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Neurologist

I have today received a summerery letter from the neurologist from when he saw me last Friday.
Some of it is what I call Dr's language so don't understand that part.
Most I understood. Apart from the physical side of what he did, I totally agree with.
On numerous occasions in the summerery letter mentions Atixia. Alongside partial neuropathy.
I quickly looked up Atixia and that mentions heaviness in limbs which I do have with loss of feeling. So I could well have thought that was neuropathy. Has listed to have a MRI which he told me about, to have the nerve conductive test in November.
Going by the letter, that should establish what type of Atixia it is.
Online it has a bit about Atixia and diabetes but by that time I couldn't concentrate on what was written. To see the neurologist in four months time as a followup appt so hoping then I will know which one it is. Also hoarseness of voice is one of the side effects.
 
Ally, did you mean "ataxia"? If so, there is a strong connection between some forms of ataxia and gluten intolerance. Might be worthwhile trying a gluten-free diet if you haven't already tried doing so to see if it helps.
 
ally1 said:
I have today received a summerery letter from the neurologist from when he saw me last Friday.
Some of it is what I call Dr's language so don't understand that part.
Most I understood. Apart from the physical side of what he did, I totally agree with.
On numerous occasions in the summerery letter mentions Atixia. Alongside partial neuropathy.
I quickly looked up Atixia and that mentions heaviness in limbs which I do have with loss of feeling. So I could well have thought that was neuropathy. Has listed to have a MRI which he told me about, to have the nerve conductive test in November.
Going by the letter, that should establish what type of Atixia it is.
Online it has a bit about Atixia and diabetes but by that time I couldn't concentrate on what was written. To see the neurologist in four months time as a followup appt so hoping then I will know which one it is. Also hoarseness of voice is one of the side effects.
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Well done picking your way through the Doc's letter Ally. They can be a challenge to us all. When I started learning about Diabetes, then latterly about thyroid problems, I thought my head would explode sometimes!

Anyway, if you have a follow up with the consultant in November, start writing down things you want, or even might want to discuss with him when you see him next. That way, when it comes nearer the time and you're thinking about what you want to say and ask you can review your list and cross out anythings you're no longer bothered about, but it helps with not forgetting things.

Sometimes I find that tactic really useful when I look at the list in the lead up to my appointments, because sometimes it feels good to realise how much information and knowledge I might have picked up along the way. When we're dealing with lifee, it's sometimes no easy to recognise our progress.
 
Indy51 said:
Ally, did you mean "ataxia"? If so, there is a strong connection between some forms of ataxia and gluten intolerance. Might be worthwhile trying a gluten-free diet if you haven't already tried doing so to see if it helps.
Click to expand...
Yes ataxia. I will look into the glutton free diet
 
DCUKMod said:
Well done picking your way through the Doc's letter Ally. They can be a challenge to us all. When I started learning about Diabetes, then latterly about thyroid problems, I thought my head would explode sometimes!

Anyway, if you have a follow up with the consultant in November, start writing down things you want, or even might want to discuss with him when you see him next. That way, when it comes nearer the time and you're thinking about what you want to say and ask you can review your list and cross out anythings you're no longer bothered about, but it helps with not forgetting things.

Sometimes I find that tactic really useful when I look at the list in the lead up to my appointments, because sometimes it feels good to realise how much information and knowledge I might have picked up along the way. When we're dealing with lifee, it's sometimes no easy to recognise our progress.
Click to expand...
See neurologist around February as that will be four months from when I saw him last Friday.
Its the nerve conduction in november
 
DCUKMod said:
Well done picking your way through the Doc's letter Ally. They can be a challenge to us all. When I started learning about Diabetes, then latterly about thyroid problems, I thought my head would explode sometimes!

Anyway, if you have a follow up with the consultant in November, start writing down things you want, or even might want to discuss with him when you see him next. That way, when it comes nearer the time and you're thinking about what you want to say and ask you can review your list and cross out anythings you're no longer bothered about, but it helps with not forgetting things.

Sometimes I find that tactic really useful when I look at the list in the lead up to my appointments, because sometimes it feels good to realise how much information and knowledge I might have picked up along the way. When we're dealing with lifee, it's sometimes no easy to recognise our progress.
Click to expand...
I do now write things down before see gp or consulrant
 
If it’s a nerve conduction test @ally1, that’s not the same as an MRI....
 
ally1 said:
Am home now.
Wow what a morning.
Waited 15 minutes to see the consultant, which not bad to wait.
The consultant was very though. He had the relevant information so didn't, t have to go from the start.
Prodded and poked all over. Pinned pricked all over as well.
He has requested for me to have an MRI scan, so will need to wait for that to come through.
We spoke about my squint in left eye that is my very lazy eye and been like that all my life.
Well, there is neuropathy in both feet and lower left leg.
It's the arms and left thigh and right leg that is not consistant to neuropathy, hence why the MRI.
Arthritis in both knees, yet I only have slight pain in my left knee.
Has ruled out a stroke.
Also I had to keep smiley, I felt a right plonker doing that.
We then spoke about my t2. Also spoke about my bipolar.
Was asked how often I have my HbA1c and he 2as astonished that only once a year because with taking quetiapine for my bipolar, the HbA1c should ideally be done every 3 weeks.
Explained my gp refuses to that being done, only once a year. Also he was surprised that the DN never did a foot check until I created merry hell
He said there is something not quite right with the amount of numbness and the falling over prior to getting my walker.
Until I have the MRI, and see if that shows anything.
He will do a follow up appointment once the scan has been done.
Not sure what will happen if there is nothing obvious from the scan.
Had to wait over an hour in the blood test area for a whole list of things to be checked for.
I felt he did a very though job
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Sounds like a thorough and dedicated doctor. It makes me sad that my reply to tremor was "I don't know" which probably meant she did not care or know. My dental surgeon was great though and the team! I am a bit worried of a possible neurological problem for the past year with no diagosis. Cheers for you!
 
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