned the ALS.

 

[anna29]

I'm 23 years old diabetic type 1 6 years and worried about motor neuropathy two years ago I started getting pains in my lower back and then my thighs and then my knees and feet and ankles the pain is always there now and I am becoming progressively stiffer my right leg is causing me concern now as it has been giving out and my toes have been doing a claw like motion and I can't lift my foot off the floor my blood sugar is controlled or so I am told by my doctor I have had two emgs in the past both negative and tons of blood tests for auto immune stuff and other things the leg weakness and dragging is always worse after I eat and my foot does strange jerky movemnts if anyone knows or has suffered with diabetic motor neuropathy please let me know what it was like as I am becoming really worried I will end up paralyzed

Hello Ryann1990 .

The foot clawing thing you mention off - sounds like claudification of the feet .
The inability to move your feet when it happens - is only a temporary one .
The foot will spasm and stiffen [clawing gradually]
It is related to the diabetic foot neuropathy - I have this


Neuropathic pain can be constant - worsens in the colder weather climates .
There is/are painrelief that only your GP/specialists can prescribe to help with it .
Some persons can get muscle weakness/wastage in their legs - hence the leg drag with some persons .
With the correct treatment from a specilaist you will be able to be more and better mobile .

Massage plus physiotherapy can be of benefit to some persons if severe .
Your specialist can guide or refer you if they feel/think it is needed .
[mine is - so I go every 3-4 weeks for this to be done]
I do have other foot conditions/deformity and arthritis in my feet too though.

Ideally the best person to treat and explain these to your own legs/feet will be either your
GP or specialist .

You have posted about your concerns on this before in other threads .
viewtopic.php?f=15&t=39967&p=373266#p373266

Have you been back to see your doctor about this yet ?
If you have - what have they explained to you with regards to this ?

Have you had 'any' diabetic/podiatry foot screening done ?

The jerky foot movements can be reflex [if reflex?] will be a temporary thing .
It happens 'yes' then it will pass and stop till the next time it decides to happen .
Really is best to seek the advice of your GP/specialist ...
Your GP/specialist will be able to explain why this is much better than I can

It is vital that BG's are monitored and treated with respect .
This will help to reduce any flare ups with the neuropathy .

Hope this helps .

Anna .

 

[Tadsmama-33]

I'm a 33 year old type 1 diabetic and I suffer from agonising pain in my feet,ankles and legs.... It was firstly diagnosed as RSD but now I've been told I also have neuropathy.... The pain can be anything from a burning sensation to feeling like my ankles are actually broken....my calves cramp up to the point that I can't place my feet flat on the floor and I find myself having to tiptoe around until my extremely strong pain medication kicks in. I was told that if it had been caught soon enough that physiotherapy could have worked but the nerve and muscle damage is so bad now I'm classed as being disabled and have severe mobility problems :-( My diabetes hasn't always been under control and its scary to think how a few high blood readings can lead to such a painful and life changing problem.... Some days I can hardly walk :-( I suggest that anyone else with this problem goes and talks to their doctor....get the correct pain medication and accept any help that they offer

 

[jake60]

Can any of you tell me how they come to a diagnosis of neuropathy cos I suffer a lot of pain which I'm always putting down to spinal problems that I have.

 

[anna29]

Can any of you tell me how they come to a diagnosis of neuropathy cos I suffer a lot of pain which I'm always putting down to spinal problems that I have.

Mine was through the diabetes foot clinic specialist .
He is a neuropathy professor/specialist .

I was referred there via my own GP .

Had blood tests,x rays [feet] sensory tests done on my feet etc...
Pain was clearly neuropathic [diabetic] and mechanical from charcot foot and
talipes foot shape/structured .

My arthritic spine diagnosis was through the xrays of my back,neck,spine .
Reports were sent back to my own GP - then he referred me to the specialist
at my local hospital .

Best place to start would be with your own GP .
Tell him/her what pain you are experiencing etc...

Hope this helps.

Anna.

 

[Tadsmama-33]

My diagnosis was thru the diabetic nurse and my own diabetic doctor....I think the fact I can't feel my feet at all gave them a slight clue lol. It makes it really dangerous not being able to feel my feet...especially with 2 children that leave Lego and small toys around.... I've lost count how many times I've cut my foot and not noticed until I've seen the trail of blood :-( xxx