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Normal bsl readings upon waking

Rox000

Rox000

Well-Known Member
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My daughter is non verbal and has Autism. My only solid mechanism is to check her bs quite regugarly as she is t1 6 weeks in and im a nervous wreck!!!
Her endocronologist said her sugars should be between 8-10mmol given her disability and non ability to recognize hypo and hyper symptoms.
Im nearly there with ALOT of hard work but i worry at night when they drop 5 points and dont get much sleep as im taking her bsl 3times during night to ensure i catch a hypo. Its terrible... I dont feel i have much quality of life left in me. Im exhausted..any advice is welcome... Cheers
 
What have the overnight tests been revealing.....? Does she have hypos regularly through the night?

I think she is an ideal candidate for a CGM, if you are not using one already.......they have alarms you see....

Is there anyone else who could help out to give you some respite......? Short of that its really just a case of getting the doses right and gaining some more confidence in the insulin doing its job.....which for children can be difficult....
 
Thanks for replying.. I carb count i learnt that pretty quick... She has supper as she is on novomix. 30. Generally they drop gradually during the night... But then haunt me by dropping 5 points when ive given her the same supper the night before... So frustrating
Do they ever stabilize a little?
As far as a CGM goes she has sensory issues and cannot tolerate anything like that on her skin... (cannulas are a nightmare too
Thanks so much for your thoughts
 
Rox000 said:
Thanks for replying.. I carb count i learnt that pretty quick... She has supper as she is on novomix. 30. Generally they drop gradually during the night... But then haunt me by dropping 5 points when ive given her the same supper the night before... So frustrating
Do they ever stabilize a little?
As far as a CGM goes she has sensory issues and cannot tolerate anything like that on her skin... (cannulas are a nightmare too
Thanks so much for your thoughts
Click to expand...

That's a shame about the sensory issues......maybe it might get better in the future.....

As we grow into adulthood they do stabilize, yes.....there is always the general unpredictability of the human body but with the right tools you can deal with that....

Novomix 30 isn't the best in my opinion as you can't separate the basal and bolus insulin's so as to adjust them independently.....

if you were using a basal/bolus regime you would only have one dose of insulin responsible for the overnight readings, thus making it much easier to control.....

but, you might be on the mix for a specific reason and you should speak to your doctor about the different regimes available if you feel it would help..
 
hi there @Rox000
welcome to the forum.:)

I want to send a hug first [[[hug]]]
I know it can't be easy as all parents worry about their children.

are you in pretty constant communication with your daughter's DSN ( diabetic specialist nurse) ?

I also agree that basal / bolus is more suited to type 1 -- do ask about this at hospital.

I would buy the book "think Like A Pancreas" -really helpful

perhaps as things settle down over the next few weeks / months you will be able to reduce the nighttime testing to a bit less often.
 
Something that may help is the Medtronic CGM. She won't know it's there after 10 min. I have the Libre and you really forget about it fast I know she has sensory issues but worth a try. I'm not certain how it works without a pump, but I'm led to believe it will send you an alert on your phone if her sugars fall too low. I could be wrong, but it's worth chasing them up. In Australia, I'm pretty certain she would eligible for a subsidy, that will at least let you get a peaceful nights sleep. I know your daughter would tell you if she could what a great job you are doing.
 
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Thanks guys... Its a tough one i know. The novomix was chosen for lifestyle purposes as i am the only one administrating the insulin twice a day and im heading back to work in a month in the hope things settle down a little.
Ive literally read til my eyes pop out on everything from carbs to types of insulin to current type 1 diabetic research.
The medtronic sounds great and ive researched those too lol... However 10min is like 2 hrs to a person with autism especially with sensory issues... So maybe thats something i can work towards desensitising her real slowly...
Im so happy to have a place where people really 'get it '
Thanks guys
 
Hi @Rox000 Just wanted to say hello - some good advice already given about changing insulin. I know it must be incredibly challenging for you, so you have come to the right place for support. Sounds like you are already doing an amazing job, it will get easier in time, there's just alot to learn, the NHS support is great so hopefully you have a good DSN to guide you along, best wishes J
 
Can she check her own blood sugar? You said you will be going back to work soon so I think it would be good if she did it herself, so that she is able to when you are not there. Also I think you should get a cgm so you don't have to keep going in to see her, it might hurt going in but you don't really notice it there most of the time so she shouldn't be bothered by it. As a fairly thin person, I put cold packs on my stomach before insertion in order to reduce bleeding, it can also help with the pain so you might try that.
 
unfortunately she cannot...she has carers that are trained to do that when i am at work. Having autism comes with so many hurdles already add in the non verbal part and its really tough. Given that info she has really accepted this diagnosis and run with everything i am doing for her. I doubt she understands it but im at least grateful that she has always been a fighter..she has epilepsy too...so i need to do this for her...thats what keeps me going
 
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