Possibly RH Hypo?

[Zack101]

Hi, team.

Been having a read through and it is nice (sort of) to see so many people who have similar issues.

I am a very data driven person so here goes some information!

32 years old
79kg
5ft 6

I used to train a lot, I mean I weightlifting and training from 13 - 24 then I got married, kids which proceeded with becoming a bit fat and bald!

Over the years I would get hypo attacks, but I would go from eating thousands of calories a day to less and it was not very often.

Funnily enough what seems to trigger them would be more the weather, when I was a refrigeration engineer if I would be defrosting a freezer in -20 I would go hypo when I stepped back out into the warm.

The last couple of years were particular stressful, changing jobs young family trying to buy a home and 2019 culminated in a lot of panic attacks and stress episodes.

This seemed to trigger me going hypo more often. Sometimes 2 x 3x a week.

I am what my wife would call a bat sh*t crazy hypochondriac so I log most things.

I do feel my hypos are more common at times of high stress but I am also trying to find a pattern.

For example, my 10am snack would be oats and a banana (big carb dump no wonder I would be going hypo by like 1.)

My blood sugar readings:

First thing in the morning: usually around 5.2
When feeling hypo: 3.0 - 3.3
After eating usually the highest I spike to is around 8.

Relatively speaking my sugar levels seem pretty good.

This year alone I had a CT scan on my brain, no tumours etc there (this was for pulsatile tinnitus)
CT scan on my kidneys - Nothing shown (this was possibly a kidney stone)
Most recently an abdominal scan (liver, kidneys, pancreas, gall blader etc) - that was a month ago and heard nothing back so seems fine.

I would not say it for 100% but I think that almost rules me out for any obvious tumours etc.

Once a year I fast for 30 days. In the summer this was like 16 - 17 hours of fasting. Never really had an issue with blood sugar, except last year or the year before one day I felt my blood sugar low the rest was fine.

I did notice my hypos seems to be around 12 - 1pm. My go - to breakfast for a while has been two eggs and two wholemeal toast.

From the mid 2019 - June 2021 I was a vegetarian. Started eating meat again since.

My HBA1c is was 30 last year.

I have a feeling my stress throws me out of whack and possibly RH. But not too sure.

My HDL level was 0.95 and my LDL was 2.55 last year, also. My FSH was slightly low at 1.1

I realise this is just a big dump of information but it feels nice to get it out there to other people struggling.

Reading some of these stories though my issues are not near as bad!

 

[Zack101]

I should also add, this year I was diagnosed with Helicobacter pylori and given two anti-biotics which absolutely ruined my guts for a decent period of time.

 

[Lamont D]

Hi, team.

Been having a read through and it is nice (sort of) to see so many people who have similar issues.

I am a very data driven person so here goes some information!

32 years old
79kg
5ft 6

I used to train a lot, I mean I weightlifting and training from 13 - 24 then I got married, kids which proceeded with becoming a bit fat and bald!

Over the years I would get hypo attacks, but I would go from eating thousands of calories a day to less and it was not very often.

Funnily enough what seems to trigger them would be more the weather, when I was a refrigeration engineer if I would be defrosting a freezer in -20 I would go hypo when I stepped back out into the warm.

The last couple of years were particular stressful, changing jobs young family trying to buy a home and 2019 culminated in a lot of panic attacks and stress episodes.

This seemed to trigger me going hypo more often. Sometimes 2 x 3x a week.

I am what my wife would call a bat sh*t crazy hypochondriac so I log most things.

I do feel my hypos are more common at times of high stress but I am also trying to find a pattern.

For example, my 10am snack would be oats and a banana (big carb dump no wonder I would be going hypo by like 1.)

My blood sugar readings:

First thing in the morning: usually around 5.2
When feeling hypo: 3.0 - 3.3
After eating usually the highest I spike to is around 8.

Relatively speaking my sugar levels seem pretty good.

This year alone I had a CT scan on my brain, no tumours etc there (this was for pulsatile tinnitus)
CT scan on my kidneys - Nothing shown (this was possibly a kidney stone)
Most recently an abdominal scan (liver, kidneys, pancreas, gall blader etc) - that was a month ago and heard nothing back so seems fine.

I would not say it for 100% but I think that almost rules me out for any obvious tumours etc.

Once a year I fast for 30 days. In the summer this was like 16 - 17 hours of fasting. Never really had an issue with blood sugar, except last year or the year before one day I felt my blood sugar low the rest was fine.

I did notice my hypos seems to be around 12 - 1pm. My go - to breakfast for a while has been two eggs and two wholemeal toast.

From the mid 2019 - June 2021 I was a vegetarian. Started eating meat again since.

My HBA1c is was 30 last year.

I have a feeling my stress throws me out of whack and possibly RH. But not too sure.

My HDL level was 0.95 and my LDL was 2.55 last year, also. My FSH was slightly low at 1.1

I realise this is just a big dump of information but it feels nice to get it out there to other people struggling.

Reading some of these stories though my issues are not near as bad!

Ok, hi, and welcome to our forum, first thing, I am not allowed to diagnose you, and I am not going to say what it is because I don't know from all the data, and I concur, you should see my own personal records.
To diagnose any form of hypoglycaemia and there is a few, because of pancreatic conditions or your metabolism due to hormonal issues such as thyroid. And of course RH, and it's similar conditions. The hypoglycaemia in RH, is due to creating too much insulin from the food you eat. That is the bottom line.
Your big first step is your GP, you have to convince your GP, to refer you to a specialist endocrinologist, one who has experience with RH and the other similar conditions.
My food diary goes back to 2012, nearly ten years ago and because of its information, it confirms my diagnosis, that the food I could eat causes my symptoms and triggers the rollercoaster ride of highs and lows.
Your hba1c is normal, like mine, you can fast without going hypo, like me and some of your symptoms are akin to forms of hypoglycaemia. And you do go hypo.
once you have got to see an endo, and take with you any records, readings you have taken, don't worry, he will do a blood panel. And of course an hba1c test, but insist on a insulin blood test and a c-peptide test.
The essential test to see if it is a blood glucose issue, is an extended oral glucose tolerance test, which should be five hours long or if you go hypo.
there are more tests after depending on the outcome.

I control my hypoglycaemia because I am intolerant to carbs and sugars. So I have to find an alternative, a different dietary regime and lifestyle.
And what is healthy for someone without glycaemic or diabetic issues, it is definitely NOT, healthy for.e and all other RH ers!

Stay safe and keep asking.

 

[Lamont D]

I should also add, this year I was diagnosed with Helicobacter pylori and given two anti-biotics which absolutely ruined my guts for a decent period of time.

I had helicobactor pylori. Nearly fifteen years ago (ish) and yes, the anti biotics, were quite bad,but they did the trick and my guys have been great since, and there are theories and papers, that HP, is a factor in developing RH.
but I believe I had RH before this. But there is no way to know!
I might be banging on about diet, but it does also seem that HPthrives on carbs and sugars, but again, it's my theory!