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new t1 and being rationed strips

A

andyh67

Newbie
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Hi all , firstly I would like to say thanks to you all for the threads i have followed since being diagnosed T3 but regarded as T1, two months ago, you have all been a great guiding light,,,
having suddenly lost all muscle and energy it was found my Hbac was 134, eyesight ..errr.. well things were different, BG was up to 29 , had to take some leave from work and deal with it, my d nurse started me on levimar and novorapid at 6 units but escalated to 20 of each as required,,,, two months later down to 6 units each adjusting as required ,, on return to work found the excercise in walking from car to work then at work,,(Ships Engineer ) yoyo'd the BG, and adjusted quite easily,, my biggest problem is my local surgery, on requesting test strips today(exempt charges) i found a note advising that i am only allowed 100 strips a month, their written word four a day around meals and on waking,,,,, now my maths may be scary but that actually means 3.22580645161290 per day not four,,,,
being T1/3 and new and yoyo bg results i find this a bit haphazard on behalf local surgery,, having also mentioned that i am back at work and,,, driving then there is at least four extra strips by law per day,,at work lunch is hit miss and the usual requirement of T1 to know we are ok,

Just wondered if my surgery needs to employ mathematician or i may be paranoid or I've totally got self medicating wrong,, or there is a danger in being issued too many strips,, are they addictive,, i requested 150 last month and gave the the reason,,,,
Basically I am ( fingers crossed) coping with T1, But wonder if my local healthcare professionals need an awakening,,,,,
 
Hi Diakat.
Thank you so much for the swift support, have just read the links and now know am not going mad, thank you, will be taking that tomorrow and see how they get on with logic,
 
For goodness sake, what do they think you're going to do with them? Suck them until you've absorbed all the chemicals? Make Christmas decorations??? Wonder if they might light up well, eh? ;)

I do hope you get some sense out of your surgery ;) Wishing you well with your battle ;)
 
Hi. Do ensure you that you have online access to your surgery to order prescriptions and see your test results. We use SytemOnline and it allows items on the system to be re-ordered after around 3 weeks rather than 4 weeks and I don't think anyone monitors that. Using that feature that I can if I need to have more than my default 100/month.
 
Hi andyh67,

Whilst it's great that everyone is directing you to clinical guidance documents, be aware that they may be considered meaningless unless you are classed as type 1.

Despite being diagnosed as type 1 for 29 years, my change of diagnosis to MODY (monogenic diabetes) means that I no longer qualify for items I would have been previously given, even though I am still on multiple daily insulin injections with multiple blood tests.

I have been denied a freestyle libre despite meeting criteria, but my consultant is hiding behind the 'but you're not type 1' excuse. He fully accepts that my treatment is as if I were type 1, but I'm not coded as that on their systems. Similarly, I had been offered an insulin pump a few years ago but turned it down at that time, but now I wouldn't be funded for that either.

There is no clinical guidance for treatment of my diabetes type, and I doubt there is for yours either.

I hope that your care team don't take the same narrow view - but be aware that they might.

_petal_
 
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