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No funding for my libre. As don't fit criteria. Thanks to Libre!

smag3

Well-Known Member
Messages
104
Location
York
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Doctors telling me that I probably know more than them
So having funded the libre myself for the past 3 years, I asked if I could have it on prescription.
Response was NO, as I did not fit the criteria of poor control, frequent hypos, testing more than 10 times in a day. I explained I don't have any of those issues thanks to the Libre. NO was the response. Sigh.....
 
Might be worth another try in April when the rules change, no idea if they will change their stance.
 
You are not alone.
I am sure it doesn't make you feel any better but we are "rewarded" for taking interest with our diabetes with a pat on the back, only.
 
Same here, I don't get funding, but not bothered as willing to self fund regardless and now use the G6 even though it's a massive stretch each month, it's the fact I can get much better control and as long as that keeps me out of trouble I'm more than happy to.
 
Yup exactly the same for me and my consultant says it won't change come April 1st.
 
slip said:
But you most probably scan at least 10 times a day.....................
Click to expand...
I do, but the CCG's will not recognise a scan using Libre and insist that the scans must be by fingerpricking and you must fingerprick at least 8 times a day, which sort of defeats the point of the Libre.
 
Does anyone have a problem with the libre device falling off their arm?

Also, so you have your iPhone device complete with app. Do you scan to get historical readings or is the data trickle fed realtime?
 
Listlad said:
Does anyone have a problem with the libre device falling off their arm?
Click to expand...
I know a number of people have had problems getting them to stay stuck on so there are various threads about what to use to keep them stuck on, personally they stick to me like superglue, getting them off after 2 weeks is my challenge!

Listlad said:
Also, so you have your iPhone device complete with app. Do you scan to get historical readings or is the data trickle fed realtime?
Click to expand...
You have to scan at least every 8 hours because the sensor itself can only hold that much data, by itself you have to scan it (using the reader and/or your phone to get the data) to get the data.
However there is at least one gadget that you can buy to make it talk to your phone such as the Miao Miao I think (I've not got one so can't say much about it, I may have also spelled it wrong)
 
Listlad said:
Does anyone have a problem with the libre device falling off their arm?

Also, so you have your iPhone device complete with app. Do you scan to get historical readings or is the data trickle fed realtime?
Click to expand...
The Abbot website have a few videos which should help answer your questions if you are thinking about getting a libre.
Take a look here
 
helensaramay said:
The Abbot website have a few videos which should help answer your questions if you are thinking about getting a libre.
Take a look here
Click to expand...
Okay thanks. I have also just given them a call.

It seems the data goes to the cloud and once there one can go online and view it in a nice graphical form...
 
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Yesterday I saw my Diabetic Consultant for my annual review. I asked him how the new guidlines for issuing the Libre on prescription would change and if I was likely to get it. Once again he said no because my diabetes was well in control with my HB1AC reading at 7.0 ie 50 mmol/mol and therefore I would not qualify. I asked him what the point of the new guidlines were and he said it was purely to bring all the CCG's into line and ensure that some areas who were issuing them willy nilly and others that were being very strict used the same criteria He went on to say that he thought it very unlikely that more diabetics would get them on the NHS. I pointed out to him that when I was buying my latest sensors from Asda, the pharmacist was astonished that I was having to pay for them and that just that very day she had handed out 5 to one customer and 7 to another, both on prescription. His response to that was " Well that's why new guidlines are being brought in." I'm not very optimistic that things will change much come April 1st.
 
@Copernicus things do not appear to be fair wrt Libre funding.
However I would not judge my qualification on what was said by a pharmacist who knows nothing about the diabetes management of the 5 people she knows have it on prescription.
Yesterday I was told I probably would qualify but the CCG has decided to prescribe no more until April.
 
They said it would open it up to 25%, not holding my breath. It is just about bringing the CCGs into line. Which is a good thing, but the media have fuelled a belief that all will get it. We won’t!
 
I know my diabetes Center are expecting a lot more people to get them. Currently they handle it all in house as it were and under 18s, pregnant women etc have to go to the hospital to pick the sensors up. Their concern is that they can’t do all the extra people that way and need them to be dispensed via the pharmacies, so they are trying to sort that out.
 

So presumably some people who are currently getting them will now be cut off? I can see some
"My CCG will no longer give me the libre" threads coming up soon.
On the plus side, I suspect that things were probably similar when they first started introducing glucometers. Give it 5 years and we may well find that everyone who wants can have one. (Once the sums are done and they realise that there are real savings in reduced hba1cs and reduced visits to A&E with hypos and DKAs).
 

I agree Ellie but it's a shame that 5 years may be too late for some.
 
Not everyone who wants a glucometer gets one still (most type 2’s don’t). I suspect it’ll take more than 5 yrs for libres to available even to all type 1’s.
 
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