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Pump approved?

Discussion in 'Insulin Pump Forum' started by Tiia, Jun 27, 2019.

  1. Tiia

    Tiia · Newbie

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    So I have been to my diabetes check today and I got great news, I have managed to lower my Hba1c to 6.8 ! I'm thrilled about the level, even if I know there's still a lot to improve within my care due to hypos I get too often, but hoping to maintain the level with less hypos and the hypers that most likely are cause by the lows.

    And for the reason that I am extremely insulin sensitive, Dafne suggested me to request a pump, so I spoke to the nurse today, and basically he told me to start doing a research for the pumps and try to decide what would be the best choice for me. Does that mean that it's quite sure I am getting a pump ? Or should I prepare myself to fight for the pump later?
    I got an appointment for a clinic to higher my hypo awareness and he said that there they will do at the same time pre assessment. I was kind of in state of shock for my hba1c level and other things that I talked and didn't realise to ask if that's kind of approval or do I still need to wait further.

    I am in a very desperate situation and really hoping to get the pump to be able to give correct amount of insulin for my carbs.
    and also I have seen some people to get Tandem t:slim x2 pump, but not sure in which are or where in the UK they are living. So just wondering if anyone has managed to get that pump in are of central London? The diabetic nurse kind of mentioned about a new insulin pump, but then said we can discuss it later in the clinic, so I am hoping it to be this pump, but not sure about it.
     
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  2. Juicyj

    Juicyj Type 1 · Moderator
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    Hello @Tiia and welcome to the forum.

    Good news about the pump. Out of interest how often are you going low ?

    Pump choice is dependent on CCG, so in some areas we have little or no choice, I had no choice, but as I was struggling on injections any pump at the time would of been amazing, so I was more than happy to get approval and to start using the 640g. I have to admit it's been a great pump despite a few faulty pumps, I can adjust my bolus ratios throughout the day, as well as basal, and reduce basal for exercise. It's not a magic wand and requires constant input, I have to tell my pump what I'm eating so input carb values as well as corrections.

    Please remember that ratios can change, it's understanding when and being on the ball to adjust when appropriate and the pump does require ongoing monitoring to ensure basal and bolus ratios are working as they should too.

    Get a copy of pumping insulin which is perfect for understanding control using a pump.
     
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  3. NicoleC1971

    NicoleC1971 Type 1 · Well-Known Member

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    Hi
    A pump sounds great for you as you can do teenie weenie doses tailored by the hour for the basal. And small bolus doses too with less likelihood of getting the calculations wrong when carb counting etc.
    If your problem is managing small doses in the interim could you get a child insulin pen?
    Best of luck.
    I have a roche pump so am afraid I can't comment of the Tandem..If you are taking small doses however I've heard the omnipod can be good and doesn't involve tubing (sort of a patch thing).
     
  4. Severe_Needle_phobia

    Severe_Needle_phobia Type 2 · Well-Known Member

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    Hi @Tiia
    Hi @Tiia
    Warm welcome to the forum.
    Very well done on getting your hba1c down to 6.8 .
    I really wish you well on your onward journey .
     
  5. EllieM

    EllieM Type 1 · Well-Known Member

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    Have you tried asking for a libre? If you combine that with a miaomiao transmitter and xdrip app you may be able to set alarms for when you start to go low.... (That's assuming the libre works for you, it doesn't for me, but it does work for most/many people.)
     
  6. Tiia

    Tiia · Newbie

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    Hi, I’m already on libre, so I know exactly when I’m going low and nights are my worst problem and also when I do even smallest kind of exersice. Usually I have 50-60g of carbs before exercise and it still goes low 4, but without exercise (like walking to work) my sugar levels are great. Libre has been a lifesaver for me and so glad I got it through NHS, otherwise I could not afford for it.


    @NicoleC1971 I’m already on half unit pen, normally my ratio is 0,5:1 and if I have stressful situation I need about 0,75:1 it’s a bit complicated and it’s driving me crazy recently. Thank you for your suggestion for Omnipod, I will keep it on my mind when I do deeper research on the pumps!
     
  7. Juicyj

    Juicyj Type 1 · Moderator
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    Hi @Tiia Are you checking your night time lows against a meter, it's well reported that the libre causes false lows at night time due to compression on the sensor ?
     
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  8. Tiia

    Tiia · Newbie

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    Yes, I always check the blood sugar with finger prick when the libre shows low sugar, because I don’t always trust it for lows or too high sugars.
     
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  9. Heathero

    Heathero Type 1 · Well-Known Member

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    Hi Juicyj I am using libre but have not been informed of this, my lows at night vary via reading from libre and meter test. Results in very high BG and struggling to get down in morning without taking correction dose as advised until 2 meal times passed. Helpful to know which BG to work with !
     
  10. Heathero

    Heathero Type 1 · Well-Known Member

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    Would appreciate any further info you have. Thanks
     
  11. Juicyj

    Juicyj Type 1 · Moderator
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    Hi there, if your going low during the night but don't treat it at the time, then you can wake high as your liver dumps glucose into your system to manage it, however it's best to try and double check against a meter to treat if you do wake. If it's happening regularly then set your alarm to wake you at 2am to check.

    You should always correct high BG levels upon waking though otherwise you will struggle to get your levels down.
     
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  12. Heathero

    Heathero Type 1 · Well-Known Member

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    Thank you I do double check with finger test. Following low and treating sometimes up to an hour or more later if I didn’t wake earlier seem to have extremely high glucose 13 -16 some mornings. Think due to sugar dump as Juicy mentioned. Will begin to correct high in morning as I did today so Bg ok by pm.
     
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    #12 Heathero, Sep 4, 2019 at 9:05 PM
    Last edited: Sep 4, 2019
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