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Scariest hypos

Minny9

Newbie
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3
Hi All -- I will get to the two of my most frightening tales of severe hypoglycemic episodes shortly in this post, but first a little background...

I joined the community here a couple of days ago and have been overwhelmed (in a good way) by the volume of posts and helpful contributions. I am 53 and was diagnosed as Type 1 in February, 1991, at the age of 23. At the time, I was less than a year removed from completing my university journalism degree in Toronto, Canada (I now live near Vancouver). I once had every intention of becoming a freelance magazine writer, but my diabetes effectively ended all that before I had even started. Essentially, the prospect of working without a consistent income and with no company health benefits to help pay for all my diabetes supplies suddenly didn't appeal to me. I ultimately forged a career in distribution and logistics, having worked 21 years in the industry. At least my emails are always grammatically correct -- haha! My job(s) require me to sit a desk in front of a computer screen, and that serves me just fine, particularly from a Type 1's perspective. Routine is a good thing.

Anyway, as I outlined in my separate introductory post, I am a widower, having lost my wife to cancer in December, 2016, when we were both 49. We were together 23 years (married 19), but had no children -- for several reasons. One of those, rather prophetically, was her desperate fear of leaving her child(ren) without a mother, as she had lost her own mother to cancer before we met when she was 25 and her sister just 22. But truth be told, by the time we both hit 40, neither of us felt as if our lives were unfulfilled not having kids. So, having no children, I now live alone -- and that simultaneously breaks my heart and scares the hell out of me. Let me explain...

As it relates to my diabetes, I probably never fully appreciated how incredible she was helping me whenever I slid towards the oblivion that is "being low". My insulin and testing regiment hasn't changed much over the course of the 30 years I've lived with diabetes. I'm not a "brittle" diabetic and rarely fluctuate wildly high to low, or low to high -- at least not without good reason. My crashes are often times imperceptible to me at first, and when in the company of others, it is often they who will notice before I do. And my late wife was an expert at this. I called her my "safety net". But she wasn't with me all the time, and now she's not with me at all. She's no longer the one to hand me a glass of juice and stand over me until I drink it. Or to shake me and call my name as I drift into sleep as my glucose levels fall. Or to call the ambulance after having a nocturnal episode where she was unable to wake me before having a seizure. And that remains my greatest fear as I continue to move forward without her.

So what were my scariest "lows"? (NOTE: for the record, I don't often have severe lows, and these are extremely exceptional events from 3 decades as a Type 1).

1. The time I was highway driving with my wife and sister, and my wife, in a moment of panic, brilliantly thought to begin yelling at me that she was about to throw up. Somehow I had enough awareness to pull over, as I certainly did not want her to get sick in our new car -- and she knew that would get my attention. What I remember most about this was randomly pushing down, again and again, on both the gas and brake pedals after I had stopped, not able to fully understand (being so low) that the car was now parked. My sister has since told me she was terrified when their calls to stop the car weren't being heeded, and also remarked how quick my wife was to think of saying something so brilliant to finally get my attention before something potentially tragic happened.

Honestly, it's amazing how much the act of driving a car is instinctive and can be done without our full concentration. Having said that, this "overconfidence" has led to trouble on a few occasions where I am left wondering after a "low" what roads I had just taken to get where I had just gotten to.

2. The night I fell into an unplanned deep sleep on my sofa after not first checking my glucose. This one happened nearly 3 years after my wife had died. I woke up (or came to) on the floor next to the sofa and noticed there was vomit on the carpet. As well, I had soiled my self and the cushions were badly stained. I was in shock, but was able to clean myself and do a blood test. My reading was over 14 mmol/L, which didn't make sense to me. How could I be so high when I obviously had seized from being dangerously low? It was later explained to me that adrenaline likely brought me back. Regardless, I noticed my heart rate had quickened and I was becoming feverish. I wasn't well, and I was rapidly getting worse. The next day, I called a woman I knew and asked if she could take me to the hospital. There they found me to be extremely dehydrated, and a chest x-ray also found that I had developed aspiration pneumonia from ingesting some of my vomit into my lung. It took me almost 7 weeks to fully recover. There have been 2 other times I can recall when I've soiled myself after a nighttime reaction. The common thing I've noticed each time is that I had drank (too much?) beer before falling asleep. Could it really be that my tolerance for alcohol, as it relates to my diabetes, has changed this drastically?

Thanks for reading. I am in the process of getting my GP to authorize a continuous glucose monitor. I have, until recently, been reluctant to the idea of having some device affixed to me like a prosthetic. But living on my own now, I realize it is foolish not to embrace what could be a life-saving change to how I manage my diabetes.

Steve
 
Hi Steve,

Welcome to the forum..

My condolences for your wife. She sounds like a calm quick thinker..

Oddly I feel less confident if low? I remember finishing a gig at a venue in Holand. We'd just packed up the gear at the end of the night & ready to set off. I was meant to be "designated driver" back to our hotel...
Suddenly I had this overwhelming feeling "I can't do this.." (Drive.) sure enough I was low.

Lol, the guys had another beer whilst the waited for me to recover.

I think the scariest one I had was as a kid out on my bike.. 9 or 10? I was hit by an almighty hypo. (Porcine insulin at the time.) Sweats & shakes.
My legs could barely stay on the pedals. They kept kicking out & uncordinated. I wasn't far from home.
Managed to get through the door (must have looked like a zombie apocolyse.) & raid the kitchen..
I never left home without carbs in my pocket again.

These days I do wear a CGM set up, though I'm hypo aware. I find it a game changer regarding not waiting till you i one coming on..
 
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I'm not T1, but here goes.

I had an appointment with my specialist endocrinologist at 11am, this morning, back in 2012, it was my second appointment with him. As usual, as recommended, I had porridge for my breakfast.
I arrived early, and took my coat off, and read my book.
I was called in to get my weight done, BP, pulse and such. Went back out to the seating area.
I was called in to see my specialist and after greeting and sitting down, he asked me questions that I didn't have a clue about, why? He stopped talking and he was looking at my face, actually staring, my anxiety kicked in and I felt concerned.
He then started rummaging through his briefcase and a small case, black with a zip.
He told me I was having a hypo and wanted to use his machine to test my glucose levels.
What is a hypo? I asked cos I just didn't know.
He took a reading by finger prick, I was really concerned by know, my heart rate was going up and I felt light headed and sweating, he told me the reading, 2 point something. It never registered because I began to panic a little and started asking questions.
He got me sat down and called the nurse in and she took me to a room, where their was tea on demand, she gave me a packet of biscuits to eat, now!
I was in a state, and worried what was going on, I ate the biscuits and drank the tea.
I calmed a little worried that I was going to have to stay in hospital, and a lot more going through my fuzzy brain. I had never been really ill, not a stay in hospital, except being there for the wife and kids.
My endocrinologist came into the room and asked me if I was feeling better and took a finger prick reading again, he said I had a hypo which is low blood glucose levels.
He said that he didn't know why I was getting hypos! And to go home and come back the following week.
With that he left and I was asked if I was okay to go home by the nurse, I said I was, but my head was spinning and I couldn't think straight and frightened about what was in my future, I was obese and not very healthy.
And to cap it off, I had to explain to the wife what was going on. Because of the questions, it ended in disagreement. I didn't have a clue, nor did the wife!
Have you ever had an argument with your partner of which both of you have no idea what you are on about?
Really bad night and because I was still eating carbs, the rollercoaster ride continued.

It happened again at the next appointment and the one after and all my eOGTTs!
 
Hi All -- I will get to the two of my most frightening tales of severe hypoglycemic episodes shortly in this post, but first a little background...

I joined the community here a couple of days ago and have been overwhelmed (in a good way) by the volume of posts and helpful contributions. I am 53 and was diagnosed as Type 1 in February, 1991, at the age of 23. At the time, I was less than a year removed from completing my university journalism degree in Toronto, Canada (I now live near Vancouver). I once had every intention of becoming a freelance magazine writer, but my diabetes effectively ended all that before I had even started. Essentially, the prospect of working without a consistent income and with no company health benefits to help pay for all my diabetes supplies suddenly didn't appeal to me. I ultimately forged a career in distribution and logistics, having worked 21 years in the industry. At least my emails are always grammatically correct -- haha! My job(s) require me to sit a desk in front of a computer screen, and that serves me just fine, particularly from a Type 1's perspective. Routine is a good thing.

Anyway, as I outlined in my separate introductory post, I am a widower, having lost my wife to cancer in December, 2016, when we were both 49. We were together 23 years (married 19), but had no children -- for several reasons. One of those, rather prophetically, was her desperate fear of leaving her child(ren) without a mother, as she had lost her own mother to cancer before we met when she was 25 and her sister just 22. But truth be told, by the time we both hit 40, neither of us felt as if our lives were unfulfilled not having kids. So, having no children, I now live alone -- and that simultaneously breaks my heart and scares the hell out of me. Let me explain...

As it relates to my diabetes, I probably never fully appreciated how incredible she was helping me whenever I slid towards the oblivion that is "being low". My insulin and testing regiment hasn't changed much over the course of the 30 years I've lived with diabetes. I'm not a "brittle" diabetic and rarely fluctuate wildly high to low, or low to high -- at least not without good reason. My crashes are often times imperceptible to me at first, and when in the company of others, it is often they who will notice before I do. And my late wife was an expert at this. I called her my "safety net". But she wasn't with me all the time, and now she's not with me at all. She's no longer the one to hand me a glass of juice and stand over me until I drink it. Or to shake me and call my name as I drift into sleep as my glucose levels fall. Or to call the ambulance after having a nocturnal episode where she was unable to wake me before having a seizure. And that remains my greatest fear as I continue to move forward without her.

So what were my scariest "lows"? (NOTE: for the record, I don't often have severe lows, and these are extremely exceptional events from 3 decades as a Type 1).

1. The time I was highway driving with my wife and sister, and my wife, in a moment of panic, brilliantly thought to begin yelling at me that she was about to throw up. Somehow I had enough awareness to pull over, as I certainly did not want her to get sick in our new car -- and she knew that would get my attention. What I remember most about this was randomly pushing down, again and again, on both the gas and brake pedals after I had stopped, not able to fully understand (being so low) that the car was now parked. My sister has since told me she was terrified when their calls to stop the car weren't being heeded, and also remarked how quick my wife was to think of saying something so brilliant to finally get my attention before something potentially tragic happened.

Honestly, it's amazing how much the act of driving a car is instinctive and can be done without our full concentration. Having said that, this "overconfidence" has led to trouble on a few occasions where I am left wondering after a "low" what roads I had just taken to get where I had just gotten to.

2. The night I fell into an unplanned deep sleep on my sofa after not first checking my glucose. This one happened nearly 3 years after my wife had died. I woke up (or came to) on the floor next to the sofa and noticed there was vomit on the carpet. As well, I had soiled my self and the cushions were badly stained. I was in shock, but was able to clean myself and do a blood test. My reading was over 14 mmol/L, which didn't make sense to me. How could I be so high when I obviously had seized from being dangerously low? It was later explained to me that adrenaline likely brought me back. Regardless, I noticed my heart rate had quickened and I was becoming feverish. I wasn't well, and I was rapidly getting worse. The next day, I called a woman I knew and asked if she could take me to the hospital. There they found me to be extremely dehydrated, and a chest x-ray also found that I had developed aspiration pneumonia from ingesting some of my vomit into my lung. It took me almost 7 weeks to fully recover. There have been 2 other times I can recall when I've soiled myself after a nighttime reaction. The common thing I've noticed each time is that I had drank (too much?) beer before falling asleep. Could it really be that my tolerance for alcohol, as it relates to my diabetes, has changed this drastically?

Thanks for reading. I am in the process of getting my GP to authorize a continuous glucose monitor. I have, until recently, been reluctant to the idea of having some device affixed to me like a prosthetic. But living on my own now, I realize it is foolish not to embrace what could be a life-saving change to how I manage my diabetes.

Steve


Hello Steve,

A sad tale indeed, to be alone and having to watch out for hypos on your own, not to mention the emotional support lost. The symptoms you describe (quite well) of hypos are not exactly like mine, but I suppose there may be personal variability according to age, and duration of med treatments. In any case, I think the idea of a continuous blood sugar meter is good advice. I would like some high tech gizmo manufacturer to design something that can recognize blood sugar from the wrist. I think they have enough money to find a way to magnify the blood rate on the wrist.

On a less optimistic note, I often wonder what will kill one first: a hypo or a hyper? Sorry.
 
Good afternoon, Steve.

I don’t do a lot of posting but your words really spoke to me. I’m so sorry for your loss. My husband has been having surgery and chemotherapy for the last year, so I know how devastating cancer is. It’s hard managing our condition through all the stress and worry too.

Just on a practical note, I’ve been suffering from erratic highs and lows throughout mine and my husbands ordeal, and the fear of not being able to turn round a dropping sugar level has been palpable. I go into sheer survival mode and feel so scared and vulnerable. Somebody on here a while ago said they use “lift” little bottles of glucose. I took their advice and I’ve never looked back. They are pure glucose in liquid form and require no chewing and digesting. so unlike, say, jelly babies your body doesn’t have to convert the sugar into glucose before it gets to work. I was finding that jelly babies weren’t working quickly enough and so added to the stress and fear of the situation.

On the subject of the CGM, most of us are using something like a libre 2 which has alarms built in. It’s not perfect but it’s such a good tool in the toolbox for predicting lows so they don’t catch you out.

Best wishes.
 
Hi
I have minor hypos often and treat them well and within a few minutes. Only had one of two which have overwhelmed me, in the 29 Years of Type 1. I had one a few days ago, while working away with a colleague, who is much younger than me. I was so confused, I messaged him around 11pm, saying, I had issues with the TV, couldn't turn it off (and other stuff), he realised having had experience before of hypo's from a family member. I let him in my room, but he just couldn't get my blood levels up, he tried for about an hour, giving me "wine gums" (my preferred Hypo treatment) before calling 999. He called a another work colleague who knows about my diabetes who talked to him over the phone. I was confused, lost in a hotel room, not knowing where I was. He did everything right, perhaps being less direct, ordering me to sit down and eat sweets, may of helped, it added slightly to my confusion but, trying for an hour to help, whilst I was feeling sick, I was so pleased he was there and willing to help.

The issue, I have.... I feel so embarrassed, upset that he saw me in that way, vulnerable, weak, argumentative and simply so confused. I'm his work boss, but felt like a 5 year old. I ended up being taken to hospital, I argued for over an hour with paramedics while I was feed gel to rise my levels, which did, but then fell again so after. At hospital (2am), I was put on a trolley in a corridor with 21 other people, hearing there was an 11 hour wait. I felt un-safe especially hearing an older man, ask a nurse for his blood sugars to be checked, but the nurse being so busy, she just said in a minute, which of course never came. So after my sugars had raised (2 ish hours) I ended up discharging myself, and then walking back (a 35 minute walk) to the hotel at 5am.

Whilst I have talked to my work colleague, and he says "you have nothing to worry about, I fully understand", I feel that he now sees me in a different way. Perhaps never trusting me, thinking it will happen again. I feel he just sees me differently, my biggest worry it will happen again. I'm on a home DIY closed loop, but it just didn't catch my hypo, think it was hotel food, working away which caused it. The stupid thing with all of this, there is never any visible sign afterwards. I had no sleep, but went to work the next day, my work mate only had 4 hours, know one would know what happened, expect he wasn't either in a good place or mood after only 4 hours sleep.

I can't thank him enough, but being "men" there isn't much more than me saying "sorry" and him saying "don't worry it is OK". I'm so shamed, disappointed with myself, embarrassed, humiliated, upset, that a work colleague had to see me in that way, probably at one of my weakest points, I have thought about never going away on work with him again. I wish just for 5 minutes he could have experienced what I did.

How do people move on, how does you face someone who has seen you so helpless.
 
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Thanks to those those that have commented and offered kind words. I simply can't find this same level of understanding and shared experience with non-diabetics, or even some health professionals...

JasonHayes -- your post in particular really hit home. Like you, I have many times felt less capable and confident, and subsequently been viewed by people as "fragile", after they've witnessed me experiencing a low, or worse, had to help me recover from one, as well. Not everyone knows what to do in these situations, and many others are scared away by my actions (mostly involuntarily) or by what I'm saying (often nonsensical). It's humiliating and infuriating. I often tell people it's not the disease that causes these reactions -- it's the treatment. Either way, people are freaked out in these instances, especially if they've never witnessed a low before. And that includes some people I'm very close to or have known for years.

One experience I'm reminded of happened while waiting for food I had just ordered to be served. I knew for 30 minutes or so I would be getting low and that I had to eat. Nothing unordinary. I had just finished playing ice hockey and decided I would go to a restaurant that was on my way home. I was driving, and approached a tunnel that is en route and where, on the other end, the restaurant is only 2 minutes away. What I didn't anticipate was that there would be construction through the tunnel, with traffic merging into a single lane. What would normally be a 3 minute journey ended up taking close to 15 minutes. It's time I didn't really have...

I got to the restaurant, parked my car, and went inside and ordered and paid for my food. By this time, though, it was hard to focus my eyes and I could tell I was getting very low. In the short time it took for my take away to be prepared, I became completely disoriented and nonsensical. I was vaguely aware that I was speaking aloud (about what I had no idea). When I was finally given my food, I somehow made it back to my car. A couple of the staff from the restaurant actually followed me out to the car to check on me. I assured them as best I could that I was fine, and immediately opened and sipped from the two juice boxes I kept in the car. I knew I had to get my blood sugars up before even thinking about driving home (why I didn't eat at the restaurant, I have no idea, but logic isn't a feature of a severe low, as we all know).

After 15 minutes or so, I felt I was okay to drive. I pulled out of the parking lot and onto the street, and stopped at the first traffic light. When the light changed, I had only gone a few hundred meters when I saw the flashing lights of a police car behind me. I realized he was wanting me to pull over. Apparently the staff at the restaurant felt I was in a bad way and that it was unsafe for me to drive -- and they called the police. After explaining to the officer what had happened, and showing him my Medic Alert ID and two empty juice boxes, he insisted he follow me all the way to my home, which he did.

When I closed the door and watched him leave, I lost it. In that moment, I was desperate for my late wife. I felt humiliated, angry, frustrated -- and so, so alone. I called my sister and she and her husband picked up in their car. I was bawling, but they helped to calm me down.

Bad "lows" affect my concentration, self-awareness, personality and/or disposition. None of this is for good, obviously. My wife hated (no, she HATED) when I was low and would get belligerent and confrontational. It happened a lot, and I am ashamed of it. My recollection is that in my attempts to assure her I was okay (which I wasn't), I would resist taking the juice she had gotten me and it became a battle to get me to drink the juice. Of course, she was always right, and I was always wrong. But in those moments, when I am not in my right mind, it is hard to recognize and accept that I am incapable of helping myself, or that I'm "fragile" (see above) and need someone else's help. I've been a Type 1 for 30 years, and this remains a problem.

Thoughts?

Steve
 
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I haven't got much to add really but wanted to comment that this post is a good reminder of what it can sometimes be like to be type 1 (or an insulin user or similar). You often hear people saying 'Oh you just need to take x amount of insulin for x amount of food' or 'just go low carb' or 'just work out your ratios' and on and on. Sometimes none of that makes the slightest difference when your body decides to go all out hypo. It is horrible and yes you do feel embarrassed even though none of it is your fault. Who wants their colleagues or anyone else witnessing the results. My Mum used to have severe hypos and she would be like a different person when in one, aggressive and saying all sorts of things. She was the loveliest, gentle woman ever when not hypo. I know it's something we have to try to manage and live with but I just wish people wouldn't look upon it as somehow being something you did or didn't do that caused it.
 
On the subject of the CGM, most of us are using something like a libre 2 which has alarms built in. It’s not perfect but it’s such a good tool in the toolbox for predicting lows so they don’t catch you out.

I'm not sure where you are located but in the UK the NHS only aims to fund 20% of T1s. Most may be a little optimistic, given the cost of cgms.

Having said that, I am in New Zealand and am lucky enough to be able to afford to self fund a dexcom (had to stop using libre when I developed an allergy). The alarms are a life saver and if this had been available 25 years ago I would probably have tried for a third child. (Two pregnancies with loss of hypo awareness were enough.) My two worst hypos were during my first pregnancy. During the first, a colleague saved my life by driving me home from work when I refused to admit I was hypo. The second involved a health worker in a van rescuing me (shoeless and clueless) after I'd hypoed during a nap in my third trimester and wandered into the street from my house - I only came round in the hospital. She thought I had mental health issues, which was true given my hypo state.
 
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