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My insulin is not working.

Discussion in 'Type 1 Diabetes' started by Catsymoo, Apr 28, 2018.

  1. donnellysdogs

    donnellysdogs Type 1 · Master

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    Oh and I had horrendous highs and lows whilst having everything with body going wrong and eating was a nightmare..

    However, take heart, things do improve but you need to find time for you each day.


    You may well be logging stuff down but you need to really record everything
    and this definitely helps to take control back.
     
  2. Celsus

    Celsus Type 1 · Well-Known Member

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    Obviously. Reason why I asked kindly to be confirmed. :)
     
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  3. Catsymoo

    Catsymoo Type 1 · Well-Known Member

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    Sadly when I asked my DSN for a CGM/Libre she said no, apparently extreme anxiety over hypos and stress causing highs isn't enough to be eligible :(
     
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  4. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    You’re carrying a HUGE load even without T1, @Catsymoo so I’m not surprised your bs are in tornado mode too.
    The only part I know anything about is the damages claim by the landlord. If the landlord took a deposit then by law it should be registered with a deposit scheme such as the TDS. Any disputes can be handed over to them to sort out. See if there’s any paperwork. If not then Citizens Advice may give you some help on how to deal with it.
     
  5. Catsymoo

    Catsymoo Type 1 · Well-Known Member

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    Yeaaaah, I'm back up into the 20s again. And I'm completely flabbergasted. I've eaten a salad today with 2 eggs and a cup of tea. No sugar. Under 15g of carbs and I injected... ***?
     
  6. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    Is there a decent diabetes team at your local hospital?
     
  7. Catsymoo

    Catsymoo Type 1 · Well-Known Member

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    Considering I saw a nurse about high sugar levels last week and she sent me away with nothing but ''test more'', I'm going to say no. They've gotten worse since I saw her. Seeing 20s has always been rare for me, now it's happening every single day for the last week. I'm not eating anything particularly sugary, and I'm purposely eating low carb meals/being very careful to try and get it under control.
     
  8. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    Do the 20s tend to happen at the same time in every 24 hours?
     
  9. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    Another thought: ask your GP to refer you to the nearest big teaching hospital diabetes dept.? You may have to take time off work, and it may be a bit of a journey, but it could be worth it in the long run?
     
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  10. Catsymoo

    Catsymoo Type 1 · Well-Known Member

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    I'm seeing the 20s a lot during evenings in the last few days. But I just don't understand how it's happening. I've left a message on my DSN clinic answering phone and called 111 for short term advice as I had 0.5 level ketones in my urine and yesterday it was 0 so it's a bit concerning. I would rather be safe than sorry.
     
  11. Catsymoo

    Catsymoo Type 1 · Well-Known Member

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    I understand you are more resistant to insulin when your sugar is high... but how long does that take to wear off once they return to normal levels?? I got down to 11 this morning and had half a slice of rye bread before I left for work, I injected 3 or 4 units as it's very low carb. I came home, all I've had is sugar free drinks. I made a salad around 6pm and injected a couple of units because I had a cup of tea. I wouldn't be so shocked if it was 12-15 but in the 20s!? Come on.
     
  12. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    What basal are you using and when do you inject it?
     
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  13. Catsymoo

    Catsymoo Type 1 · Well-Known Member

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    Lantus, I generally take 30 units at around 5-7pm every day. I've upped it to 35 now as I'm probably resistant at the moment. 30 units is usually perfect, my waking blood sugars before this week were always 3.9-5mmol.
     
  14. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    I had trouble with Lantus that began last November. I wondered why. I found it hard to control blood sugars, so much so that I ended up in tears.
    The consultant authorised a switch to Levemir and it’s been easier to get a grip on bs since then, though Levemir’s not perfect.
     
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  15. ickihun

    ickihun Type 2 · Master

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    @Celsus. I just want to thank you for your post. It has helped me enormously, even thou a type2 on insulin which is being difficult with my GERD, IBS and stomach/gut INFECTION recently.... Not to mention iron deficiency anaemia and irratic hormones due to stopping metformin temporarily.
    Thank you for your reassurance.
     
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  16. Juicyj

    Juicyj Type 1 · Moderator
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    Ask again as their policy may of changed, you have to keep pressing on your DSN to get support (sadly) as it's only until they can see you are really trying hard yet struggling can they really start to be more pro-active and if they can't give you a libre then they should have a CGM they can loan you, in a nutshell, don't accept no for an answer.
     
  17. Catsymoo

    Catsymoo Type 1 · Well-Known Member

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    I might try that as Lantus doesn't last the full 24 hours. The thing is, my sleep schedule changes a lot and I mostly sleep 8am-3-4pm. I don't work night shifts per say, but my Lantus is given generally 2 hours after I wake up, and you'd think if the Lantus wearing off was the issue, my sugars would be problematic around 3-4pm upon waking, but they aren't.

    I've tried injecting in my upper stomach about 2 hours ago and I've dropped from 21 down to 13. Thank god. I rotate my injection sites but I might need to inject a bit higher for a while. I don't have lumps in my hips or legs. 111 doc has put me down for a home visit overnight tonight, so no sleep for me.. gonna get a call later to see how my sugars/ketones are, and hopefully they will normalise by then. The doctor was shocked and appalled at the 111 physician I spoke to yesterday morning and the horrible advice I was given.
     
  18. Fairygodmother

    Fairygodmother Type 1 · Well-Known Member

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    Good luck with the visit, and yes, the highs don’t concur with Lantus wearing off. Hope the doc’s home visit results in a positive and proactive way of making things better for you.
     
  19. Engineer88

    Engineer88 Type 1 · Well-Known Member

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    Hey Have you considered changing insulin? I would suggest trying maybe Humalog I find it much better than Novo.

    secondly maybe instead of more random testing a structured approach might be better? could you test every half hour for 2-3 hours of an evening before and after an evening meal or when you typically get these highs?

    I would also second going to a teaching hospital.
     
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  20. Catsymoo

    Catsymoo Type 1 · Well-Known Member

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    Just wondering if anyone knows anything about the effects of stopping Metformin as a type 1 on insulin. Was wondering if it could be the culprit. I've been on one 500mg tablet a day for 5 years, could stopping it cause the liver to rebound release glucose kind of like how GERD medicine works (when you stop your stomach overcompensates with more acid)?

    I got my sugars under 10 this morning before bed, 9.8 after food. Woke up at 10. Had a low fat/sugar iced coffee (15g carbs), I injected 3 units in my upper abdomen and 2 hours later I'm sitting at 11. I'm kind of afraid to eat carbs right now. I'm thinking of taking Metformin again to see if it helps, but I stopped taking it and my stomach/acid reflux stopped the next day. I'm afraid of it coming back. I was under the impression that type 1s don't need Metformin and it shouldn't be effecting me like this if I'm on insulin.
     
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