Please give me some support

LCRC

Newbie
Messages
1
Type of diabetes
Type 1
I realised recently that I am going through denial. I was diagnosed with Type I 15 years ago, and have been on a pump for 10. I recently got a new pump, and although I test myself fairly regularly, I don't test the 5 times per day that I should. After reading some posts online I realised that I am most definitely having Diabetic denial. I am trying to pretend that I don't have any problems and using my pump as a way to allow me to eat food I shouldn't. I have been having at least 1 fairly bad hypo each week for the past year, and even though I've tried various things, I can't seem to stop it from happening. I have started to get better, to test more often, and pay more attention to what I'm doing with my doses but I find it hard. I have yet to inform my healthcare team about any of this. I'm worried that if I tell someone they will be judgemental and unhelpful. I am trying to get together the courage to ask for help and support from them, but I'm so scared and it's making me not want to do anything about any of this.
Please try and convince me that it'll be ok to talk to my Diabetes nurse and specialist.
I really am scared, but I do want to try and get things back on track!
 
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azure

Expert
Messages
9,780
Type of diabetes
Type 1
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Pump
Do please talk to them. They're there to help you :)

You won't be the first person feeling like this and they won't be shocked to hear what you have to say. Tell them you're struggling, tell them exactly how you feel and ask for advice and support from them eg maybe more frequent appointments.

Testing lots is good :) Are you confident counting carbs? Are you confident your ratios are correct? And your basal? Your team could help you with all those. Once you get a little bit of success, you'll feel more empowered and more positive about moving forward.

Just identifying you have a problem is a great start :)
 

himtoo

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why can't everyone get on........
Hey @LCRC
welcome to the forum. :)

believe it or not -- you have just taken the biggest step you can take -- to ask for help.

so well done you !!!!!!!!

it is a real b!tch living with D every day but we normally just get on with it .........

Perhaps if you start with ringing your DSN and basically admit all your failings and ask for her support -- you might be surprised.

they do get paid as professionals to help us manage our D

as a start for yourself you know what you need to do -- test , review , adjust

hope this wasn't too harsh -- do keep posting !!!!!!!!!!!!!
 
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donnellysdogs

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Well, I can assure you it is absolutely fine to talk to professionals.. I've had 3 different hospitals in 10 years, been thru hell and back in many ways but they have all supported me and wanted to help me. Indeed have done their best to help me. Mine hasn't been through denial but probably the opposite of being OTT.

Our hospital do refresher courses for pump people too.. Maybe something like that may help...this is my 3rd pump and I've just had to sit through training enforced on me because its a new manufacturer.. But in some aspects its been good and actually a pick me up on occasions when I know the nurses knowledge has been wrong!! It made me think "well at least you know more! Go prove it!! "

It good that you found this forum too. I came here jyst before **** happened and I almost lost my licence thru a hypo whilst driving... I got huge support here. Some particular members help- well I will never forget it... They saw me through some dreadful moments and battles....

Do you get enough ''me" time though... I mean in general... It is very important....

Back in contact later.. Due for my "me" time...!!
 
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noblehead

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Please try and convince me that it'll be ok to talk to my Diabetes nurse and specialist.

All will be fine, your not the first and you won't be the last to experience difficulties in coping with this condition.

Get in touch with them asap. Good luck and best wishes.
 

donnellysdogs

Master
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Its tough going to keep on track when friends n family have accepted you as less complying too... They may well also need to be told to encourage support in right direction....and not to ask stupid questions when they may see you test more or eat more/less or want time to write up your daily logbook... Daily logbook writing is usually one of the first things to go...but needs to be brought back first.
(As said I was the oppposite so I was wasting my life analysing).....

Your nurses will prob be more easier to get support from than consultants. I have only had one consultant in over 30 years that has been absolutely overwhelmingly fantastic with me..

The best support I have ever had 24/7/365 is from members here. Honest and experienced.. Although we can get opinionate on certain subjects at times....

I hope you are feeling in some ways less angst at reaching out to the Professionals...

One thing for sure.. None of us are perfect..anyone that says they are.. Well they are kidding themselves... We all have some faults in some ways...

Hope you are ok LCRC...