Newbie to forum.

Tankie1rtr

Member
Messages
23
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals, and Ignorance
Hello All.
I am a newbie to the forum, although I have been a type 2 diabetic for 10 years. I am 65yrs old and I live in York. United Kingdom, I am retired. I must admit that I am frightened the way my diabetes is going at the moment and the doctor doesnt seem to want to be bothered. I have looked on the imternet but as you know the more you read the more frightened you get. Can someone please tell me if there is a group on here that I can ask questions and someone listen and put my mind at ease.
Thank You
 
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Tankie1rtr

Member
Messages
23
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals, and Ignorance
Hi @Tankie1rtr
You can ask us any question you’d like.
We have a wonderful bunch of T2s who probably have some idea how you are feeling.
@Rachox @Goonergal @Guzzler might all be around...
Hi @Tankie1rtr
You can ask us any question you’d like.
We have a wonderful bunch of T2s who probably have some idea how you are feeling.
@Rachox @Goonergal @Guzzler might all be around...
Hello Diakat
Thank you for your reply. That is really good, do I put it on this part of the forum or another part.
Regards
Tankie
 

Goonergal

Master
Retired Moderator
Messages
13,465
Type of diabetes
Type 2
Treatment type
Diet only
Thanks @Diakat for the tag.

Hi @Tankie1rtr and welcome.

As Diakat says, please feel free to ask as many questions as you like.

Sorry to hear you’re struggling at the moment. What is it that’s frightening you? Has something changed recently?
 

Resurgam

Expert
Messages
9,867
Type of diabetes
Treatment type
Diet only
I have a doctor rather like yours - fortunately I do not need one and have not seen him since diagnosis almost three years ago.
I was born in York - a gargoyles spit from the minster, 68 years ago.
By eating a low carb diet I have managed to get back to the top end of normal readings for Hba1c, and am feeling a lot better than pre diagnosis.
 
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Tankie1rtr

Member
Messages
23
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals, and Ignorance
I have a doctor rather like yours - fortunately I do not need one and have not seen him since diagnosis almost three years ago.
I was born in York - a gargoyles spit from the minster, 68 years ago.
By eating a low carb diet I have managed to get back to the top end of normal readings for Hba1c, and am feeling a lot better than pre diagnosis.
Goonergal.
Thank you, so you will know York then. still the same, nothing has changed. I will put up how i feel and see if someone can help me.
Regards
Tankie.
 
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Rachox

Oracle
Retired Moderator
Messages
15,882
Type of diabetes
I reversed my Type 2
Treatment type
Tablets (oral)
Hello All.
I am a newbie to the forum, although I have been a type 2 diabetic for 10 years. I am 65yrs old and I live in York. United Kingdom, I am retired. I must admit that I am frightened the way my diabetes is going at the moment and the doctor doesnt seem to want to be bothered. I have looked on the imternet but as you know the more you read the more frightened you get. Can someone please tell me if there is a group on here that I can ask questions and someone listen and put my mind at ease.
Thank You
Hi Tankie, fire away with any questions you have, there’s always someone around to help. Til you get used to the forum, just put your questions in this thread.
 
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Tankie1rtr

Member
Messages
23
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals, and Ignorance
I was diagnosed with type 2 diabetes 12 years ago, and i have been on insulin for 10 yrs, everything was ok, I was on 50 units of insulin (Humalog Mix 24) and 50 units in the evening, my HBA1C was fantastic and they were very happy with me. in March I snapped my Achilles Tendon and I was put on an Injection every day to stop any blood clotting, It was making me wee a lot. and I had my foot n a special boot for 4 months, I could not remove it, I even had to sleep in it, it was around this time i started having very low blood readings when i went to bed, it went as low as 3.5 at one time, and it also showed Keytones, I was vomiting and then started going very hot and clammy, I had to drink a bottle of Lucozade to bring my blood sugars up and lay underneath the cold ceiling fan after about 1 hour I would start to feel better, I contacted my doctor who told me to drop my insulin down to 45 units, I did this and it helped, but is still started feeling sick when I went to bed although my blood didnt drop as much, I told the doctor and he took me off one of my tablets Bezafibrate. (I also take Metformin). I had my boot removed 6 weeks ago and I stopped using the injection, but since then my bloods have been up and down drastically. when i go to bed at night my blood can be 7.5 i can lay in bed and read my book for an hour and my blood reading will drop within an hour down to 4.5, when i know it is dropping so drastically and I can also feel myself feeling poorly, I take some glucose tablets to bring my sugar up, when i get up in the morning my blood readings can be as high as 11. on one reading it also said 'Keytones' This frightened me because someone told me that if i get them it will poison my body and can cause death, tonight I started going light headed and feeling a bit strange, I checked my blood sugar and it was reading 7.5 i took it again half hour later (10 minutes ago) and it shows 6.5 so it is dropping again, I have just taken a glucose tablet to arrest it, and I have stopped feeling shaky, I am also losing weight, I was also told that this can be down to keytones. so its frightened me about these keytones and whats going on with my blood going up and down. I do not eat Chocolate, Cakes or Sweets. or sugar in my Tea / Coffe, my daily meals are usually, |Cornflakes and skimmed milk for breakfast about 09.00, a sandwich for dinner about 13.00/13.30 and for my evening meal Jacket Spud with Veg and some filling, Any help would be gratefully accepted as i am sure the stress doesnt help. Thank You.
Tankie
 

Tankie1rtr

Member
Messages
23
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals, and Ignorance
Hi Tankie, fire away with any questions you have, there’s always someone around to help. Til you get used to the forum, just put your questions in this thread.
Thank You Rachox.
 

Antje77

Oracle
Retired Moderator
Messages
19,420
Type of diabetes
LADA
Treatment type
Insulin
Do you mean you've tested with a ketones test strip to check for ketones? Many glucose meters say ketones when your blood glucose is too high, meaning a suggestion to check for ketones, not that you have them. Ketones are tested with different test strips.
 
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Goonergal

Master
Retired Moderator
Messages
13,465
Type of diabetes
Type 2
Treatment type
Diet only
Hi @Tankie1rtr

Thanks for sharing your concerns. I must admit that having never taken any meds / insulin for diabetes, I’m not able to offer any insights from personal experience.

The stress and Achilles problems won’t be helping, but it sounds like a review with your doctor or nurse would be in order as you’re experiencing erratic blood sugars which are making you feel unwell. If you haven’t been trying to lose weight but are doing so, that would be another reason to get yourself checked out.
 
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Tankie1rtr

Member
Messages
23
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals, and Ignorance
Hi @Tankie1rtr

Thanks for sharing your concerns. I must admit that having never taken any meds / insulin for diabetes, I’m not able to offer any insights from personal experience.

The stress and Achilles problems won’t be helping, but it sounds like a review with your doctor or nurse would be in order as you’re experiencing erratic blood sugars which are making you feel unwell. If you haven’t been trying to lose weight but are doing so, that would be another reason to get yourself checked out.
Thank You Goonergal. I am going to request that I can go to the Hospital Diabetic Centre as the doctors do not seem to be interested in diabetes at all.
 

Diakat

Expert
Retired Moderator
Messages
5,591
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
The smell of cigars
sadly many GPs have little idea on diabetes
 
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Tankie1rtr

Member
Messages
23
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals, and Ignorance
Do you mean you've tested with a ketones test strip to check for ketones? Many glucose meters say ketones when your blood glucose is too high, meaning a suggestion to check for ketones, not that you have them. Ketones are tested with different test strips.
Antje77. Thank you. No I have not tested with a keytone strip, it showed on my blood monitor, 16mmol and underneath that it said 'Keytones' if my blood reading is low, that disappears.
Thank You
Tankie
 
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Goonergal

Master
Retired Moderator
Messages
13,465
Type of diabetes
Type 2
Treatment type
Diet only
Thank You Goonergal. I am going to request that I can go to the Hospital Diabetic Centre as the doctors do not seem to be interested in diabetes at all.

That sounds like a good idea. For what it’s worth, your blood sugar levels are not dropping dangerously low - 4.5 is a perfectly safe level. If you’re used to higher blood sugar levels it could be that you’re experiencing what’s known as a ‘false hypo’ where your body reacts as if you’re having a hypo as it’s not yet used to running a little lower. That could explain some of the lightheadedness. Unless you’re dropping below that, the glucose tablets may not be necessary.

@Diakat and @Antje77 might have a better idea about that as they use insulin.
 

Guzzler

Master
Messages
10,577
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
Poor grammar, bullying and drunks.
Hello and welcome to the forum. I am in West Yorkshire so only a stone's throw away from you.

I agree with Goonergal in that I feel you need a review. The injury and the medication for it seems to have really messed with your Diabetes management and because we are not allowed to advise on meds (and because I have no experience with insulin) then I think that is the best advice.
You clearly cannot go on like this this with the fluctuating blood glucose levels and feeling so poorly. Added to that the weight loss is a red flag.

So, back off to the Practice to make an appointment to have a full review with a DSN (Diabetes Specialist Nurse) or better still try to get a referral to an endocrinologist if you can.

There is always someone here to speak to, the support here is second to none so keep posting with any questions or fears you may experience. Good Luck.
 

Diakat

Expert
Retired Moderator
Messages
5,591
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
The smell of cigars
I understand why you may feel like you need glucose tabs at 4.5 - dropping quickly is not a nice feeling- but one should be enough to help at that level. If it happens again try just one, wait 15 minutes then test again and you should see a rise.
A “proper” hypo would be under 4 (there are medical definitions of under 3.5) but let’s keep you on the safer side with large insulin doses.
If no rise with one tab try another.
 

Tankie1rtr

Member
Messages
23
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Cruelty to Animals, and Ignorance
That sounds like a good idea. For what it’s worth, your blood sugar levels are not dropping dangerously low - 4.5 is a perfectly safe level. If you’re used to higher blood sugar levels it could be that you’re experiencing what’s known as a ‘false hypo’ where your body reacts as if you’re having a hypo as it’s not yet used to running a little lower. That could explain some of the lightheadedness. Unless you’re dropping below that, the glucose tablets may not be necessary.

@Diakat and @Antje77 might have a better idea about that as they use insulin.
Goonergal. Thats a relief, I woke up Tuesday morning feeling off, and i took a reading that was 3.2 but unusual I didnt feel sick on that one. I took a Glucose tablet, felt better then went to sleep, that has helped me to know that 4.5 isnt dangerous, I am still concerned WHY it drops as it does, If it reads 7.0 I am worried about going to bed in case it drops again as it does and i wake up feeling bad or it has dropped so low, that I need to arrest it before i can get to sleep and stop feeling bad. my other concern is why it goes so high, and at what height it becomes dangerous,
Thank You
Tankie
 

VashtiB

Moderator
Staff Member
Messages
2,283
Type of diabetes
Treatment type
Diet only
Hello and welcome,

I'm a type 2 though not on any medication apart from metformin. You will find lots of advice and help here so you've come to the right place.

I'm sorry you're having such a stressful time. I agree that you should get a review. It might be helpful for the review if you keep a lot of what you have been eating, what medication you have taken, what exercise you have done and even how you are feeling. Stress can effect the bs levels. This type of log would give some more information in addition to your readings.
Levels of 4.5 aren't proper hypos but I can understand why you feel concerned about the rapid drops.

Good luck- I'm sure someone with more expertise will come soon- there are many on this site and always ready to help.