Reactive Hypoglycaemia

[Lamont D]

If you wish to ask questions or are interested in asking anything pertaining to hypoglycaemia, diabetic or non diabetic. Ask here.

 

[Spiker]

My sister has reactive hypoglycaemia. What are the symptoms for you? Do you know if it's genetic? I have LADA.

 

[Brunneria]

Hi @Spiker

Have a look at these threads. Hope you find them useful.

RH is somewhere on the glucose intolerance spectrum, and in my case I had RH for about 30 years before developing T2.

http://www.diabetes.co.uk/forum/thr...-on-reactive-hypoglycaemia.65454/#post-648596

http://www.diabetes.co.uk/forum/threads/reactive-hypoglycemia.63444/#post-618401

http://www.diabetes.co.uk/forum/thr...ance-little-advice-from-gp.63007/#post-612556

 

[Lamont D]

As far as I am aware it is not hereditary.

How does cope with the condition, what has the doctors / specialists advised?

 

[Spiker]

Nosher they advise her to avoid sugary foods as they tend to make her pass out.

 

[Spiker]

Thanks for the links @Brunneria!

 

[Lamont D]

Nosher they advise her to avoid sugary foods as they tend to make her pass out.

Have they given her a dietician?
Have they told her to stop eating anything but low carbs?
Has she had her fasting.tests and oral glucose test.
Is she on any meds?
The best way to adapt to trying to control is to eat small and often.
Something like

Breakfast
Yoghurt and a few berries
2hrs
Bacon and egg
2hrs
Ham salad
2hrs
Homemade soup
2hrs
Meat with veg
2hrs
A small Apple or such fruit
2hrs
Yoghurt with either berries or 85% chocolate.

You get the idea. This of course can be supplemented with her own requirements and taste.
Sorry if too many questions

Hope this helps.

 

[Brunneria]

Have they said what kind of RH she has?

 

[Spiker]

She does eat frequently and little amounts. She doesn't low carb. She saw a dietician. No meds. She did have the tests.

 

[Lamont D]

Sorry about the questions mate!

As @Brunneria asked what type does she have?

If you are looking for more info other than what's already on here. Go to Wikipedia and look up RH.
Then work your way from there. The NHS site is very poor
If you have anymore questions please ask, Brunneria or I will answer if we can.

 

[AndBreathe]

She does eat frequently and little amounts. She doesn't low carb. She saw a dietician. No meds. She did have the tests.

Blimey Spiker, you guys are looking to corner the market in diabetes-styleeeeee oddities.

 

[Jey]

Hi all good Idee with u'r meal planer for the day. Helps me too . How many years does u'r sister has RH, spiker? I find it difficult with controlling food. Wread a lot but still confused! Because there is a lot of foods where u think there healthy but there far away from that!!! .

 

[Spiker]

¿Que?

 

[Brunneria]

She does eat frequently and little amounts. She doesn't low carb. She saw a dietician. No meds. She did have the tests.

A dietician, eh? Did they push carbs?

 

[Lamont D]

The new way to confuse you is that they are now saying 'eat complex carbs' or 'slow digesting foods'
Which as you know are just as bad!

 

[hozzy126]

After not being able to have sugar since being born and being ill for over 50 years they have actually found out that I have reactive hypoglycemia.. They have always tested me for diabetes as my mum is diabetic. I feel really let down by doctors and hospitals as I have always had to avoid foods that make me ill. I have only been diagnosed for a few months I could really do with some info.

 

[Lamont D]

Welcome and have a look at post 3 in this thread and have a look at the links in brunnerias post.
If you have certain questions, then we will try and answer them.

 

[Lamont D]

After not being able to have sugar since being born and being ill for over 50 years they have actually found out that I have reactive hypoglycemia.. They have always tested me for diabetes as my mum is diabetic. I feel really let down by doctors and hospitals as I have always had to avoid foods that make me ill. I have only been diagnosed for a few months I could really do with some info.

I have had such a struggle to get diagnosed. I was also misdiagnosed as type 2. GPs are not trained to diagnose such a rare condition. Even some specialists, wouldn't know!


Welcome to our unique club, which typos RH have you got?

 

[hozzy126]

I didn't know there was a type? I've been ill since being born my mum was at her wits end when I was a baby as I was always going unconscious and couldn't eat anything this went on all through my child hood and I learnt what I could eat without it making me ill.. ( which has not been a lot) I have never been able to have sweets,cakes, biscuits, juice,chocolate, even fruit. I kept telling them it happens when I have eaten as my sugar levels go down to 2.5 -3.0 but no one has ever listened seen so many doctors etc and they've now eventually given me a diagnoses of Reactive Hypoglycemia and in November 2014 I saw a dietician. I had a hospital appointment last week to go back to the diabetic clinic but they cancelled hospital appointment so I'm still waiting!! Ive had to learn to manage this condition all my life by avoiding sugar but didn't know that I had to eat 7 times a day small meals.

 

[Brunneria]

Hi and welcome!

In my experience, keeping low carb (as low as your body needs) is more important than eating regularly.
But then nosher and I have different types of RH, so it makes sense that the way we handle it will be different too.

What works for me is totally avoiding the kind of blood glucose spikes that occur after eating carbs.
Without the spikes, I never get a reactive low.
If I keep to that, then I can go hours without food. Fasting is great and missing meals isn't a problem, unless I have been very physically active.

In fact, recently, I have had a few enormous very low carb meals (big steaks n salad, or huge protein rich omelettes) and then not needed to eat for about 24 hrs. The protein seems to release so steadily and slowly that I coast along, not-hungry, with a totally steady blood glucose reading. It's marvellous.


I'm pretty sure that constant small meals and snacking wouldn't work for me. I like to get full, then get empty, then eat properly and get full again. I find constant snacking quite irritating, and have been delighted to find that very low carb means that I only need to think about food 2 or (at most) 3 times a day. It's liberating. But I would like to stress that @nosher8355 and I have different types of RH, so I'm not criticising what works for him. It just doesn't work for me.