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Newly diagnosed with very high numbers - confused by symptoms

Discussion in 'Newly Diagnosed' started by jjne, Jun 22, 2021.

  1. HSSS

    HSSS Type 2 · Expert

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    Can you get a libre (even just one) to see what’s happening with overnight levels? There was a free trial a while ago, not sure if it’s still on or not. It’s about £50 for 2 weeks data otherwise. No prescription required and available via a pharmacy (don’t forget you are entitled to vat free as a diabetic but you might need to check with them they have deducted that).

    There’s also a thing called adaptation glucose sparing aka physiological insulin resistance, that shows up as a morning stubbornness in fasting readings and misleading oral glucose tolerance tests. It’s purely a response to low carb and not pathological or harmful. It goes away within a few days of eating carbs should you ever need that test.
     
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  2. LoriF

    LoriF · Active Member

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  3. jjne

    jjne · Well-Known Member

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    CT scan turned up nothing alarming.

    Awaiting blood test results for c-peptide.
     
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    #123 jjne, Jul 28, 2021 at 10:29 AM
    Last edited: Jul 28, 2021
  4. Resurgam

    Resurgam Type 2 (in remission!) · Expert

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    I am given to bouts of exertion - building a greenhouse by myself when the instructions call for two men and a mallet, for instance, or deciding to move the knitting machine station to another part of the house - or servicing 24 knitting machines at the University in a heatwave. Maybe that is a good thing.
    It has certainly made for some happy courgettes. They seem to be the variety 'Triffid' - though the leaves do not - yet - turn towards me when I go in with water.
     
  5. lucylocket61

    lucylocket61 Type 2 · Expert

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    Can you provide a link to this idea please? Blood is blood, no matter what part it is taken from with a lancet.
     
  6. lucylocket61

    lucylocket61 Type 2 · Expert

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    I am not referring to the interstitial fluid thingy.

    I notice that using more than one finger on a hand to take a repeat test isnt reliable, so i make sure I use different hands. I assume its due to the healing whatever's rushing to the broken skin on one finger, which travels down the hand.
     
  7. jjne

    jjne · Well-Known Member

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    Point taken. No further hypotheses will be mentioned, you won't have to suffer the waffling any further.
     
    #127 jjne, Jul 28, 2021 at 2:19 PM
    Last edited: Jul 28, 2021
  8. Resurgam

    Resurgam Type 2 (in remission!) · Expert

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    But but but - I love hypothesising and reading about expected or unexpected happenings - if there are no interesting posts to read on here I might have to go and watch the Sumo highlights....
     
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  9. jjne

    jjne · Well-Known Member

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    I would like to thank everyone on this forum for your help, it is massively appreciated, and I'd like to apologise for twisting about various weird observations along the way.

    After fasting for 48 hours, something amazing happened. I'm still experiencing Dawn spikes, and bg levels still fall slowly through the day.

    However, these last three nights my blood sugar levels at about midnight, always the lowest time for me, have been falling precipitously. 7.8, 7.6 and tonight 7.1 (all confirmed with a second meter). These are almost non-diabetic numbers, and even the daytime numbers are in the 8s or low 9s now.

    I am aware that my numbers tend to rise mid-week and fall at weekends for some reason but these figures really are cause for celebration. If this becomes a pattern I am on course for reversing this thing without requiring strong medication.
     
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  10. HSSS

    HSSS Type 2 · Expert

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    Happy to hear you are happy and things continue to slowly improve. It’s fine to discuss ideas and explore your conditions and your understanding, no need to apologise. If no one ever had new ideas or asked about them we’d learn little in life.

    Is there something mid week that varies in that or the build up eg exercise or stress maybe? A cheat day that takes a while to get over (probably not for you but it is another potential cause for others reading this later with similar issues).
     
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  11. jjne

    jjne · Well-Known Member

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    The only real difference between weekend and weekday is work, so I suppose stress (more frustration at present!) could be a contributing factor.

    Sadly the initial euphoria didn't last as my sugars are back on the upward slope again, although I do seem to be back down to the 7s each night - so I'm assuming that is the new "set point" but whatever mechanism is pushing glucose back in (and I'm not entirely sure it is dawn spike any more as I stayed up very late the other day and the levels spiked back up *before* I retired for the night - it seems like some kind of rebound / reaction to the level lowering) is continuing to do so.

    No, no cheat days :) The nearest I get is the occasional block of cheese mid-afternoon when I'm supposed to be OMAD. I know, shoot me...

    As an aside I think I need a new set of bathroom scales. Mine are cheating I think - they show a value to 100g of precision but step measurements in blocks of 700g! Cruddy cheap Amazon junk lol. So I appear to remain precisely the same for a few days then go down a kilo and a bit. Aye right.
     
    #131 jjne, Aug 3, 2021 at 5:14 PM
    Last edited: Aug 3, 2021
  12. HSSS

    HSSS Type 2 · Expert

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    “Dawn” phenomenon can happen at anytime of the day. It’s usually in response to not being fed for a while and a keen liver sensing lowering levels and wanting to be helpful and bump you back up. So yes relevant to the set point more than the sun. Dawn is simply when it most commonly occurs.

    Hey, at least the scales are going down even if jerkily.
     
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  13. jjne

    jjne · Well-Known Member

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    Had another of those little "episodes" that I now know are almost certainly false hypos last night, although I now know not to worry about them.

    Went to bed early, in the middle of the night had a nightmare where I couldn't breathe properly, work up in a cold sweat with nausea, heart racing, got up and had a drink, blood glucose down in the high 5s/low 6s (measured a few times).

    Within an hour, felt fine, measured again in the low 9s... my system is fighting this change in circumstances all the way! Back in its "normal" morning routine low 8s now.

    You will not win...
     
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  14. Dandelade

    Dandelade · Well-Known Member

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    I had the same thing with false hypos and my body just got used to the new lower level. It still happens when I get in the 4’s - when this happens if I don’t do anything I get a rise presumably from liver dump, but if it eat a really small snack it seems to trick my liver into not dumping. Just a handful of nuts or small portion of cheese does the trick for me.

    Mind you, I’m very new too and no idea if this is the right thing to do or if it would help you, but it’s worked for me!
     
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  15. jjne

    jjne · Well-Known Member

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    That's a very good idea actually, next time this happens I will grab a block of cheese or make myself an omelette or something, thanks!
     
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  16. HSSS

    HSSS Type 2 · Expert

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    I do similar in the morning to halt the dawn phenomenon without causing a new rise. Anything small and non carby. Hard boiled egg works well as a grab and run.
     
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  17. jjne

    jjne · Well-Known Member

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    An update - my numbers are really starting to come down now - seeing more and more 7s, one-third are at that level over the last couple of weeks and over the last few days make up the majority of readings, so I believe this is actually "pre-diabetic" level now (although this will in part be the result of a still-high metformin dose). Only the odd 6 so far but hopefully that will be the next step.

    So yeah those who said this would come down in steps was spot on.
     
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  18. Resurgam

    Resurgam Type 2 (in remission!) · Expert

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    That is good to read - once I was seeing numbers in the 7's things really began to get better. I think there is some significance to not breaking 8 at 2 hours after eating.
     
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  19. SuNuman

    SuNuman Type 2 · Well-Known Member

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    I agree!! Dance round the room. Lol.
     
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  20. EllieM

    EllieM Type 1 · Moderator
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    That's awesome, I remember how discouraged you were when your levels seemed stuck at a much higher point. Did you ever get your cpeptide back, by the way?
     
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