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Out of Control !!

Nikon15

Nikon15

Newbie
Messages
3
Type of diabetes
Prediabetes
My son was Diagnosed with Type 1 Diabetes Jan 2014, Things were going ok to start with but just recently we are finding it difficult to have a normal BMI reading, he can be reading HI one min then the next he is lying on the floor unresponsive he has had 18 Hypo's since 15th April until teatime lastnight, he is using the Accu Chek Expert & working with Bolus Advice but even with a bolus correction he is just drifting into rapid hypo's or his BMI isnt coming down, hes 10 years old & its starting to cause him alot of stress, hes becoming quite moody then violent while he is hyper, then when we manage to stabilise him with a normal reading he is totally oblivious to what hes done, has anyone else ever experience anything like this ? how have you controlled it ?
 
Sorry to hear about your son's difficulties - that must be extremely hard for both him and you.

Do you count carbs? What insulin is he on? Has his DSN made any suggestions?
 
Thanks for your reply ! yes we carb count but its just not working either, he is on Novorapid & Levemir, His DSN doesnt seem like she is much help, she just keeps changing his time blocks on his meter and hoping for the best, I have asked if they could admit him to hospital for 1 week so they can get a better view of his life but they just arent having it
 
Nikon15 said:
Thanks for your reply ! yes we carb count but its just not working either, he is on Novorapid & Levemir, His DSN doesnt seem like she is much help, she just keeps changing his time blocks on his meter and hoping for the best, I have asked if they could admit him to hospital for 1 week so they can get a better view of his life but they just arent having it
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It could be that he's coming out of his honeymoon period and this is making his blood sugar erratic, or it could be a growth spurt possibly.

The foundation of good control is getting the basal dose right. Once that's ok, then you can move on to sorting the meal ratios.

Is there any pattern at all to his results? That is, any times he's high or low?
 
All I can suggest is testing frequently so you can catch lows and highs in good time, and treat them.

If you feel his meal ratios are wrong, then a simple way to check is to have the same meal a few days in a row and test before and two hours after. That way you can see what dose works best for that meal. I appreciate your son's sugars are erratic, but if you did this then at least that would show just how erratic they are.

if he continues to struggle with control, perhaps you could ask about a pump?
 
Hi @Nikon15 I agree with Azure, he should have access to a pump to help his control, the fact that it is becoming debilitating to his life is reason enough.

You need to press hard onto his DSN about making this to happen, in the meantime it would be worthwhile to look at some basal testing, as getting this right is the cornerstone to his control, speak to your DSN though to talk this through with them first because of his age but hopefully it should pinpoint what is going on.

Can you also look at funding the Abbott Libre too - this is a quick way to monitor his blood glucose and particularly for kids will make it easier to see what's going on through a 24 hour period (I am using it at the moment and think it would be amazing for all kids to have it as it's quick easy and painless, but you can scan his BG as many times as you wish, particularly if he's asleep and you want peace of mind before you go to sleep).

Let us know how you get on ?
 
Hi. As others have said, do check that the Basal dose is right. What are 'time blocks' on a meter; I've never heard of them? It sounds like he really does need to be managed by a Diabetes clinic and not a local DSN. What sort of diet is he having. To help manage the swings keeping the carbs way down would help but may be you are already doing that. There are rarer forms of diabetes such as 'brittle' which have large swings and a local DSN is unlikely to be able to diagnose or manage them.
 
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