1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2020 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Not only doctors giving duff information

Discussion in 'Diabetes Discussions' started by busygardener, May 30, 2019.

  1. lucylocket61

    lucylocket61 Type 2 · Well-Known Member

    Messages:
    4,374
    Likes Received:
    1,785
    Trophy Points:
    178
    it seems a no brainer that you cant pick up any increase in blood sugar levels if they wont give you strips to test with. WOW. Thats tough.
     
  2. Concordjan

    Concordjan Type 2 · Well-Known Member

    Messages:
    232
    Likes Received:
    235
    Trophy Points:
    83
    I have tried various things but just feel my liver is trying to be more helpful than my pancreas!
    It’s only what I expected from the dn, never had any help from her or doctors.
     
    • Hug Hug x 1
  3. DianaMC

    DianaMC Prediabetes · Well-Known Member

    Messages:
    147
    Likes Received:
    45
    Trophy Points:
    68
    • Like Like x 1
  4. TriciaWs

    TriciaWs Type 2 (in remission!) · Well-Known Member

    Messages:
    534
    Likes Received:
    320
    Trophy Points:
    123
    Unfortunately current advice from NICE is that type 2s don't need to test - a cost cutting exercise that ignored the whole low carb/diet and monitoring impact.
     
    • Like Like x 1
    • Agree Agree x 1
    • Informative Informative x 1
  5. Guzzler

    Guzzler Type 2 · Master

    Messages:
    10,582
    Likes Received:
    6,973
    Trophy Points:
    278
    If it was just down to cost to the NHS I could understand but to actively try to deter someone who is willing to self fund in an effort to improve outcomes? That seems counter intuitive to me and smacks of HCPs unwilling to relinquish control.
    Yes, you can call me cynical if you like.
     
    • Agree Agree x 2
    • Like Like x 1
  6. Jim Lahey

    Jim Lahey I reversed my Type 2 · Well-Known Member

    Messages:
    4,338
    Likes Received:
    3,295
    Trophy Points:
    198
    When it comes to the subject of costs, one has to remember that one person’s cost saving is another’s lost profit. It all depends on who’s pulling the strings and where the influence is coming from. Test strip advice clearly isn’t about cost saving in any logical sense, because the strips would save the NHS goodness knows how much in amputations alone, and that’s before we even go down the rabbit hole of hypertension, heart disease, and everything else related to metabolic syndrome. For every penny the NHS saves on test strips, it probably costs them a pound to treat the consequences with surgery and pharmaceuticals. Sadly there are forces at work who have an interest in things staying this way. The NHS itself, as a system, is an innocent victim of capitalism.
     
    • Agree Agree x 5
    • Like Like x 1
  7. Jim Lahey

    Jim Lahey I reversed my Type 2 · Well-Known Member

    Messages:
    4,338
    Likes Received:
    3,295
    Trophy Points:
    198
    You’ll be vying for the top step of the podium along with myself and @bulkbiker :hilarious:
     
    • Funny Funny x 2
    • Like Like x 1
  8. Bluetit1802

    Bluetit1802 Type 2 (in remission!) · Guru

    Messages:
    24,803
    Likes Received:
    30,398
    Trophy Points:
    298
    In the old days everyone was given a meter and strips, but were not told how to use them and what to make of any results. I imagine they were told to test at the most once a day, most likely once a week. Clearly this was not helping anyone. HCPs have no idea and have never been shown that testing before and after meals to test out foods actually works. I imagine it was all costing one heck of a lot of money with no benefits. In other words, they were seen as loss makers and virtually withdrawn from use.
     
    • Agree Agree x 5
    • Informative Informative x 1
  9. Grant_Vicat

    Grant_Vicat Don't have diabetes · Well-Known Member

    Messages:
    654
    Likes Received:
    989
    Trophy Points:
    153
    If she had a brain, she'd be dangerous!
     
    • Agree Agree x 3
    • Funny Funny x 2
  10. lucylocket61

    lucylocket61 Type 2 · Well-Known Member

    Messages:
    4,374
    Likes Received:
    1,785
    Trophy Points:
    178
    I have lost count of how many times I have been asked why bother testing as I cant do anything about the result. I am glad to say that, nearly always, this has led to a teaching moment about carbs and their relationship to blood sugar levels. It only took a couple of years for my DN to get the hang of it, and many other people have benefited from me mentioning it, not just from me speaking, but becasue my DN nw also spreads the word. She still doesnt say to test, but she describes the relationship better now. She told me this good news on my last review. :)
     
    • Like Like x 4
    • Winner Winner x 3
  11. PenguinMum

    PenguinMum Type 2 · Well-Known Member

    Messages:
    4,574
    Likes Received:
    12,736
    Trophy Points:
    198
    I wonder if in time to come this will become a massive health scandal that will go to Tribunal (like the contaminated blood one currently which has taken 30 years) because the NHS withheld and discouraged use of a simple tool to prevent serious injury or death to their largest patient group. I just cant see my children’s generation taking that on the chin and rolling over. Its negligence IMO.
     
    • Agree Agree x 6
    • Like Like x 1
  12. pixie1

    pixie1 Type 2 · Well-Known Member

    Messages:
    244
    Likes Received:
    172
    Trophy Points:
    103
    First of all Congratulations on your recovery.
    Secondly pharmacists do say, you don't need to test.

    When this forum sends out articles or posts on Facebook. It's amazing how many people say: don't need to test, swap from simple to complex carbs, eat a healthy balance diet because its bad to miss out whole food groups,
    Follow the advice given by the Dr, and dont low carb, its bad for you.
    Yeh right,
     
    • Funny Funny x 2
  13. Listlad

    Listlad Prediabetes · BANNED

    Messages:
    3,973
    Likes Received:
    1,906
    Trophy Points:
    198
    One of my GPs told me that test strips are expensive so they don’t issue them unless there is a risk of a hypo.
     
  14. poemagraphic

    poemagraphic Type 2 · Well-Known Member

    Messages:
    689
    Likes Received:
    1,128
    Trophy Points:
    158
    I would have written all of this with my caps lock on.... except I have been told off already for shouting Jim. ;)
     
  15. Bluetit1802

    Bluetit1802 Type 2 (in remission!) · Guru

    Messages:
    24,803
    Likes Received:
    30,398
    Trophy Points:
    298
    You are right, of course. However, it is very clear that the NHS has not "discovered" that testing meals and so forth is an option. Everyone was prescribed test strips at one time but no-one knew how to use them to their advantage. They were told to test at most once a day, testing meals was never recognised and still isn't. It must have become clear that this was a waste of money because they didn't help people to improve their diabetes and did not reduce the dangers of complications or increased medications.. It was unknown for T2s to attain remission or good control with the use of test strips. So ... in the absence of advice to test before and after meals, hardly anyone got better. Therefore withdrawal of these prescriptions was seen as a good cost cutting measure, and that is the status quo. NICE and HCPs need to be made aware of how testing does help enormously when done properly in a structured fashion. Maybe once that hurdle is overcome, they may be made available again.
     
    • Agree Agree x 2
    • Informative Informative x 1
  16. KK123

    KK123 Type 1 · Well-Known Member

    Messages:
    2,324
    Likes Received:
    1,427
    Trophy Points:
    198
    I sometimes wonder whether the reason they won't give strips and a meter to the type 2s who WANT to test, is because they know that those people care about their health to the extent that they will take precautions no matter what. They know that those people are more likely to buy their own if they don't get given them so they are probably thinking 'Why should we bother'. It's a similar principle for the allocation of a libre, talk about jumping through hoops. Those showing an active interest in monitoring and managing their diabetes are NEVER the priority when it comes to help. I do get that the NHS has a budget but I also think they could make better decisions based on the individual in front of them (who is TRYING) rather than a blanket NO. I wonder whether type 2s who do not manage their diabetes as such get offered a meter & strips in order to improve?
     
    • Like Like x 2
  17. Tophat1900

    Tophat1900 Type 3c · Well-Known Member

    Messages:
    1,911
    Likes Received:
    1,101
    Trophy Points:
    178
    Gotta love bureaucracy... don't need to test. Type2's newly diagnosed literally have very poor control, often accompanied by poor blood test results in general. You'd think it would be a priority to try and get better control and that can't be done without measuring. So let's offer nothing to these poor unfortunate people in the way of help for measuring their levels, unless they are on hypo inducing drugs. They are struggling with the shock of diagnosis and don't know what to do next. They receive horrendous dietary advice that is backed by decades of complete failure, which if followed worsens one's health by accumulating complications, but somehow it's expert advice. And not only denied strips, but actively told they shouldn't test and some are berated for wanting to. It makes no sense to me.

    I don't know who is responsible for these decisions. It's a shame these officials can't be taught a lesson to make them understand what not testing is like. These officials should be asked to try and drive a car while blind folded. You wouldn't even get them behind the wheel, they'd think you're mad to suggest such a thing. To me that would be the point, because that's what not testing is like, you can't see what your levels are doing because you are effectively blindfolded by an unhelpful and at times deliberately aggressive system.

    Hats off to all those who self fund to test, even though they've been told not to.
     
    • Like Like x 2
    • Winner Winner x 1
  18. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

    Messages:
    2,023
    Likes Received:
    1,310
    Trophy Points:
    198
    I am leading a 'walk and diabetes' talk course aimed at pre diabetic and newly diagnosed type 2s.
    Am telling all to invest in a glucose meter and test at appropriate times. Not to make anyone neurotic but just so they know what is happening when they eat different foods. They seem receptive to the concept and it makes sense to the 2-3 people who do not want or need to lose weight but do need to improve their metabolic health.
    Ideally these guys should get a freestyle libre and use it for a couple of weeks with unlimited testing but a basic meter is cheaper obviously.

    I think that those prescribing test strips for those not on insulin feel that they would give themselves more work plus cost in terms on explaining how to test and how to interpret the results rather than actually help the patient help themselves.
    After all if you believe that weight loss and calorie control are the key to diabetes resolution then you will not expect your patients to lose weight (most people can't do that via calorie reduction) but merely to progress their diabetes whilst you keep an eye on the 'co morbidities' and hand out more drugs.
     
  19. NannaD

    NannaD · Member

    Messages:
    8
    Likes Received:
    7
    Trophy Points:
    23
    Which glucose meter is the best one to get - I am newly diagnosed Type 2 and I also think that if I test, I would like to know which foods to avoid.
     
  20. Thomas the Tank

    Thomas the Tank Type 2 · Well-Known Member

    Messages:
    59
    Likes Received:
    23
    Trophy Points:
    48
    I did just that when I did the worthless course. Plain simple language that what they were saying was outright dangerous! Then I walked out.
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook