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My 4yo daughter's story

metelskaya

Member
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7
There was a moment that had changed our lives forever. The moment of initial denial, confusion, blame and “i-want-to-wake-up” state of mind. That moment was when my oldest daughter was diagnosed with Type 1 diabetes.

They say if you don’t know where to start, start from the beginning. The beginning was quite common (as I know know) for all newly diagnosed diabetics. Albina was 4 years old. She was well potty trained and did perfect without wetting at night incidents. She was an active child, who liked taekwondo, dancing, and never sat on one place for more than 1.5 second. She always liked to drink water and milk. In comparison to me, I dont like to drink water. I prefer 3, 4, 5 or ect cups of coffee per day. So not healthy of me.

I need to say that during day time her drinking needs were the same, it was nights when she was thirsty. And then she would wet her bed. Also she was complaining on stomach and head ache. And I struggled to feed her, Albina claimed she was never hungry.

I took her to the doctorn. I knew there was a disease called diabetes and in my mind, limited with valuable knowledge at that time, diabetes was a life style disease that was privileged to adults or mature people, who eat unhealthy. Could I imagine that there was type 1? No.

Why you didn’t google it?? – some of you may ask. Because I don’t trust google, I trust real doctors, and as I said earlier, I took her to one.

Unfortunately, as I know now, a lot of new diabetics are misdiagnosed initially. I heard of kids that had been treated with flue instead of diabetes. In our case doc thought wetting bed was developmental regression and drinking… well, she didnt drink the whole day, right, do this symptom was brushed off unfortunately. Drinking more water was blamed on her growing needs. The doctor was concerned with headaches, and I got instructions to time all headaches Albina had. Stomach ache…well, things happen. Now I know, that when blood sugar goes quickly up, it causes stomach ache, at least this is true with my diabetic child.

P.S. I haven’t heard a headache to be one of the symptoms of impending diabetes, so, in our case it might be a coincidence.

And one more thing. My daughter was loosing weight. And I had hard time feeding her. I heard of stories when kids ate a lot and were still loosing weight. Albina just didn’t eat and I would jump out of my skin to make her eat one decent meal per day.

It was summer time and my husband could take some time off from his work. We had planned earlier a trip to Mexico, and after doctor’s reassurance that everything was ok with Albina, we took off.

Everything was just fine at the beginning. Albina didn’t have great appetite, as per usual. Everything was “yuck” to her. Even ice-cream was not tasty enough. She would play by the pool and attend to kids disco at night. Her water intake increased a lot, and so did night time accidents, by dinner time I could tell she was tired, despite her extensive day naps.

Does this sound like type 1 diabetic symptoms to you? Yes, now they sound diabetic to me too. But that time I thought that she was tired because it was really hot in Mexico (it was end of June), because she was running, swimming and dancing the whole day and because she was a young kid and kids tend to get tired to the end of their energetic days. But my daughter’s tiredness and exhaustion was growing each day, she started to ask to stay in the room, she would lay on the bed and she would spend the good portion in the room. We literally had to push her to go out. Meanwhile my other daughter was in the same emotional and physical state as always. The difference between them health-wise was growing hourly, not even daily. Albina never vomited though. Anyways, we knew that something was going on and I knew I was taking her to see a doctor first thing we land in Toronto.

Albina was quiet on the plane, she didn’t want to talk, all she wanted was to sleep. And drink. And pee. She was thinner than she was when we had got to Mexico.

We landed early morning. My dad, the minute he saw Albina, realized that something was very very wrong. And then she threw up. In the airport washroom. This gave me and idea that may be she did got a stomach flew, but I was (and still am) not a doctor and was anxious to wait till the morning to get her medical help.

I got to a walk in clinic, since I didn’t want to waste time on waiting for an appointment with Albina’s pediatrician. And the kaleidoscope of so many things had begun. First urine stick, first finger poke, me, asking “how long does diabetes last? A week or so?” and “but kids cant have diabetes, it comes with age”, and other stupid question.

Our lives had changed immediately, but realization and acceptance came some time later. The new journey had started…
 
Hi. What a difficult time you have had but got there. I'm afraid doctors do make mistakes quite often as they did with me. I use Google lot and it can be a great help so use it together with the Doc.
 
Google is your friend .. but not so much a friend as a good GP that you can rely on ...
 
There was a moment that had changed our lives forever. The moment of initial denial, confusion,

Our lives had changed immediately, but realization and acceptance came some time later. The new journey had started…

Thanks for posting that - it kind of gives me some kind of appreciation as to what my own parents went thru - I was 4 when diagnosed - this was back in 1966 and my parents at that time knew next to nothing about diabetes - nor did the most health professionals for that matter.

Thank goodness none of my kids were ever diagnosed - I don;t know what's tougher - living with type 1 diabetes or being a parent of someone living with type 1 diabetes.
 
Thank you for sharing your story @metelskaya :)

I think unless all the classic symptoms are present at the initial GP visit then a diagnosis can be hard to make, unless you have a GP who has diagnosed before too, then it would be easy for them to mistake the diagnosis. A friend asked me if her daughter could be type 1 as she drinks alot of water, however she is a very active child and I told her to see her GP if she was worried, but she's fine, just always on the go and drinks alot. Personally when I was diagnosed it was after a week of feeling very poorly during a week away skiing, I sat in the GP's waiting room and started writing out all my symptoms without really thinking what it was, but as the list was quite long and included, excessive thirst, peeing alot, losing weight, thrush, smelly breath, dry skin, extremely lethargic it was a very easy diagnosis for the GP to make, if i'd perhaps only presented a few of these at the time then the diagnosis could of been different..
 
Our lives had changed immediately, but realization and acceptance came some time later. The new journey had started

As if you had written my family's story,only using different names.
Almost 3 months since my boy's diagnosis. The things we've learnt so far!!!
Good luck in your journey! :)
 
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