Newbie parent of 2year old type 1

SophieOrman

Member
Messages
22
Type of diabetes
Parent
Treatment type
Insulin
My daughter was diagnosed a month ago, just wondered if there were any other parents who had a child quite young be diagnosed? It was a complete shock. Were at home now just trying our best to crack on with it..


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Jaylee

Oracle
Retired Moderator
Messages
18,232
Type of diabetes
Type 1
Treatment type
Insulin
Hi,

There are plenty of parents with young uns diagnosed..
The only T1 I know diagnosed at 18 months, has since got his 50 years D medal. & continues to do his "thing" playing bass in one of the bands I'm in??

Good luck & keep the cup half full.!
 
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Juicyj

Expert
Retired Moderator
Messages
9,037
Type of diabetes
Type 1
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Pump
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Hypos, rude people, ignorance and grey days.
Hi Sophie, welcome to the forum.

Gosh there is an awful lot to take in, it does get easier. I hope your Diabetic Specialist Nurse is in regular contact with you ? There are quite alot of type 1 parents on the forum so it's good to know you're not alone. @daisy1 has an information pack for newbies to the site, i've tagged her and she should post in due course, and there's always someone around for a chat if you need some support, best wishes.
 
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azure

Expert
Messages
9,780
Type of diabetes
Type 1
Treatment type
Pump
My daughter was diagnosed a month ago, just wondered if there were any other parents who had a child quite young be diagnosed? It was a complete shock. Were at home now just trying our best to crack on with it..


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Sorry to hear about your daughter's diagnosis. It's extra hard when a child is that young.

Thee are adults here who,were diagnosed as very young children, and I know there are parents of young children who've been recently diagnosed too.

I'm going to move your thread to the Parents section for,you, but do feel free to post in Type 1 too, and anywhere on the forum. There's a section called Ask A Question, which you may like too.

You sound like you have an excellent attitude. Cracking on with it is all you can do. It does get easier as you learn more about diabetes and become familiar with your child's reaction to insulin and foods. I recommend keeping lots of notes - blood test resukts, meals that 'worked', what you did when your daughter did activity X, etc, etc

You're not alone :)
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@SophieOrman

Hello Sophie and welcome to the forum :) Here is the information we give to new members and I hope you will find it useful. I am not sure of the age of your daughter so maybe other members with experience of young children with diabetes could advise if this is suitable. Ask more questions when you want and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

http://www.diabetes.co.uk/low carb program


Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
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1Sarah1

Well-Known Member
Messages
304
Type of diabetes
Type 1
Treatment type
Pump
Hi @SophieOrman my 2yr old was diagnosed a few months ago when my twins were a couple of weeks old so it was very hard. I was diagnosed when I was 2 too. We are both pumping. Here if you need anything as know it can feel quite daunting and isolating at times x
 
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staffsmatt

Well-Known Member
Messages
320
Type of diabetes
Type 1
Treatment type
Insulin
HI there, can;t give you any direct help but I was diagnosed at a similar age (16 months) and that was 33 years ago so it's not a complete disaster :)
 
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Diamummy_

Well-Known Member
Messages
52
Type of diabetes
Carer
Hi, my daughter was just 4 when she was diagnosed so not so small but still hard, it was very difficult for me in the beginning but I just push on with the help of my family and friends and things have got a lot better, my daughter is starting on a pump next week so a lot of work but it will be worth it, There is always so many lovely people ready to help on the forum ready to help so don't hesitate to ask if you need anything xx


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My daughter was diagnosed a month ago, just wondered if there were any other parents who had a child quite young be diagnosed? It was a complete shock. Were at home now just trying our best to crack on with it..


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Hi, My granddaughter was diagnosed at 2 1/2 and I found it hard to cope with at first as it was a huge shock. But 5 years on, she is doing well and has had no problems, it does get easier with time and she (your daughter) can have a happy, heathy and a fulfilling life. Take care x
 
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rsagoo

Member
Messages
17
Type of diabetes
Type 1
Treatment type
Insulin
Hi there,
Sorry to hear about your daughter's diagnosis. My son was diagnosed just before his 3rd birthday in January of this year. He was on injections for a couple of month, but we decided to go with a pump about 2 months ago and I believe it's been for the better for us.
As you know it was a huge shock, having support around you is a huge help.
Any questions don't hesitate.
Best