Oh...

bulkbiker

BANNED
Messages
19,575
Type of diabetes
Type 2
Treatment type
Diet only
So, right now, my status is: "T2D (in rebellion...)"
Kind of how I felt when I was told that T2 was a chronic progressive disease and I'd end up on insulin.
I now use the surgery for testing ... usually get results online.
I found using the anger to prove them wrong was a surprisingly strong motivator. It has led to better overall health, significant weight loss and the departure of many weight induced conditions from my life. All without medication.
 

Freema

Expert
Messages
7,346
Type of diabetes
Type 2
Treatment type
Diet only
New here (although I've been lurking a bunch just recently!).

Newly diagnosed T2 - like, today.

So hi, all. I feel like this is going to become a second home, because right now I don't have the first clue.

A little shellshocked; this has all effectively happened in a matter of hours, really. Except it's been going on for ages, apparently.

I'm not one for going to the doctors, no matter how unwell I am. In fact, before yesterday, I hadn't been for 4 years, and previously 7 years before that, so my doctor tells me.

I have a bunch of 'stuff' I just... live with. I've had problems with my back since my early 20s. Sometimes I'm fine for months, and then sometimes I get weeks at a time where even the slightest movement (say, getting out of a chair...) can threaten to put it out. Sometimes I'll get a 'nerve pinch' that'll numb a leg for days at a time. And then it'll go away.

My eyes have been a problem since I was a small child. I won't bore you with the details, suffice it to say they just don't work like most people's eyes.

I've been an insomniac my whole life, and nothing I've tried has ever worked for more than a few days. And when I say I'm an insomniac, I mean I get around 3 hours sleep a night, and sometimes go 72 hours with no sleep at all. I've been tired for like 4 decades. It's my default state of existence.

I've always suffered from severe pressure headaches and 'fogginess'... but then apart from not sleeping, I spend like 12 hours a day staring at a computer screen, and have done my entire working life, as you do when you're a software developer (and really not very good at anything else...).

I spent a good deal of time back and forth to doctors for those various things in my youth, and frankly, got nowhere. My back issues were answered with a friggin resistance band and printed exercise sheet. My eye issues were answered with exercises involving my own finger. My insomnia was met with complete indifference (or rather, complete scepticism - I must be severely exaggerating my lack of sleep), and a suggestion to cut out coffee (yeah, right... it's literally the only reason I'm able to function) and the headaches attributed to same.

Which is why I just stopped bothering to seek medical advice.

Like I say, stuff you learn to live with. Plus, I'm getting older. I'll be 50 next year. Looking forward to my midlife crisis, tbh.

Then recently, the nerve pinch leg thing was getting worse... and not going away... to the point that I have a really severe throbbing pain in the butt almost constantly, and pins and needles in my foot most days.

But I deal with it like I've dealt with my back problems for decades, usually by walking it off. I walk everywhere - I don't even drive (because of the problem eyes!). I walk miles, every single day. To work, from work, to the shops and anywhere else I need to go, and around and about because I'm a nature photographer and fortunate enough to live in a beautiful rural area with acres of woodland. I probably walk 50 miles a week, easy.

And I'd been meaning to get an eye test, knowing full well I really needed new glasses, for some time. Partly because I also needed a new optician, because the last one was utterly useless. I finally went a few weeks ago because I was experiencing blurriness making it hard to read my screen. They ran a veritable battery of tests, including an eye pressure test, and the optician remarked it seemed very high, and that she'd like to test it again on another day. That would have been this weekend. Guess I don't really need the confirmation, now.

So then some alarm bells started ringing, that all these things I attributed to other entirely separate long standing causes actually seemed to have one thing in common... but I'm still doubtful (I'm usually making fun of people for Googling their own diagnosis!).

Easy way to check, though! So I went on Amazon and bought a blood glucose testing kit. It arrived Tuesday. So that evening, I unbox and give it a go. I haven't really eaten anything in 6 or 7 hours. I get a reading of 21.1 mmol/L. I look at the chart, which says 'DANGEROUS - seek immediate medical attention'. I laugh. That can't be right.

So the following morning, I try again. And get a 19.9. My initial thought is that I need to send the thing back to Amazon.

Still, I decide I better go seek immediate medical attention as advised, if only to get a (hopefully non)confirmatory reading. I told them my levels, but that I'm sceptical. They usher me in and take a test on their kit, and I get an 18.1.

Oh...

On the bright side, I guess my testing kit is working ok.

So then I'm instantly shipped off to the hospital for a raft of blood and urine tests, and told to come back 10.30 the following morning. Today.

Turns out I pretty much have sugar syrup oozing through my veins. I've been prescribed Metformin 500mg, to be ramped up from one a day to 3 a day over 3 weeks.

The frustrating thing is, with a few exceptions, I already have exactly the kind of diet recommended for a diabetic. I'm pretty low carb, not through any conscious effort, but because that's what I prefer to eat; it's all salads, veg, fish, chicken, red meat, nuts and dairy. I don't do sweets or cakes (except jaffa cakes. Who can resist jaffa cakes?). I rarely eat pasta or rice. If I eat bread it's wholemeal, olive bread or 'ancient grain' bread. I can't even recall the last time I had chips! Even my pizzas are 'No Dough' pizzas, because cauliflower is life. (Ok. Bacon is life, but cauliflower is a very close second). I drink a couple of pints of German lager a couple of times a week. The last time was like 5 days before my first readings, though.

So that doesn't seem to bode well from the standpoint of being able to manage it with a change of diet and exercise. Except I do like my fruit (grapes, plums, kiwi fruit, bananas and nectarines), which I guess I'll be cutting down on now. The only major change I think I can make really is to be more regular about my meals to avoid high and low peaks; I tend to skip breakfast, graze on a bag of mixed nuts throughout the day and eat a large meal in the evening.

The depressing thing is learning that the leg pain and numbness is likely neuropathic and is therefore irreversible nerve damage. I honestly don't know if I can reconcile with the idea that the pain I have in my leg right now is not going to go away, when just standing still or sitting down hurts like hell and the pins and needles almost sensory overload. Touching my own foot these days is done through gritted teeth and makes me break out in a sweat.

And I probably just wasted a bunch of money on new glasses that are gonna need changing if I manage to get my BG levels to somewhere below pure cane sugar. Still, it turns out that the few quid I just spent on a BG meter might just be the wisest purchase I've ever made.

So, I guess all the warning signs were there. Except I could and did easily attribute them elsewhere.

And apparently I can look forward to getting to know my doctor a whole lot better. And probably you guys. :)

Sorry. That turned out to be quite an epically long introduction. Well done if you made it this far!

Welcome here lack of sleep can lead to diabetes type 2 , but so can quetiapine ( in my case 400-600 mg)which I’ll ask if you have tried for your very servere insomnia , it has helped me greatly as a side effect of trying to cure my eternal depressions and stress ... makes me sleep like a baby

Maybe you could try also eating more Vegs high in potassium it could also help brain fog from not sleeping spinach( is high in potassium ) in smoothies f.x in high fat yoghurt with a little lemon and water
 
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Krx

Member
Messages
6
Type of diabetes
Type 2
Treatment type
Diet only
Hi! back for a ramble/rant...

I have to say, apart from the nagging leg pain, which is a fraction of what it was while I was on Metformin, I quite literally feel on top of the world. And literally every one of my friends has remarked (quite independently of each other) that I look ten years younger. Even ones I haven't told about my health issues and aren't just saying it to patronise me!

I haven't felt this good in decades. Probably because I was ill and extremely intolerant of the things I was eating on a daily basis and didn't even know it, I guess!

Clearly, having a "chronic progressive disease" agrees with me...

Or rather, ignoring everything the NHS has to say on the subject and adhering to the wisdom of people on this forum that have the benefit of years of experimentation and experience have allowed me to shortcut to more than just managing it, but more or less reversing it within a matter of weeks.

If I had taken to heart everything I've been told by doctors and diabetes clinics, I could very easily have spiralled into depression and lost all hope by now.

Honestly, in my opinion, they're not just giving out bad advice, they're actually doling out ignorant, ill informed and potentially downright dangerous information. It's really quite disgusting.

The nature of the leg thing has changed shape a few times with diet and dropping my meds completely. To the point where I'm actually beginning to wonder if I might, while completely unable to feel my foot, have done something more drastic, like a fracture or break. Now I can actually feel my leg again, although the pain hasn't diminished, It just doesn't feel like nerve pain. And what was largely exhibiting in my butt, has actually 'moved' back to my lower back, which is where I always had a problem anyway.

The biggest problem is that apparently I'm now defined by my 'disease', and whilst they're happy to dismiss the notion that what I experience is related to peripheral neuropathy, at the same time, they seem entirely reluctant to even attempt to diagnose what is really going on. Telling them I've passed out from pain a number of times left them completely unphased and still unwilling to even look into the cause.

So in the spirit of 'going my own way' with this whole saga, I've got a few local recommendations for a chiropractor and a sports therapist, and I'm going to see if any of those are willing to actually listen to what I have to say and offer any advice or relief. I realise they can't prescribe meds, but that's really not what I want anyway.

I still feel angry and let down by the appalling 'treatment' I'm getting from the NHS, but it's opened my eyes to the truth of the matter (Which apparently is that they have no idea what they're doing, and they don't care anyway...). I haven't actually told them I've stopped my meds or anything. I thought I'd wait for the inevitable self-congratulatory assertion that my 'miraculous' reversal of fortunes is down to their prescription meds before I dropped that particular bombshell on them. And I'll do so with an immense amount of satisfaction, believe me.

I guess my point is, for anyone reading... don't give up hope. Don't resign yourself to the fate they want you to believe you're destined for. Don't just accept a bunch of meds with nasty side effects for the rest of your life. Do your own research. Find your own path! After all, you know you better than anyone...

(Another 'side effect' of my 'condition' and determination to not be defined by it... if you knew me, a post like this would be incredulous. I am (I was) the ultimate pessimist. It turns out, after a change of diet, I'm actually a much nicer and more positive person than I thought I was. Who knew?).
 

Resurgam

Expert
Messages
9,867
Type of diabetes
Treatment type
Diet only
I too feel so much better controlling my blood glucose with diet alone - the blackberries and cream I just ate might have something to do with it - the deep depression I got into whilst taking the tablets is a vague memory now - I do remember having back back pain for years after my second child was born and it went away after I stretched my spine - I could feel the vertebrae clunking into place, and it hurt for a day or so, but I was half an inch taller and pain free - so a chiropractor might indeed be able to help - I was just told that I ought to lose weight and my back would get better, the cure was entirely accidental.
 
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EllieM

Moderator
Staff Member
Messages
9,290
Type of diabetes
Type 1
Treatment type
Insulin
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forum bugs
I have a minor congenital back issue (one of my vertebra is slightly out of position). My older brother has a severe version of this (his back is an S shape because the bottom of one slipped under the top of the one that was supposed to be beneath it) and had to have spinal fusion surgery in his early 20s (the surgeons were amazed he could still walk and didn't want to do anything which might change that). Anyway, as I hit 50 I started to get really bad back pain (couldn't stand for more than 30 minutes without pain and was regularly getting pain on medium walks). I duly went to physio and saw a back specialist/surgeon. The specialist told me he could operate, but that physio would have a good chance to reverse things without the operation. So after some specialist physio, and weekly trips to the gym that emphasise core body strength, I am symptom free, and able to go on pain free day long walks.
So the point is: many back issues can be treated by the right physio/exercise and/or an orthopaedic surgeon. Your GP may be useless, but they should be able to refer you to someone, and personally I'd recommend seeing them privately if it looks like the NHS queue is going to take forever.
Good luck, and well done on the T2 remission. (Though bear in mind that if your results get worse and you've no more carbs to discard, LADA can present very very slowly. A recent news article state that 38% of T1s diagnosed as adults started with a T2 diagnosis.. If you're T1 rather than T2, then insulin can be your friend, and you shouldn't fear moving onto it if it becomes necessary.)

Unfortunately your story confirms my suspicion that T2s are very much second class citizens under the NHS system.
 
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1spuds

Well-Known Member
Messages
375
Type of diabetes
Type 2
Treatment type
Diet only
Krx wrote........Or rather, ignoring everything the NHS has to say on the subject and adhering to the wisdom of people on this forum that have the benefit of years of experimentation and experience have allowed me to shortcut to more than just managing it, but more or less reversing it within a matter of weeks.

Honestly, in my opinion, they're not just giving out bad advice, they're actually doling out ignorant, ill informed and potentially downright dangerous information. It's really quite disgusting.

I still feel angry and let down by the appalling 'treatment' I'm getting from the NHS, but it's opened my eyes to the truth of the matter (Which apparently is that they have no idea what they're doing, and they don't care anyway...). I haven't actually told them I've stopped my meds or anything. I thought I'd wait for the inevitable self-congratulatory assertion that my 'miraculous' reversal of fortunes is down to their prescription meds before I dropped that particular bombshell on them. And I'll do so with an immense amount of satisfaction, believe me.


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KRX you figured out in post 23 what some people never figure out in a lifetime. I did just as you are doing,I found the 'experts' downright scary.
 
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Krx

Member
Messages
6
Type of diabetes
Type 2
Treatment type
Diet only
Just checking in again - update and a related question, which might not have a particularly related answer.

(I might not have been active posting, but I'm here every day. Always learning.)

Rightly or wrongly, not only have I given up the meds and even attending my GP or any NHS appointments... I've actually stopped testing my levels pretty much entirely. Having got this thing licked with diet alone, I'm a bit of a creature of habit with what I eat now, and I can correctly guess my levels before and after any given meal to within about 0.1 mmol/l just by how I'm feeling. As I said right from the start, I refuse to be defined by diabetes, and that now includes not even worrying about testing.

I'm still sticking to my 'extreme' fasting thing, but like I said, I was never one for multiple meals a day. Trouble is, I literally never feel hungry on the LCHF diet, either! And I won't just eat for the sake of eating.

Although I don't calorie count, a bit of mental arithmetic kind of shocked me the other day - I'm probably consuming in a working week somewhere around the recommended calorific intake for one day (partly cuz I stopped regularly going down the pub for those lovely German lagers)!

I feel perfectly fine, with the self prescribed supplements I'm taking, and although I did lose a couple of stone, my weight loss seems to have leveled off. As I said before, I am healthier and more focused and alert than I have been in years. The leg thing? gone. I guess it wasn't neuropathy after all, because haven't had the slightest hint of even numbness or pins and needles in months now.

But I guess what I'm interested to know now is... if I feel perfectly fine on a fraction of the calories I'm supposed to consume, am I ok to carry on like this, or am I going to do myself harm in other ways?