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SueAA

SueAA

Member
Messages
7
I was type 2 and quite well controlled then I got 'Covid' in the April as the pandemic began and I went into diabetic ketoacidosis since then I have had to have insulin and recently I was showing keytones again so for the last 4 weeks I have both long acting and short acting insulin and I have a sensor on my arm as
my pancreas no longer works. The dietician and consultant can see all my readings so I am really hoping to feel better soon however......

The weight gain is rotten with the insulin and after 3 good weeks, last week my sugars were constantly high, not just during the night ( the dawn effect ) no matter what I did. I'm really really loosing the will to live , I'm tired my joints hurt, I'm stiff I'm getting pins and needles in my arms and feet and I feel like this horrible disease is trying its very best to kill me right now - it has taken over my life completely . Any advice would be appreciated
 
Hi @SueAA have you been rediagnosed as LADA or are you still counted as T2? Hopefully you have been referred to a hospital endocrinologist.

If you are now facing life without your own insulin then it can take a while to work out the dose you need. And it takes a while to learn how to manage life with insulin, so try not to be too discouraged when your bg levels don't cooperate.

Managing T1 is a marathon not a sprint and I would be very surprised (and impressed) if you didn't have off days/ weeks/ Months (hopefully not too often) on occasion.

Please try not to be too discouraged. I've been doing it for 53 years and I still have times when I wake up with high bgs and my levels don't want to come down. Having said that, I've got the confidence to adjust my own doses so I just heave a deep sigh and carry on.

Please don't give up. You'll get the hang of this.
 
Hi - I dont know if I have been rediagnosed but I am under a consultant who is calling me fortnightly and an endocrinologist hasnt been mentioned.
I have been on insulin since covid when I was really poorly then as I got high keytones again due to a bug I picked up I was tested to see if my pancreas was working at all but its not . I suppose there are peaks and troughs but its as if you are constantly running uphill in lead boots sometimes :)
 
Hi Sue,

Welcome to the forum. Sorry to hear how your feeling.

Running high is going to make you feel quite poorly, think of a formula one car running on diesel, we’re not designed to cope with excess glucose so the body will try and excrete it so drinking lots of water is vital. It’s best to call your team for guidance on doing correction doses to get your levels down if your not able to do it yourself yet, once your back into your target range you will feel much better both physically and mentally- try not to feel discouraged though, please talk to those around you about how your feeling and lean on us here too.
 
Hi all

I am now 4 more weeks on and am FINALLY seeing a difference. I realise the learning curb is very steep and I don't have much patience at the best of times but I hope I have now made my peace with Type 1 diabetes.
The dawn effect is still happening but not as bad and other than wake up at 4am every day, take insulin then go back to sleep (yeah right!! ) there is nothing I can really do about it.
I am currently running at 50% ( last 7 days) in target range which is great for me and I am starting to do correction doses. I'm seeing an amazing dietician who has taken the time not only to explain the whats and whys but as he can see my live readings he lets me know exactly where I am going wrong. I've no doubt that there are many peaks and troughs to come but this forum does make you feel like anything is "normal" in Diabetic world and for that Thanks.
 
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