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Newly diagnosed diabetes type 1

Hi @Sarahloucox1989 , sorry you are joining the club. Please don't worry too much about the injections - you will probably be given pre filled insulin pens to use with 4mm needles (teeny tiny needles I promise). Honestly, you will be fine with that the injections, the specialist / DSN will talk you through the injection technique, the first one will be a bit daunting but you will soon get used to it and do it while doing three other things!

Are you at home this weekend? Do you have a way of testing your blood sugar or any medication or is all that waiting till you see the specialist on Monday? Is there someone sensible with you? Hope you are not feeling too rough & you are being looked after.

There will be a lot of information to take in on Monday and it's a lot to get your head around. You should be given contact details for a diabetic specialist nursing team and they will be available to support you over the next few weeks - don't hesitate to get in touch with them to ask for help.

Think like a pancreas is a great book to use as an introduction to dealing with type 1 - if you feel like figuring out what you are going to have to face, it's a good place to start.

And there is always lots of support on here. Make sure you take care of yourself this weekend and any questions now or when you have seen the specialist throw them on here (as well as asking your DSN).
 
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Hi @Sarahloucox1989 :)

First advice - don't panic :) Type 1 is hard work - lots to take in - but it does get easier :) Doing your own injection is scary the first time, but the insulin pens have tiny, very slim needles so it soon becomes second nature.

I'll tag @daisy1 who has some basic info, but do check out the Type 1 section here and ask whatever questions you like :)
 
@Sarahloucox1989

Hello Sarah and welcome to the forum :) Here is the information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will be able to help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

LOW CARB PROGRAM:
http://www.diabetes.co.uk/low carb program


Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi and welcome. Don't worry about the injections - I find them less painful than the meter finger-prick lancets. You do get used to the injections being part of daily routine and the only nuisance is carrying the kit around when out. The good news is that for most of us the insulin gives very good control.
 
i was diagnosed last wednesday and been on blood test and insulin everyday since.. multiple pricks a day. scary at first, but after a while, you get addicted and might actually look forward to the next test and that sweet lil prick that comes with it.
before you get there... or if you don't, just keep focusing on getting it right and perfect. exercise some obsessive compulsive, like where exactly you want to prick, how many seconds to do each test etc..
and nurse say take a deep breath and it doesn't hurt.
oh, and "it's just fats you are poking! yicky fats!" that's from another nurse. helped.
 
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