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severely uncontrollable type 1 diabetes

Marina Samir

Marina Samir

Member
Messages
11
Type of diabetes
Type 1
Treatment type
Insulin
I am 21 y.o female

diagnosed from about three years as a type one diabetic patient

first, everything is ok with insulin called humalin 30/70 but after about

one year i started to have DKA and hospitalized in ICU

i took advice of many many doctors but no result

now i take 4 basal insulin therapy with very very high doses can reach to 200 IU without any effect my device always records 500 or high & i still have DKA quite everyday, i hospitalized in ICU about 35 or 40 times until now and i don't know what i can do my blood sugar refuses to falldown with insulin>>>PLEASE IF U CAN HELP ME
 
4 different basals or do you mean you bolus at mealtimes too? What do you eat on a typical day?

Ali
 
Marina, if your bg and ketone levels are high then you need to seek urgent medical attention.
 
Marina Samir said:
I am 21 y.o female

diagnosed from about three years as a type one diabetic patient

first, everything is ok with insulin called humalin 30/70 but after about

one year i started to have DKA and hospitalized in ICU

i took advice of many many doctors but no result

now i take 4 basal insulin therapy with very very high doses can reach to 200 IU without any effect my device always records 500 or high & i still have DKA quite everyday, i hospitalized in ICU about 35 or 40 times until now and i don't know what i can do my blood sugar refuses to falldown with insulin>>>PLEASE IF U CAN HELP ME
Click to expand...

Hello Marina, I am so sorry to read of your ongoing diabetes problems. I really think you need to get in touch with your local doctor, your diabetes team or the hospital. You cant carry on like that and needs thorough investigating ASAP. What ever you are doing, it's obviously not working, so please seek medical help.
What country are you in and can you get immediate help and advice? Please take care and let us know what happens.

Good luck and all the best RRB x
 
Last edited by a moderator:
Marina Samir said:
I am 21 y.o female

diagnosed from about three years as a type one diabetic patient

first, everything is ok with insulin called humalin 30/70 but after about

one year i started to have DKA and hospitalized in ICU

i took advice of many many doctors but no result

now i take 4 basal insulin therapy with very very high doses can reach to 200 IU without any effect my device always records 500 or high & i still have DKA quite everyday, i hospitalized in ICU about 35 or 40 times until now and i don't know what i can do my blood sugar refuses to falldown with insulin>>>PLEASE IF U CAN HELP ME
Click to expand...

Marina,

Since they have let you out of hospital every time after these DKAs, presumably they are managing to stabilize your blood sugars at some kind of reasonable level then, but your control goes again when you leave hospital. Is that right? If so, how quickly? Have you tried keeping a food diary for a week? Have you tried exercise while your bloods are lower (for you, that is) so around about 200. My guess is that it's hidden carbs in your diet, or that your estimates are out. The other possibility is insulin resistance. And another is faulty injection technique. How are you supported/supervised right now? One year is not a very long time to sort out your diabetes. But it sound like you need someone to go over each part step by step.
 
Hi. Yes, can you eplian 4 Basal. I'm assuming you should be on two insulins, Basal and Bolus. Normally the Basal would be taken once day or split into two and the Bolus taken before any meal. Are you carb-counting the amount of Bolus needed for each meal? Do let us know more and go to A&E if your blood sugar goes into Hi on the meter. Have plenty of water. What sort of diet are you one. You need to have a very low level of carbs in your diet until the blood suagr is sorted. Can I ask what your weight/BMI is?
 
Daibell said:
Hi. Yes, can you eplian 4 Basal. I'm assuming you should be on two insulins, Basal and Bolus. Normally the Basal would be taken once day or split into two and the Bolus taken before any meal. Are you carb-counting the amount of Bolus needed for each meal? Do let us know more and go to A&E if your blood sugar goes into Hi on the meter. Have plenty of water. What sort of diet are you one. You need to have a very low level of carbs in your diet until the blood suagr is sorted. Can I ask what your weight/BMI is?
Click to expand...

I don't think ( as a forum and not medically trained) telling a member who is such state with her diabetes that she needs to go very low carb. We don't know what other medical conditions she may have, her weight, possible kidney, eye problems as we have no idea what is going on in her life, physically or mentally. The huge BS readings should be seen by her medical team ASAP.

Best wishes RRB
 
@RuthW yes that is right after a great amounts of i.v fluids & i.v insulin therapy every thing is good but as i starting my s.c insulin doses every thing gets bad again very high bg, Kenton bodies can reach to +3 , paroxysmal breathing & sometimes loss of consciousness that is occurs daily
i tried every thing you can imagine with no result, i eat very little amounts of food ,i afraid of food , afraid of eating, somedays my meals is only salad
 
Marina, I really don't know what to say to help you right now.. But I am going to try and find out something. Stay with us on the forum, we will try our best to here for you. Take care and try and be strong. RRB x
 
Marina Samir said:
I am 21 y.o female

diagnosed from about three years as a type one diabetic patient

first, everything is ok with insulin called humalin 30/70 but after about

one year i started to have DKA and hospitalized in ICU

i took advice of many many doctors but no result

now i take 4 basal insulin therapy with very very high doses can reach to 200 IU without any effect my device always records 500 or high & i still have DKA quite everyday, i hospitalized in ICU about 35 or 40 times until now and i don't know what i can do my blood sugar refuses to falldown with insulin>>>PLEASE IF U CAN HELP ME
Click to expand...

Hello.

The first thing that i can think of. Is are you storing your insulin in a cool place? (the fridge) & are you keeping your insulin cool..?
 
Robinredbreast said:
I don't think ( as a forum and not medically trained) telling a member who is such state with her diabetes that she needs to go very low carb. We don't know what other medical conditions she may have, her weight, possible kidney, eye problems as we have no idea what is going on in her life, physically or mentally. The huge BS readings should be seen by her medical team ASAP.

Best wishes RRB
Click to expand...
In what way do you mean low carb could be harmful? I don't know of anything as harmful as high BG and DKA and to NOT advice someone in Marinas situation to low carb might actually be harmful. Of course she needs medical attention too obviously but the first and simplest thing she can do to control BG is not to eat things that we know will raise it, and lowering BG must be of highest importance for the OP.
 
Totto said:
In what way do you mean low carb could be harmful? I don't know of anything as harmful as high BG and DKA and to NOT advice someone in Marinas situation to low carb might actually be harmful. Of course she needs medical attention too obviously but the first and simplest thing she can do to control BG is not to eat things that we know will raise it, and lowering BG must be of highest importance for the OP.
Click to expand...

Totto, I haven't said low could be harmful, I never had. Please read my post again, as I said we do not know of the OP's physical or mental state, or any other medical conditions she has.
 
Robinredbreast said:
Marina, I really don't know what to say to help you right now.. But I am going to try and find out something. Stay with us on the forum, we will try our best to here for you. Take care and try and be strong. RRB x
Click to expand...

Hi Marina, I have a friend who comes from Egypt and she was telling me about the hospitals. Do you go to the public hospital ? as she said they are pretty basic and not the best at all. She did tell me of el minya (south of Cairo) Christian medical centre, where they can treat medical conditions for very little money or even free. Is there one of these medical centres in your area, as they are used by all faiths and religions. Clearly there is something wrong with your diabetes control as you have now said you eat very little, yet your readings are still very high. Take care and please be safe.

Best wishes RRB
 
MArina
Have you been given u500 insulin instead of u100?

It is meant to be for persons that are needing higher amounts of insulin as you would need substantially less
 
Robinredbreast said:
Totto, I haven't said low could be harmful, I never had. Please read my post again, as I said we do not know of the OP's physical or mental state, or any other medical conditions she has.
Click to expand...
Robinredbreast said:
I don't think ( as a forum and not medically trained) telling a member who is such state with her diabetes that she needs to go very low carb. We don't know what other medical conditions she may have, her weight, possible kidney, eye problems as we have no idea what is going on in her life, physically or mentally. The huge BS readings should be seen by her medical team ASAP.

Best wishes RRB
Click to expand...
You are right. Actually I read the sentence

don't think ( as a forum and not medically trained) telling a member who is such state with her diabetes that she needs to go very low carb.We don't know what other medical conditions she may have, her weight, possible kidney, eye problems as we have no idea what is going on in her life, physically or mentally

as:

I don't think you (as a forum member and not medically trained) should be telling a member who is in such state with her diabetes that she needs to go very low carb as she might have other conditions that can make a low carb diet harmful.

My view is that the poor girl needs what help we can give her and going low carb and also high fat so she gets some sustenance as a means to try and control raging blood sugar is, I think, the second step she should take after seeking medical help. And low carbing can be done regardless of mental status ot other health conditions including kidney problems, weight issues and the rest.

I don't want to quarrel over this. Maybe you could make you view on eating carbs or not a bit clearer in this particular situation? Others may have made the same interpretation as I did.
 
Totto said:
You are right. Actually I read the sentence

don't think ( as a forum and not medically trained) telling a member who is such state with her diabetes that she needs to go very low carb.We don't know what other medical conditions she may have, her weight, possible kidney, eye problems as we have no idea what is going on in her life, physically or mentally

as:

I don't think you (as a forum member and not medically trained) should be telling a member who is in such state with her diabetes that she needs to go very low carb as she might have other conditions that can make a low carb diet harmful.

My view is that the poor girl needs what help we can give her and going low carb and also high fat so she gets some sustenance as a means to try and control raging blood sugar is, I think, the second step she should take after seeking medical help. And low carbing can be done regardless of mental status ot other health conditions including kidney problems, weight issues and the rest.

I don't want to quarrel over this. Maybe you could make you view on eating carbs or not a bit clearer in this particular situation? Others may have made the same interpretation as I did.
Click to expand...


My thoughts and concerns are with Marina right now and I would like to keep it that way thank you.
 
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