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Rashes around infusion site

jemmaedias

jemmaedias

Active Member
Messages
44
Type of diabetes
Type 1
Hey guys! So my DSN can’t solve this one, but I’m sure you lot can!!! I keep getting a rash around my infusion site. It’s not too itchy but I just want to know what it is. It comes up around 24 hours after a set change and goes about 24 hours after. When I do a new set change, it appears in the new position! I wondered if it was an allergy as I am also allergic to plasters, but it’s not actually under the sticky bit of the infusion site, just around it. Any ideas? IMG_1519129384.800715.jpg
 
That's certainly a weird one.

Do you swab the area with anything such as alcohol wipes or use a barrier cream/gel/SkinTac prior to attaching the cannula?
I know I'm clutching at straws and you have probably already thought of this, but there's no harm in asking.
 
I get this sometimes but usually at the time for a set change (2 days) then I'm itchy afterwards at the old site. I just put it down to a reaction to the adhesive on the cannula,
 
Hi @jemmaedias I don't get a rash but I do get lumps around my sites so I change my set every 2 days which seems to help, I also use 3m Cavilon spray which is a barrier spray. I believe I am allergic to the adhesive and the plastic sets - so I stopped using plastic cannulas about a year ago and again problems subsided, I now use sure t's which are steel.
 
helensaramay said:
That's certainly a weird one.

Do you swab the area with anything such as alcohol wipes or use a barrier cream/gel/SkinTac prior to attaching the cannula?
I know I'm clutching at straws and you have probably already thought of this, but there's no harm in asking.
Click to expand...

I use alcohol whops but no barrier creams or anything. I’ll have a look for those. I didn’t know they were available. Thank you!
 
jemmaedias said:
I use alcohol whops but no barrier creams or anything. I’ll have a look for those. I didn’t know they were available. Thank you!
Click to expand...
Actually, I was wondering whether it was the alcohol wipes which are causing your reaction as you may wipe a larger area than just where the cannula goes."
 
Juicyj said:
Hi @jemmaedias I don't get a rash but I do get lumps around my sites so I change my set every 2 days which seems to help, I also use 3m Cavilon spray which is a barrier spray. I believe I am allergic to the adhesive and the plastic sets - so I stopped using plastic cannulas about a year ago and again problems subsided, I now use sure t's which are steel.
Click to expand...

I do get lumps as well so maybe it’s a similar reason? I’ve never heard of that before but I’ll look it up and give that a go. Maybe I’ll mention the steel cannulas if that doesn’t help. Thank you so much!
 
jemmaedias said:
I do get lumps as well so maybe it’s a similar reason? I’ve never heard of that before but I’ll look it up and give that a go. Maybe I’ll mention the steel cannulas if that doesn’t help. Thank you so much!
Click to expand...

Oddly enough I removed one this morning and it's a round red mark with a big red lump in the middle, I was supposed to change last night, so am sure if I hadn't left it till the morning it wouldn't look so bad, mine also vary, some are barely noticeable after removal and others like today stay inflamed for a day or so.
 
That looks exactly like the rash I get when I have an adhesive dressing removed (and so pleased you found a good solution, @Juicyj !).

Lanolin (famously used on sore nipples by breastfeeding mums) or something along the lines of aqueous calamine cream might help to get rid of it. But, yes, a barrier cream (aqueous cream (NOT E45!) can also be used as a soap and in the bath) will prevent it happening in the first place.
 
It's possible you could be allergic to the preservative for the alcohol wipes. Can you try just washing the area and letting it dry before inserting a new set?

If there is no reaction, then you'll know it was the alcohol wipe. If there is a reaction, then you'll know it is the infusion set itself.
 
I’ve started getting this!! What cannulas do you use? I had a letter about 6 months ago saying the cannulas were being recalled due to a fault potentially causing hypos. So I’m wondering whether they’ve changed something in the product that we’re reacting to?
 
ealingr said:
It's possible you could be allergic to the preservative for the alcohol wipes. Can you try just washing the area and letting it dry before inserting a new set?

If there is no reaction, then you'll know it was the alcohol wipe. If there is a reaction, then you'll know it is the infusion set itself.
Click to expand...

I never thought of that! I’ll give that one a go tomorrow!!!
 
Sophhhsss94 said:
I’ve started getting this!! What cannulas do you use? I had a letter about 6 months ago saying the cannulas were being recalled due to a fault potentially causing hypos. So I’m wondering whether they’ve changed something in the product that we’re reacting to?
Click to expand...

I use MiniMed mio 3m - I don’t remember getting a letter so I assume yours is a different one???
 
jemmaedias said:
I wondered if it was an allergy as I am also allergic to plasters,
Click to expand...
It's dermatitis, I have the same problems with certain wound dressing adhesive such as Coban 2, surgical tape etc to name a couple.

I use two different creams on mine when it flares up, Antroquoril and Cortic - D when it gets moist, both have cortisone in them.

I mentioned that it has cortisone in it before a certain forum member performs her usual community service by getting in first.

Edited: clarity.
 
Last edited by a moderator:
jemmaedias said:
Hi guys. Thank you for all your replies. As a first port of call, I stopped using alcohol wipes and just washed the area with a flannel and hot water before doing the set change. The rash has gone completely!!!
Click to expand...

That’s great news, glad to hear it’s gone :)
 
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